Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Magazine?/contact For Exchange Student


Jess

Recommended Posts

Jess Apprentice

Hello.

Someone from the German celiac forum was asking me whether there was something like a magazine for celiacs that she could place an ad in, as she is looking for a host family for her high school year in the US.

Thanks in advance.

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jess Apprentice

This is not the first time it happens that one of my posts receives many views, but no one is posting a response. :huh:

I could understand if none of the people here knew where one could find information for exchange students, but I think answering my question about an official celiac magazine shouldn't be difficult. I did some research of my own, but I am pretty sure that due to the fact that I am not an official member of the US celiac disease organization, this might be something that I wouldn't have access to. I don't want to be rude or anything. I just feel bad trying to help people from the other forum, without even getting a simple "Yes", "No", or even "I don't know". :(

Thank you.

Lisa Mentor

I am sorry that your post was not responded too.

An internet search would find some magazines for the gluten free lifestyle, but I would think that advertising would be costly. Contacting the Celiac Sprue Association, Celiac Disease Foundation, the Gluten Intolerance Group and R.O.C.K.- Raising Our Celiac Kids. They have contact information on their websites. Most, if not all have newsletters they send out to their membership.

Anyone of these great organization would be happy to help you in any way that they can, member or not. Make that effort to contact them.

On the cover page of this Forum, the Calender mentions many events with many sponsors. Perhaps some of those listed could direct you the information that you are requesting.

Judyin Philly Enthusiast

Jess

I never saw the first one, sorry

Lisa's suggestions were so great.

Can't add any other ideas.

Did this person know where the student would live?

I can think of a contact for the East coast if that's were they are going.

I still think Lisa's advice is the best for over all info

Judy

  • 2 weeks later...
Jess Apprentice

Thank you so much for your help. :) I am going to "hand the information over" to the person. I'll also try to find out were the person is going to stay, so that I can find out, if your, Judyin Philly, East coast contact might be useful. Again, thank you so much for your help.

Judyin Philly Enthusiast

spelling might be wrong

but Alice Blast......of NFCA and Vanisa at the site might be good contacts

I'll try to find the link to the site

Open Original Shared Link

Jess Apprentice

Thank you, Judyin Philly. I'm sure this information will be helpful if someone needs help again. :) The person that I was posting for already found someone in Colorado though.

Thanks again to all of you for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to Surinder's topic in Related Issues & Disorders
      1

      Gluten intolerance and coughing fitsfits

    2. - Surinder posted a topic in Related Issues & Disorders
      1

      Gluten intolerance and coughing fitsfits

    3. - Aretaeus Cappadocia replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      2

      Help understand results

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      41

      My journey is it gluten or fiber?

    5. - cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,974
    • Most Online (within 30 mins)
      7,748

    2972
    Newest Member
    2972
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Hello Surinder, and welcome to the forum. Thank you for sharing your experience. Have you been diagnosed with coeliac disease? Although less common, there are reports of coeliac disease being associated with pulmonary conditions causing symptoms such as a chronic cough.     Case Report: A case of cough, lymphocytic bronchoalveolitis and coeliac disease with improvement following a gluten free diet
    • Surinder
      I read with interest someone's article regarding gluten and coughing and how drs could not diagnose the cause. I am a prediabetic and in the process of cutting down on carbs I slowly eliminated bread and added more complex carbs and found that my cough had gone and I was feeling generally calmer and happier. This was an accidental finding and I relate to your story. I have shared my story for you. Kind regards, Surinder
    • Aretaeus Cappadocia
      tldr: "we tested your daughter with one test and that result does not suggest Celiac. However, the test we used should not be used as the initial screening test for celiac (like it appears they did) because it misses a lot of cases ("low specificity"). No further testing is scheduled or pending" We eat "gluten" and our bodies digest part of it into "deamidated gliadin" (GLIADIN (DEAMID)). The gliadin is what actually triggers the Celiac disease pathway. The celiac's immune system sees gliadin much like an invading virus, and makes antibodies (AB) against gliadin. Each antibody has the ability to recognize a specific target (anti-gliadin antibodies recognize gliadin). When antibodies find their specific target, they stick to it and call in other parts of the immune system to help eliminate the target. This process also causes the immune system to make a lot more of that antibody, and your test was designed to measure if there was an elevated level of type A (IgA) anti-gliadin antibodies. Antibodies, which are also called immunoglobulins (Ig), come in different types (e.g. class "A" or "G"). Think of antibodies as different kinds of cars, and antibody types as different colors of car. An "A" type (color) is called IgA, and a G type is called IgG. IgA's are more relevant to Celiac disease than are the IgG's or other types. Unfortunately, some people don't make very much of the IgA class (like not making aqua-colored cars, even though they make the same cars in green) and that's a common reason for the gliadin-Ab-IgA test to fail to identify celiac. As Trents wrote, they should have given her a "total IgA" test and probably tested her for the anti-tTG IgA antibody.  
    • xxnonamexx
      So I have the Benfo, Thiamax, and Neuromag along with my Super B Complex. When I read the labels it says take 3/take 4 times a day but one pill a day is ok correct since its 4 pills at breakfast.
    • cristiana
      Hi @tiffanygosci Well done for reaching out,  fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier.     I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be, particularly at first, when you don't know anyone with celiac disease.  *see link for film below. I realise now how blessed I was that when I was diagnosed two friends were also diagnosed around the same time, as we shared a lot of tips and recipes at the start.   Since then the number of people I know diagnosed with coeliac disease has grown and grown, there seems to be a much greater awareness of it among healthcare professionals and the public, at least this side of the Atlantic (I'm British).  I think in time you may find this, too. That said, those two coeliac buddies were 'straightforward' cases who seemed to recover very quickly when on a gluten-free diet - I struggled for some time.  So I found that I spent much more time discussing things with this online coeliac family. If you have any more questions, we're here for you.  I hope your event on 15th goes well.  Sounds like a good start!  I like you am not keen on Facebook, but perhaps setting up an account short-term might help? * https://vimeo.com/486284734 Cristiana     
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.