Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waste Of Time


Roda

Recommended Posts

Roda Rising Star

I was really anticipating my 6 month check up yesterday. I really do like the GI doc. Well anyway, I had called my endocrinologist's office to send copies of my lab work I had done on April 3rd and this was after two other requests for copies for myself. I told them that it was very important to fax the most recent labs to the gi doctor. When I got to the GI yesterday they did not have it. The other office faxed labs from Dec.!! Needless to say I was mad. :angry: The same thing happened when I had my labs on Dec 5th. It took until the 2nd week in Jan for the doctor to review it and then have the nurse call me. I let it go at that time since it was around the holidays. But this time there is no excuse. I needed a copy of those labs for the GI to know what direction to go as for the iron and vitamin d levels. So all it did was frustrate me. The GI doc did order the antibody tests for me and I will have that done where I work in the next couple of days. They were going to get on the phone and call the other office to see about getting the labs. They told me they would call me in about a week when the antibody tests come back. I know they will follow through, they always have. I like how the endocrinologist has listened to me in the past and has managed my thyroid, but if it takes her around a month to rewiew labs, I think I will find another one. Heaven forbid something was very wrong and needed immediate attention. (not that I think there was, but that's not the point) Sorry for the rant. I just needed to let out some steam.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mattathayde Apprentice

i hate the red tape in the medical field. how ever bad it is to result to it you may need to threaten legal action against them, its your medical records and you have a legal right to have access to it once they do

-matt

Roda Rising Star
i hate the red tape in the medical field. how ever bad it is to result to it you may need to threaten legal action against them, its your medical records and you have a legal right to have access to it once they do

-matt

I made a phone call on Thursday morning to the endocrinologist's office. The secretary could not help me so I got forwarded to the voicemail. I left a message that I would like my labs reviewed by the doc and faxed ASAP to the GI doc. I also said it made an almost pointless appointment for me and I would appreciate if they would call me back on the matter. Needless to say here it is Sunday and noone called me back! :angry: I think I will just keep on leaving messages until I annoy them to no end. Maybe I will ask for the office manager and address my concerns also. I am going to call the GI doc also to see if they were sucessful in getting them to fax the results. I was told by the other secretary that if the labs were not reviewd that they would not fax them to anyone. It is just plain bull crap. I know doctors are busy and have other patients, but waiting a month + for results is ridiculous. On a positive note though I had my blood drawn Friday night for my current antibody levels. I will probably find out those by the end of this week.

mushroom Proficient

These people are not fulfilling their responsibilities to you, and the delay is inexcusable. No wonder you are mad! Yes, keep hounding them by all means.

Liveenjoylife Apprentice

As their patient they have the responsibilities to follow through. Some people want to get paid to work, but not do their job all the while. You have every right to vent. I hope you keep them on their toes.

ravenwoodglass Mentor

Whether the doctor has reviewed them or not you have a legal right to copies of the labs. Don't call the office, go in person and request that they hand them to you. Then if they still refuse tell them you will be contacting your lawyer.

mattathayde Apprentice
I made a phone call on Thursday morning to the endocrinologist's office. The secretary could not help me so I got forwarded to the voicemail. I left a message that I would like my labs reviewed by the doc and faxed ASAP to the GI doc. I also said it made an almost pointless appointment for me and I would appreciate if they would call me back on the matter. Needless to say here it is Sunday and noone called me back! :angry: I think I will just keep on leaving messages until I annoy them to no end. Maybe I will ask for the office manager and address my concerns also. I am going to call the GI doc also to see if they were sucessful in getting them to fax the results. I was told by the other secretary that if the labs were not reviewd that they would not fax them to anyone. It is just plain bull crap. I know doctors are busy and have other patients, but waiting a month + for results is ridiculous. On a positive note though I had my blood drawn Friday night for my current antibody levels. I will probably find out those by the end of this week.

ya i would walk in in person and not leave with out them, just stand at the window blocking any one from checking in because it should take them all of 2 mins to pull your file and photo copy stuff. if they keep giving you crap or you just dont have the time to deal with it get a lawyer friend to call them up and say they are trying to resolve this matter for you, they will know what to say to get your files and if they dont you have an open shut case of malpractice, to the best of my knowledge

-matt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rumbles Newbie

Had the same kind of issue a couple of years ago when I was in a critical

medical situation (cancer). Since I couldn't make one doctor's office

provide the results to another as quickly as needed, and didn't have the

time or strength to go doctor-to-doctor to pick up and deliver test

results, I found a way to bypass the problem.

