Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Oats Gluten Free?


lizjay

Recommended Posts

lizjay Newbie

Does anyone out there know if oats are gluten free? My Grandmother made sone cookies with oats and she told me they were gluten free. I don't want to eat them until I know. I don't need to get sick again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I strongly oppose oats....they are highly contaminated with wheat. Oats themselves are ok but they are highly contaminated so stay away from them is my opinion.

lizjay Newbie

Thank you for your quick response. I could not find a definite answer any where.

Guest gliX

Hmm, are you sure? I eat oatmeal all the time and was told by a nutritionist that they are fine to eat after a year of being gluten-free. Also, are grits gluten-free?

tarnalberry Community Regular

There are two issues with oats:

1) Oats are pretty much universally contaminated. Unless you grow, harvest, and process them in your own back yard, they come in contact with wheat either in the field, in the processing, or in the shipping. Independent testing has backed up the "contaminated" claim.

2) Some, but by no means all, or even the majority, of celiacs DO react to avenin, the protein in oats. It's chemical structure is similar to that of gliandin, the wheat protein, but different enough that most celiacs' immune systems don't see it as a problem. Some celiacs do react to it, however, and if they do, it can cause damage. At the moment, aside from repeated biopsies, I don't think there is a way to determine if any given celiac will react to oats without a dietary challenge. If you don't always have strong reactions, however, this could be a very misleading way to determine if you can have oats. If you're one of the celiacs who does not react to oats, however, I refer back to item 1).

(Which is unfortunate, because oats are fab for baking!)

gf4life Enthusiast

Grits are gluten-free. They are made from corn (hominy actually, which is a large kernel corn).

Make sure they are plain though, or that the flavored grits don't have gluten in any of the added ingredients.

We don't eat oats either. Not worth the risk of contamination. We have tried McCann's Oats (which are generally recognised as being the least contaminated), but no one liked them...

God bless,

Mariann

KaitiUSA Enthusiast

gliX-yes oats are not gluten free...very much contaminated...I stay away from them completely. There was a post on here a while back that had a report about oats tested and the numbers of the wheat in them were shocking!

Nutritionists don't know everything about celiac...one told me I could have spelt!!! You have to do checking yourself because when it comes to gluten anything is possible.

avenin which is the protein in oats that tarnelberry mentioned can cause reactions and damage. It's just better to stay away from them in my opinion.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gliX

i've been having oatmeal for a year now, and have never even had the slightest reaction.

after this information i will try and stay away from them.

Guest gliX

also, i only have a mild case of celiac, thats probably why the nutritionist told me that

and...when I first found out I had celiac my numbers were high, which is for common for someone with celiac...then i went gluten-free for a year and the numbers were normal. and then i had oats for a few months and my blood numbers remained normal, so the doctor told me oats was fine.

Guest Viola

I don't think there are 'degrees' in Celiac disease, you either have it or you don't. All gluten contamination causes damage.

In Canada oats are considered not to be gluten free at any time. It's printed right on our restaurant cards.

And your right Kaiti, I've had both nutritionists and Alternative doctors tell me I could eat spelt. :o

KaitiUSA Enthusiast

gliX-There are no degrees of celiac...you have it or you don't..

If you have celiac whether or not you react to it doesn't mean a thing...some celiacs don't get symptoms.

It still does damage to your intestines.

Viola-yeah some doctors and nutririonists are not up on things like they should.New celiacs who are told this by them may learn the hard way because of their advice. It's crazy <_<

Guest gliX

Well I was told I had a mild case, and my cousin has a severe case. When i was not gluten-free, I had absolutely no reaction to wheat in any way, but for my cousin, he was short and his bones were growing in irregularly.

angel-jd1 Community Regular

There are varied levels of damage, NOT varied levels of celiac disease. It is a yes/no type thing. Sorry.

Many people have no symptoms at all and are still doing damage to their bodies.

-Jessica :rolleyes:

Deby Apprentice

A doctor at the Children's Hospital in Denver (where I live) did an extensive study on oat contamination. His results were that oats are too contaminated for the gluten-free diet. The Dr is Ed Hoffenberg. He is nationally recognized as an expert in the study of celiac disease. We have him speak at our support meetings about once a year. His oat results are on the web somewhere. I'm not savvy enough to find them, but if someone else can dig them up, that would be great. Ed emailed the findings to me but I don't have them anymore.

I'm looking to get a grower to grow oats for my bakery and a miller to mill them just for me. That would be awesome as I really do enjoy oats and still succumb and eat them occasionally. Sometimes I do get a gut ache that I recognize as a celiac disease contamination issue. I grew up eating oatmeal for breakfast and as a young adult had it every morning. I miss it but bottom line is, it's not safe.

KaitiUSA Enthusiast

gliX-symptoms do not matter with celiac...someone without symptoms may have just as much damage to their intestines as someone with severe symptoms. As said in a post by Jessica...there are levels of damage but not celiac. Some people catch celiac before alot of damage is done which is good but still does not change the fact they are celiac and need to avoid gluten just as much as someone with severe damage....

I'm sorry and I hope this info has helped out :D

celiac3270 Collaborator

From Jessica's support group (USA Silly Yaks):

A registered dietician took 12 containers of rolled or steel cut

oats that represented 4 different lots of three brand names. The

brands being McCanns, Country Choice, and Quaker.

The ELISA R5 test was used on the 12 samples. All of the brands

showed contamination!!!

McCann's

1st- below level of detection (so under 3ppm)

2st- below 20ppm

3nd- 23ppm

4rd- 725ppm

Country Choice

1st- below 20ppm

2nd-4th ranged from 120-210ppm

Quaker

All four tested from 338-1807ppm

Under 20ppm is the codex standard used to determine Gluten

free.........but all of the brands showed some crazy levels of

contamination and were inconsistent. I wouldn't trust them!!

So...no oats for me!

Guest gliX

well they definitely are contaminated but might they differ on who eats them? After a recent exam, my blood numbers were normal and intestines had changed to normal. they said everything looked good.

Carriefaith Enthusiast

For me it's not worth the risk, It's obvious most oats are contaminated. I don't trust them so I don't eat them!

gabrielle Contributor

I'm sorry... But what in the world is SPELT???? :huh:

Guest Viola

SPELT is a German wheat. It is lower in gluten, but not gluten free.

celiac3270 Collaborator

Ooh...very interesting information from Anne Lee about oats. I'll put it in a post under the coping section which I'll do later on the Celiac conference.

KaitiUSA Enthusiast
I'm sorry... But what in the world is SPELT???? :huh:

Some people falsy label it as gluten free but it is not...it is a form of wheat

plantime Contributor
I'm looking to get a grower to grow oats for my bakery and a miller to mill them just for me. That would be awesome as I really do enjoy oats

Monica, when you do, please let me know. I would love to buy some and have my morning bowl of oatmeal agin!

celiac3270 Collaborator

I think you'll be able to have McCanns--I'll explain in that other post when I get around to typing up 32 pgs...lol...maybe I'll just summarize it in 1/4 of that.

gabrielle Contributor

Thank you for letting me know! It makes sense to me that it is a German wheat- where i live it is a very German town and I see it everywhere. I am glad I didn't have any... I really wasnt sure what kind of grain it was. Thanks so much :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Test interpretations

    2. - MicG posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Test interpretations

    3. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      how long does it take for the genetic blood test for celiac to come back?

    4. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    5. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,653
    • Most Online (within 30 mins)
      7,748

    daweesa
    Newest Member
    daweesa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.