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Teen Neurological Problems?

nativeli

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nativeli Newbie
nativeli
Posted

Hello. I'm a 16 year old teen guy and I began having GI and neurological problems two years ago. Initially, I had severe myoclonus, an abnormal EEG and then was put on Depakote to control the jerking after my neuro diagnosed me with JME. A month later, I began having GI symptoms, including frequent diarrhea that was intermittently bloody and also anemia. I didn't relate the two until I told my pediatrician about the Gi symptoms and she suggested celiac. I have an appointment with a gastroenterologist next week and I was wondering if anyone else has a similar story?

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ravenwoodglass Mentor
ravenwoodglass
Posted

Yes. I have also been on depakote for seizures. I would ask your doctor to test you for celiac. Do NOT go gluten free or gluten light until after testing. Make sure you get actual copies of the lab results as at times doctors will call a low positive a negative. If testing results are negative you should still give the diet a good try after the tests are done. Unfortunately the testing is not as for sure as many doctors think it is. The diet is the truest test IMHO. Also hopefully they are doing weekly or at least monthly blood draws to check your levels and to make sure your body is not being adversely affected by the drug.

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