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Where Does Gluten Hide

hermit41

By hermit41
in Dermatitis Herpetiformis

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hermit41 Newbie
hermit41
Posted

I have been reading the posts on this forum for some time but only recently decided to join. I was diagnosed with "probable" DH by skin biopsy about 2 years ago and with Celiac Disease a bit over a year ago by blood test. At that time I went on what I hoped would be a Gluten Free Diet, and to a large extent it has worked. At least I have had considerable improvement in the operation of my bowels, movements, bloating, etc.; and have had long periods of remission from the DH blisters. About 6 and 4 months ago I had upper GI scopes and no evidence of Celiac Sprue was found. Still I don't know if this was because I had actually healed because I immediately went for a gluten free regimen after the blood test diagnosis, or what.

At any rate, my problem is that despite what my wife and I think is a robust vigilance routine, I continue to get outcroppings of DH blisters that I cannot attribute to anything I ate at home, visits to restaurants or inattention to the allergen details on food packages. These can last for a month and then clear up for a month following the same routine.

I have been suspicious of everything and most recently some of the left over Easter candy specifically Hershey's Candy Coated Milk Chocolate Eggs. I have heard that some food colorings have gluten in them. But the allergen information on the packages indicates otherwise. I have put my trust in the allergen information on the packages.. but something keeps biting me. Does anyone have similar experiences or knowlege of what addidtives might contain gluten and still escape being noted on the allergen information.

Cheers,

Craig

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magpie Newbie
magpie
Posted

sounds like you and I are paddling the same boat , for about the same amount of time, I dont know the answer but maby thee'se few things will help I hope so . I thought that all red meat was safe icon8.gif it's not per wegmans a few weeks ago , if any meat products are cut up instore they have been CC this includes cut up chicken , pork , turkey ect, ect , so ask your meat dept about there good's , it really is about starting from scratch if anyone isl living in your home that is eating gluten you do need to have all your own gluten-free pot's , silverware , toaster , you know the list and check out everything , gluten can hide in the toothpaste , shampoo , meds , again ect , ect and you need to ask your-self if going out to eat is worth the break out , it does not matter that you are eating gluten-free at the resturant it's the bloody resturant thats one big break out waiting to happenicon12.gifpardon me lol but really next time your in a resturant just watch , from the cleaning of the table your sitting at to the person that is serving your meal they are not washing there hand's after everything they touch , and thats just what you can see , it's just not worth it to me ,thats just my oppion . but any way I hope this helps even a little cheers

ang1e0251 Contributor
ang1e0251
Posted

Sounds like you are having a problem with Sneaky Gluten. It can hide in the craziest places! Recently another poster reported that many frozen chicken pieces are coated with gluten containing broth before freezing. Also I avoid items with "Natural Flavors". This might not always be necesary but unless you call the company you don't know if gluten is one of those natural ingredients. Lots of pet food has gluten. It can also be in the additives that are used to round out supplement or in the coatings.

When you eat in restaurants, you just can't know about CC. It's a crap shoot.

It might help you to keep a food and symptom journal for awhile. It could help pin down a pattern that's not so easy to nail down.

one more mile Contributor
one more mile
Posted

in my house it hides on the counter tops. My food never touches the counter now. There is no 5 second rule for us!

I agree with what the first poster said. Get back to basics and slowly add food. I add things one at a time. If trying something new I take one bite and wait about 15 minutes. I would much rather have to heat up a new food then spend a few days in the bathroom. I have even done this when dinning out and had waitress's come over and ask me if the food was ok. My friend teases me that I should send a food tester ahead of me.

Another hiding place is in spices that are added to processed food. One place I called said that they can not promise that their vendors are gluten free. and what may be gluten-free one time may not be in a few months.

You are not actually walking in to a dunken doughnuts are you? Just the flour in the air in them makes me itchy.

When you figure it out please let us all know.

irish daveyboy Community Regular
irish daveyboy
Posted

Hi,

Here's a link to something I posted long ago on another thread but on the same theme.

.

Hidden Gluten

.

Best Regards,

David

.

SGWhiskers Collaborator
SGWhiskers
Posted

My sneaky gluten sources:

Hand soap where I work. (darn Vitamin E)

Grocery store (can't go in anymore)

My rice maker (don't ask me how)

Eating with my fingers (spoons for finger food now).

Bird food

The BBQ

Anytime someone else helps with my food.

My favorite tortilla chips (CC?)

Lisa Mentor
Lisa
Posted

Open Original Shared Link

Here is a list of companies who will clearly list ALL forms of gluten. Hershey is not one of them. :angry:

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