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- knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders14Headaches / Migraines and Hypoglycaemia
@Sarah Grace, Thanks for answering. I'm sorry you're not bouncing back as quickly as we would like to see. Are you taking a B Complex? Thiamine interacts with each of the other B vitamins somewhere along the line. Taking a B Complex helps boost absorption and ensures there's plenty of the other B's for thiamine to work with. Thiamine needs... -
- knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders14
Headaches / Migraines and Hypoglycaemia
I'm so glad you're still taking Benfotiamine! It's interesting to note that elevated liver enzymes and brachycardia are symptoms of thiamine deficiency and you've had these before taking the Benfotiamine. Many cardiac patients have low thiamine. I have also had these, but since taking Benfotiamine I no longer have them. I hope you can find the courage... -
- knitty kitty replied to Bebygirl01's topic in Related Issues & Disorders16
How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
@Liquid lunch, so glad you're going to continue with the thiamine! Good to keep in mind that tannins in tea and coffee can break thiamine in two, rendering it useless. Caffeine can destroy thiamine, too. Take your thiamine separately from these drinks, by an hour or so. Green tea (not macha, though) only has about thirty percent of caffeine as black... -
- trents replied to MTAC's topic in Coping with Celiac Disease1NEW - 7 year old daughter diagnosed but 'not officially' - negligence from NHS
Looks like from your spellings ("coeliac"), expressions ("bloods" for blood tests) and the lack of timely communication and appointment availability that you must be in the UK. It must be very frustrating to have to deal with such a dysfunctional healthcare system. I hope I haven't offended you. In the UK and in Europe in general, there is trend for... -
- MTAC posted a topic in Coping with Celiac Disease1NEW - 7 year old daughter diagnosed but 'not officially' - negligence from NHS
My daughter had been complaining of stomach paints intermittently for a while now. We had been to the doctors before in which they said it was just general constipation. For a good while its just been something she complained of and we would put it down to maybe its hunger pains because she is fussy with food, growing pains etc. - She was getting nose bleeds...
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By knitty kitty · Posted
@Sarah Grace, Thanks for answering. I'm sorry you're not bouncing back as quickly as we would like to see. Are you taking a B Complex? Thiamine interacts with each of the other B vitamins somewhere along the line. Taking a B Complex helps boost absorption and ensures there's plenty of the other B's for thiamine to work with. Thiamine needs magnesium to make enzymes, too. Are you taking a magnesium supplement? I really like Magnesium L-threonate. I had been supplementing with magnesium, but I tried Magnesium L-threonate after reading articles on PubMed which said it improves cognition, migraines, memory, mood, and intestinal permiability! The difference has been very... -
By knitty kitty · Posted
I'm so glad you're still taking Benfotiamine! It's interesting to note that elevated liver enzymes and brachycardia are symptoms of thiamine deficiency and you've had these before taking the Benfotiamine. Many cardiac patients have low thiamine. I have also had these, but since taking Benfotiamine I no longer have them. I hope you can find the courage to increase your dose to 300 mg of Benfotiamine. Something extraordinary happens at higher doses of thiamine, a whole different array of health benefits starts happening. I was sceptical, in the beginning, too, but took the plunge and have never looked back. The difference is really astounding. Thiamine is nontoxic and safe even in... -
By knitty kitty · Posted
@Liquid lunch, so glad you're going to continue with the thiamine! Good to keep in mind that tannins in tea and coffee can break thiamine in two, rendering it useless. Caffeine can destroy thiamine, too. Take your thiamine separately from these drinks, by an hour or so. Green tea (not macha, though) only has about thirty percent of caffeine as black tea, but Oolong tea can act as a laxative, so be aware. Yes, physical illnesses like pneumonia can precipitate a thiamine deficiency. We need more thiamine when we're physically ill, mentally stressed or physically active especially in hot weather. Studies showed that patients with Covid who had higher thiamine and Vitamin D... -
Looks like from your spellings ("coeliac"), expressions ("bloods" for blood tests) and the lack of timely communication and appointment availability that you must be in the UK. It must be very frustrating to have to deal with such a dysfunctional healthcare system. I hope I haven't offended you. In the UK and in Europe in general, there is trend for doctors to grant a celiac diagnosis when ttg-iga scores reach 10x normal. Your daughter's scores certainly meet that criteria. I am not guaranteeing that will prove to be the case in your situation as I don't think that is yet a universal protocol even in the UK and in Europe. Some doctors may still insist on doing a scoping with biopsy to confirm the...
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My daughter had been complaining of stomach paints intermittently for a while now. We had been to the doctors before in which they said it was just general constipation. For a good while its just been something she complained of and we would put it down to maybe its hunger pains because she is fussy with food, growing pains etc. - She was getting nose bleeds quite regularly and doctors just said she should have her nostrils cuarterized at some point (has had them here and there since a baby - but dad had the same when young so didn't question) Only recently we went to the doctors for tummy pain again and they requested FBC and a coeliac test. The bloods come back with...
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