Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waste Of Time


Roda

Recommended Posts

Roda Rising Star

I was really anticipating my 6 month check up yesterday. I really do like the GI doc. Well anyway, I had called my endocrinologist's office to send copies of my lab work I had done on April 3rd and this was after two other requests for copies for myself. I told them that it was very important to fax the most recent labs to the gi doctor. When I got to the GI yesterday they did not have it. The other office faxed labs from Dec.!! Needless to say I was mad. :angry: The same thing happened when I had my labs on Dec 5th. It took until the 2nd week in Jan for the doctor to review it and then have the nurse call me. I let it go at that time since it was around the holidays. But this time there is no excuse. I needed a copy of those labs for the GI to know what direction to go as for the iron and vitamin d levels. So all it did was frustrate me. The GI doc did order the antibody tests for me and I will have that done where I work in the next couple of days. They were going to get on the phone and call the other office to see about getting the labs. They told me they would call me in about a week when the antibody tests come back. I know they will follow through, they always have. I like how the endocrinologist has listened to me in the past and has managed my thyroid, but if it takes her around a month to rewiew labs, I think I will find another one. Heaven forbid something was very wrong and needed immediate attention. (not that I think there was, but that's not the point) Sorry for the rant. I just needed to let out some steam.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mattathayde Apprentice

i hate the red tape in the medical field. how ever bad it is to result to it you may need to threaten legal action against them, its your medical records and you have a legal right to have access to it once they do

-matt

Roda Rising Star
i hate the red tape in the medical field. how ever bad it is to result to it you may need to threaten legal action against them, its your medical records and you have a legal right to have access to it once they do

-matt

I made a phone call on Thursday morning to the endocrinologist's office. The secretary could not help me so I got forwarded to the voicemail. I left a message that I would like my labs reviewed by the doc and faxed ASAP to the GI doc. I also said it made an almost pointless appointment for me and I would appreciate if they would call me back on the matter. Needless to say here it is Sunday and noone called me back! :angry: I think I will just keep on leaving messages until I annoy them to no end. Maybe I will ask for the office manager and address my concerns also. I am going to call the GI doc also to see if they were sucessful in getting them to fax the results. I was told by the other secretary that if the labs were not reviewd that they would not fax them to anyone. It is just plain bull crap. I know doctors are busy and have other patients, but waiting a month + for results is ridiculous. On a positive note though I had my blood drawn Friday night for my current antibody levels. I will probably find out those by the end of this week.

mushroom Proficient

These people are not fulfilling their responsibilities to you, and the delay is inexcusable. No wonder you are mad! Yes, keep hounding them by all means.

Liveenjoylife Apprentice

As their patient they have the responsibilities to follow through. Some people want to get paid to work, but not do their job all the while. You have every right to vent. I hope you keep them on their toes.

ravenwoodglass Mentor

Whether the doctor has reviewed them or not you have a legal right to copies of the labs. Don't call the office, go in person and request that they hand them to you. Then if they still refuse tell them you will be contacting your lawyer.

mattathayde Apprentice
I made a phone call on Thursday morning to the endocrinologist's office. The secretary could not help me so I got forwarded to the voicemail. I left a message that I would like my labs reviewed by the doc and faxed ASAP to the GI doc. I also said it made an almost pointless appointment for me and I would appreciate if they would call me back on the matter. Needless to say here it is Sunday and noone called me back! :angry: I think I will just keep on leaving messages until I annoy them to no end. Maybe I will ask for the office manager and address my concerns also. I am going to call the GI doc also to see if they were sucessful in getting them to fax the results. I was told by the other secretary that if the labs were not reviewd that they would not fax them to anyone. It is just plain bull crap. I know doctors are busy and have other patients, but waiting a month + for results is ridiculous. On a positive note though I had my blood drawn Friday night for my current antibody levels. I will probably find out those by the end of this week.

ya i would walk in in person and not leave with out them, just stand at the window blocking any one from checking in because it should take them all of 2 mins to pull your file and photo copy stuff. if they keep giving you crap or you just dont have the time to deal with it get a lawyer friend to call them up and say they are trying to resolve this matter for you, they will know what to say to get your files and if they dont you have an open shut case of malpractice, to the best of my knowledge

-matt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rumbles Newbie

Had the same kind of issue a couple of years ago when I was in a critical

medical situation (cancer). Since I couldn't make one doctor's office

provide the results to another as quickly as needed, and didn't have the

time or strength to go doctor-to-doctor to pick up and deliver test

results, I found a way to bypass the problem.

