Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Down To Just Meat, Fruit And Veggies


angieInCA

Recommended Posts

angieInCA Apprentice

I just have to whine for a bit so please bear with me. On top of having celiac disease I also have a problem with reactive hypoglycemia.

2 weeks ago I saw my Nutritionist and G.I. to discuss some on going sensitivities I have been having. I have figured out that I can't handle Soy or Corn and I'm already off dairy and now I'm suspecting rice. So it was decided that along with the soy, corn and dairy I should remove all grains, any processed sugar (honey is allowed) and peas from my diet.. Basically to remove all processed foods except for peanutbutter (thankfully I didn't have to give up my peanutbutter) Thank God I love veggies and fruit and I know how to cook.

The new Diet really isn't the problem, up untill Monday I had been doing really well and wasn't craving a thing. Tuesday I got glutened accidently by some stray crumbs where someone in my house used my peanutbutter and when I had my daily apple and peanutbutter I didn't notice the crumbs untill too late. <_<

Ever since I have been on the worst rollercoaster of agony and cravings. All of my muscles are cramping up (my arms hurt so bad I can barely lift them), I have had a non-stop migraine, brain fog, and the big D. On top of that I am having massive cravings for all the forbidden foods. It's driving me crazy. I could kill for a Double Quarter Pounder with Cheese and I HATE McDonalds! On the way home from the store today (had to get a fresh jar of peanutbutter) I had to force myself not to stop at the local donut shop for one or half a dozen of their fabulous Bavarian cream filled chocolate dipped donuts. I have never been a person focused on food but now that I have to think about it every day all day long, because I feel like I have to constantly be thinking about what my next meal will be and monitoting my blood sugar so it's not too low, I now feel like all I do is think about food. I'm becoming so sick and tired of eggs and chicken and tuna. Up until now I've been really positive and have not thought about what food I can't have.

Please excuse the rant. :unsure: I know there are others dealing with much bigger issues than this but today has been a tough day <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MNBeth Explorer

Hi Angie,

I'm so sorry to hear about the awful week you're having. It does get hard to take, doesn't it?

After totally crashing after Easter, I've been digging around for more answers, and suspect that reactive hypoglycemia is something I'm also dealing with. It's maddening how little consensus of opinion there is about how to manage it!

After reading "Hypoglycemia: The Classic Healthcare Handbook" by Saunders & Ross, I'm off all sugar (inc. honey), refined carbohydrates, dried fruits and even root vegetables and the sweeter fruits. I'm still eating grains, but only whole, and in small quantities. I don't know what to think about legumes - opinions are totally polar on those.

I haven't been glutened lately, but it's that time of month for me, so I'm craving carbs and sugar like crazy. And creamy - anything creamy - but I'm having trouble with dairy, too. What I wouldn't give for a bowl of cereal! Sometimes it's just hard to feel satisfied on meat and veggies and a little fruit.

Since going off all that, I've been extremely weak and tired. This is what the authors predicted, but it stinks just the same. Folding the laundry feels like a workout. It's so frustrating that when we feel the worst, we need, where food is concerned, to do the most for ourselves - no prepared foods, no "out" food...

Whine, whine! Sorry; this is YOUR whine! Mainly just wanted to say that I feel your pain. Hang in there!

angieInCA Apprentice
And creamy - anything creamy - but I'm having trouble with dairy, too. What I wouldn't give for a bowl of cereal! Sometimes it's just hard to feel satisfied on meat and veggies and a little fruit.

I dreamed about a bowl of frosted shredded wheat last night :rolleyes:

Thanks for understanding and feeling my Whine ;)

sickchick Community Regular

Hiya Sweetie!

I am so sorry about your cross contamination...

I didn't know anyone else who loves apples & peanut butter like I do :):):)

I just found out last week I am rice intolerant

So far, I can tolerate corn...

good luck & be well B)

xox

Lisa16 Collaborator

Angie, I am in pretty much the same boat you are. Here are a few things that help me.

Can you have almond milk? If so, that might satisfy some of the creamy cravings.

Nuts have saved me-- I love the flavored almonds and cashews. That also helps and they seem to be very important. You can make cashew butter or even try some sunbutter (made from sunflower seeds-- it is surprisingly good.)

Also, take an avocado and mix it with a little honey-- kind of puree it together. I know it sounds gross, but it tastes very much like ice cream in a weird way. You might have to close your eyes. Lots of cultures eat avocados sweet.

Also, if you take a tomatoes a blend it with a bit of green onion and add olive oil and a smootch of apple cider vinegar, you great a great dressng for avocado chunks.

Fresh squeezed orange juice is great too-- it satisfies the sweet cravings.

Dark chocolate does not have to have milk in it-- that might be something to hunt down too.

Also, I bought this cool machine from cuisinart that has a slicer in a spinning drum. You put a potato in there (or a sweet potato-- these are great!) and you have istant potato chips that you can fry in oil. I put some paprika on mine for a little spiciness.

These things make me feel less deprived. And if you can get the soy back, you have even more stuff you can play with.

Hang n there!

Lisa16 Collaborator

Oh! I forgot coconut milk/cream. You can sweeten that with honey and eat it with fruit. Sprnikle some nuts of there or a nice mint leaf.

You can also make a kind of ice milk out of it. Make mix in some fresh orange juice and freeze.

Then there are sorbets. If you boil a little water and honey and add fruit juices (or mint or basil or whatever floats your boat) you can freeze this for an easy sorbet. You wiull have to stir it at some point to keep it from forming crystals.

mattathayde Apprentice

i feel you on the cravings, and they seem to get worse the worse i feel. maybe you could find a place to get a burger at (sans bun) that fits your dietary requirements. i have 5 guys here and they are very good about being attentive to gluten issues so i go there when i want to be lazy and have something tasty

try to find something to keep your mouth busy, sun flower seeds, gum that meets your requirements, a candy that meets your requirements (if possible). just find something to do and that should help some, i know when i am sitting around at home i get bored and want to eat, or just do something with my mouth (i eat a lot of sun flower seeds, picked it up from my dad)

hope you get it all figured out

-matt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      11

      My only proof

    2. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      11

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,362
    • Most Online (within 30 mins)
      7,748

    DPC
    Newest Member
    DPC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.