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Husband With Ibs But Showing Signs Of Coeliac


seashellp

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seashellp Newbie

Hi All,

My husband has suffered with IBS for around 8 years, he has been to various doctors who did the breath test etc but has never been scoped.

Now because I am coeliac and have been on a gluten free diet since last August most of the food I prepare for him is gluten free!

He now gets really bloated after a few beers or doughnuts etc and was wondering if we should have him checked for coeliac?

Is it possible because he is now on a limited gluten diet that when he has it he is having a reaction?

Anyone else been in this situation?

I'm now worrying about my kids as most of what they eat are gluten free meals and I dont want them going down the same road (apart from my middle son who has major probs I have mentioned in another thread!) and ending up they are gluten intolerant as we all know how limiting it can be especially for eating out.


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Amyleigh0007 Enthusiast

My celiac blood tests were negative due to a gluten light diet. When my son was diagnosed last March we got rid of all gluten food and I only ate gluten at lunch at work and sometimes i didn't eat gluten at all for days in a row. When I had my test done last June it was negative but when I went for a second opinion at a different doctor she told me my test was negative probably due to my low gluten diet for 3 months. She said if I wanted to have a black and white on paper diagnosis of Celiac that I would have to eat gluten for at least 6 moths and do the tests again. There is no way I would do that so she diagnosed me as gluten intolerant based on the positive response to the diet along with my IBS diagnosis at age 14 and the fact my son has Celiac. So, if your husband and kids are planning on getting tested for Celiac they need to keep eating a diet full of gluten.

seashellp Newbie
My celiac blood tests were negative due to a gluten light diet. When my son was diagnosed last March we got rid of all gluten food and I only ate gluten at lunch at work and sometimes i didn't eat gluten at all for days in a row. When I had my test done last June it was negative but when I went for a second opinion at a different doctor she told me my test was negative probably due to my low gluten diet for 3 months. She said if I wanted to have a black and white on paper diagnosis of Celiac that I would have to eat gluten for at least 6 moths and do the tests again. There is no way I would do that so she diagnosed me as gluten intolerant based on the positive response to the diet along with my IBS diagnosis at age 14 and the fact my son has Celiac. So, if your husband and kids are planning on getting tested for Celiac they need to keep eating a diet full of gluten.

Thanks for reply, yeah I know about the full on gluten as my son had to go back to it for his tests recently but its so hard because the symptoms return full on, he was only full on for 6 weeks tho and couldn't really tolerate it so I think thats why he has come back as negative for the coeliac but doc says he is gluten intolerant! As for my hubby he has gluten in his diet just not on a regular basis and he would find it hard to go full on again I think but suppose thats what he will have to do if necessary.

Going to get him referred to my consultant and see from there.

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    • trents
      I guess I would encourage you to abstain from the wine for a while. If you know something causes you pain then it is a good idea not to do it if you don't have to.
    • Celiacsugh
      Encouraging to hear others have had this pain and thanks for the responses   yes I was checked, no H pylori. 
    • trents
      We have had numbers of others on this forum report pain in that same area. Have you been checked for an H. Pylori infection? This is something very common in the celiac population.
    • Celiacsugh
      Hi! Yes I have, endoscopy didn’t show anything other than celiacs. I’ve been wondering if it’s possibly that my intestines are so damaged that the wine is irritating because they have not fully healed. Very odd, I felt better for a few weeks and then all the sudden started noticing the pain again after the weekends when I drink wine (don’t drink during the week). I’ve also heard that dull left side pain isn’t a common symptom with celiacs so my diagnosis was surprising to doctor as well though the pain did initially subside with gluten-free diet. 
    • trents
      Welcome to the forum, @Celiacsugh! Have you been checked for a gastric or peptic ulcer?
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