I wrote a letter to each of my test providers (labs, x-ray, etc.) instructing

them that from that point forward, all test results were to be sent to the

following doctors, and listed each doctor's information (including phone and

fax). When I went to my next test, I took that letter, plus business cards

for each of the doctors, and gave it to the testing facility, and made

sure that they understood the instructions and were noting my records

accordingly. On each follow up visit, I also remind them that they have

standing instructions from me to provide the test results to multiple doctors.

I advised each doctor personally that I required this, and that they were

to let me know if they had a problem with it, as if they did, it would

mean that I would need to find another doctor.

Since doing this, I've never had a problem with one doctor not having the

other doctor's test results, and I've achieved a higher level of respect from

my doctors, - they know that I am an active participant in what happens to

me, and that ultimately, I am the decision maker.

Cancer teaches many things, - the first is that you are the primary stakeholder

and that you have to step up and take control of directing traffic and decision

making. I learned that it was my medical team, and that I had to take the lead

position, as the outcome would effect me a heck of a lot more than it would

effect any other member of my team.

Roda Rising Star

I think I will try and make some phone calls today. If I can't get anywhere I guess I will have to go there. It is in the next town so it will be about a 40 min drive. Maybe then they will take me seriouslly. I am going to ask around and try and find a new endocrinologist though.

hermitgirl Contributor

Wow that whole situation is awful. I consider myself lucky that the Dr and GI in my case fax everything the same day between each other, and I don't believe they are on the same network either. My biggest problem is that neither one is listenening to my concerns at this point. I went for my 6 month check last week, told my GI what was going on, pretty much he ignored what I was saying and asked why I was cheating on my diet. I told him I was not that I was aware of, he said that they would run the antibody check just to be sure. Well, I get the phone call Friday, my antibodies show I have been compliant with my diet, and that I am not anemic. So back to square 1.

I would highly suggest you call both offices and speak to the office managers this morning. If you have no results by tomorrow I would go in person. Both sides may be dropping the ball on this but finger pointing.

Why do people in the medical profession feel the need to put power plays on us?

mattathayde Apprentice
Why do people in the medical profession feel the need to put power plays on us?

basically it is because since medicine is privatized thus medical companies and some docs just want to make money and not get sued, there are less docs that come in to the field and just want to help people, or at least that dont get that goal boxed in due to the "we need to make a good profit" or "if you mess up you will get sued". by trying to control their patients they put them selves in a position where the patients dont want to fight back and since the patients dont fight then the medical industry can do what they want.

that being said there are a lot of good people in the industry and some good companies but we can all agree that there is to much BS and corruption

-matt

Roda Rising Star
Wow that whole situation is awful. I consider myself lucky that the Dr and GI in my case fax everything the same day between each other, and I don't believe they are on the same network either. My biggest problem is that neither one is listenening to my concerns at this point. I went for my 6 month check last week, told my GI what was going on, pretty much he ignored what I was saying and asked why I was cheating on my diet. I told him I was not that I was aware of, he said that they would run the antibody check just to be sure. Well, I get the phone call Friday, my antibodies show I have been compliant with my diet, and that I am not anemic. So back to square 1.

I would highly suggest you call both offices and speak to the office managers this morning. If you have no results by tomorrow I would go in person. Both sides may be dropping the ball on this but finger pointing.

Why do people in the medical profession feel the need to put power plays on us?

No the GI doctor's office is good. It is just the endocrinologist office that dropped the ball. I hope they don't do this to others.

Roda Rising Star

Well, finally today I got this whole mess straightened out. I called on Monday and asked to speak to the office manager. I ended up leaving three voice mails and she never called me back. So I called again on Tuesday and asked to speak to someone in administration. I actually spoke to a human being and she referred me to the office nursing supervisor since the office manager was "out". I explained the whole situation to her and she told me that she would check into it and call me back. I told her I would be out for about 1 1/2 hrs so she could reach me after that. Well I get back and she had returned my phone call only 40 min after I spoke with her and did not even leave a message. I called and had to leave a message and did not hear from her the rest of the day. Around 4:30 pm I called and left her another message. She finaly did return my phone call. She said she personally took care of this and had an extensive talk with the staff regarding policies and that the doctor was sincerely sorry. She really could not tell me what exactly happened. Earlier I had asked her to get copies of my medical record ready so I could take it to another provider. She told me she "sincerely" hoped I would reconsider, but they were availaible for me to pick up. Funny thing is I got a call from the GI docs office this afternoon for them to tell me about my labs that they ordered. The nurse proceded to tell me that she also had made several calls about this and complained also. But the real butt kicker is that even though they had my release with the GI docs fax # they still screwed up and who knows where they faxed it on Tues. The nurse had to call today and give them the fax # again. I just gotta laugh at the stupidity.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.