I wrote a letter to each of my test providers (labs, x-ray, etc.) instructing

them that from that point forward, all test results were to be sent to the

following doctors, and listed each doctor's information (including phone and

fax). When I went to my next test, I took that letter, plus business cards

for each of the doctors, and gave it to the testing facility, and made

sure that they understood the instructions and were noting my records

accordingly. On each follow up visit, I also remind them that they have

standing instructions from me to provide the test results to multiple doctors.

I advised each doctor personally that I required this, and that they were

to let me know if they had a problem with it, as if they did, it would

mean that I would need to find another doctor.

Since doing this, I've never had a problem with one doctor not having the

other doctor's test results, and I've achieved a higher level of respect from

my doctors, - they know that I am an active participant in what happens to

me, and that ultimately, I am the decision maker.

Cancer teaches many things, - the first is that you are the primary stakeholder

and that you have to step up and take control of directing traffic and decision

making. I learned that it was my medical team, and that I had to take the lead

position, as the outcome would effect me a heck of a lot more than it would

effect any other member of my team.

Roda Rising Star

I think I will try and make some phone calls today. If I can't get anywhere I guess I will have to go there. It is in the next town so it will be about a 40 min drive. Maybe then they will take me seriouslly. I am going to ask around and try and find a new endocrinologist though.

hermitgirl Contributor

Wow that whole situation is awful. I consider myself lucky that the Dr and GI in my case fax everything the same day between each other, and I don't believe they are on the same network either. My biggest problem is that neither one is listenening to my concerns at this point. I went for my 6 month check last week, told my GI what was going on, pretty much he ignored what I was saying and asked why I was cheating on my diet. I told him I was not that I was aware of, he said that they would run the antibody check just to be sure. Well, I get the phone call Friday, my antibodies show I have been compliant with my diet, and that I am not anemic. So back to square 1.

I would highly suggest you call both offices and speak to the office managers this morning. If you have no results by tomorrow I would go in person. Both sides may be dropping the ball on this but finger pointing.

Why do people in the medical profession feel the need to put power plays on us?

mattathayde Apprentice
Why do people in the medical profession feel the need to put power plays on us?

basically it is because since medicine is privatized thus medical companies and some docs just want to make money and not get sued, there are less docs that come in to the field and just want to help people, or at least that dont get that goal boxed in due to the "we need to make a good profit" or "if you mess up you will get sued". by trying to control their patients they put them selves in a position where the patients dont want to fight back and since the patients dont fight then the medical industry can do what they want.

that being said there are a lot of good people in the industry and some good companies but we can all agree that there is to much BS and corruption

-matt

Roda Rising Star
Wow that whole situation is awful. I consider myself lucky that the Dr and GI in my case fax everything the same day between each other, and I don't believe they are on the same network either. My biggest problem is that neither one is listenening to my concerns at this point. I went for my 6 month check last week, told my GI what was going on, pretty much he ignored what I was saying and asked why I was cheating on my diet. I told him I was not that I was aware of, he said that they would run the antibody check just to be sure. Well, I get the phone call Friday, my antibodies show I have been compliant with my diet, and that I am not anemic. So back to square 1.

I would highly suggest you call both offices and speak to the office managers this morning. If you have no results by tomorrow I would go in person. Both sides may be dropping the ball on this but finger pointing.

Why do people in the medical profession feel the need to put power plays on us?

No the GI doctor's office is good. It is just the endocrinologist office that dropped the ball. I hope they don't do this to others.

Roda Rising Star

Well, finally today I got this whole mess straightened out. I called on Monday and asked to speak to the office manager. I ended up leaving three voice mails and she never called me back. So I called again on Tuesday and asked to speak to someone in administration. I actually spoke to a human being and she referred me to the office nursing supervisor since the office manager was "out". I explained the whole situation to her and she told me that she would check into it and call me back. I told her I would be out for about 1 1/2 hrs so she could reach me after that. Well I get back and she had returned my phone call only 40 min after I spoke with her and did not even leave a message. I called and had to leave a message and did not hear from her the rest of the day. Around 4:30 pm I called and left her another message. She finaly did return my phone call. She said she personally took care of this and had an extensive talk with the staff regarding policies and that the doctor was sincerely sorry. She really could not tell me what exactly happened. Earlier I had asked her to get copies of my medical record ready so I could take it to another provider. She told me she "sincerely" hoped I would reconsider, but they were availaible for me to pick up. Funny thing is I got a call from the GI docs office this afternoon for them to tell me about my labs that they ordered. The nurse proceded to tell me that she also had made several calls about this and complained also. But the real butt kicker is that even though they had my release with the GI docs fax # they still screwed up and who knows where they faxed it on Tues. The nurse had to call today and give them the fax # again. I just gotta laugh at the stupidity.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.