Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Down To Just Meat, Fruit And Veggies


angieInCA

Recommended Posts

angieInCA Apprentice

I just have to whine for a bit so please bear with me. On top of having celiac disease I also have a problem with reactive hypoglycemia.

2 weeks ago I saw my Nutritionist and G.I. to discuss some on going sensitivities I have been having. I have figured out that I can't handle Soy or Corn and I'm already off dairy and now I'm suspecting rice. So it was decided that along with the soy, corn and dairy I should remove all grains, any processed sugar (honey is allowed) and peas from my diet.. Basically to remove all processed foods except for peanutbutter (thankfully I didn't have to give up my peanutbutter) Thank God I love veggies and fruit and I know how to cook.

The new Diet really isn't the problem, up untill Monday I had been doing really well and wasn't craving a thing. Tuesday I got glutened accidently by some stray crumbs where someone in my house used my peanutbutter and when I had my daily apple and peanutbutter I didn't notice the crumbs untill too late. <_<

Ever since I have been on the worst rollercoaster of agony and cravings. All of my muscles are cramping up (my arms hurt so bad I can barely lift them), I have had a non-stop migraine, brain fog, and the big D. On top of that I am having massive cravings for all the forbidden foods. It's driving me crazy. I could kill for a Double Quarter Pounder with Cheese and I HATE McDonalds! On the way home from the store today (had to get a fresh jar of peanutbutter) I had to force myself not to stop at the local donut shop for one or half a dozen of their fabulous Bavarian cream filled chocolate dipped donuts. I have never been a person focused on food but now that I have to think about it every day all day long, because I feel like I have to constantly be thinking about what my next meal will be and monitoting my blood sugar so it's not too low, I now feel like all I do is think about food. I'm becoming so sick and tired of eggs and chicken and tuna. Up until now I've been really positive and have not thought about what food I can't have.

Please excuse the rant. :unsure: I know there are others dealing with much bigger issues than this but today has been a tough day <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MNBeth Explorer

Hi Angie,

I'm so sorry to hear about the awful week you're having. It does get hard to take, doesn't it?

After totally crashing after Easter, I've been digging around for more answers, and suspect that reactive hypoglycemia is something I'm also dealing with. It's maddening how little consensus of opinion there is about how to manage it!

After reading "Hypoglycemia: The Classic Healthcare Handbook" by Saunders & Ross, I'm off all sugar (inc. honey), refined carbohydrates, dried fruits and even root vegetables and the sweeter fruits. I'm still eating grains, but only whole, and in small quantities. I don't know what to think about legumes - opinions are totally polar on those.

I haven't been glutened lately, but it's that time of month for me, so I'm craving carbs and sugar like crazy. And creamy - anything creamy - but I'm having trouble with dairy, too. What I wouldn't give for a bowl of cereal! Sometimes it's just hard to feel satisfied on meat and veggies and a little fruit.

Since going off all that, I've been extremely weak and tired. This is what the authors predicted, but it stinks just the same. Folding the laundry feels like a workout. It's so frustrating that when we feel the worst, we need, where food is concerned, to do the most for ourselves - no prepared foods, no "out" food...

Whine, whine! Sorry; this is YOUR whine! Mainly just wanted to say that I feel your pain. Hang in there!

angieInCA Apprentice
And creamy - anything creamy - but I'm having trouble with dairy, too. What I wouldn't give for a bowl of cereal! Sometimes it's just hard to feel satisfied on meat and veggies and a little fruit.

I dreamed about a bowl of frosted shredded wheat last night :rolleyes:

Thanks for understanding and feeling my Whine ;)

sickchick Community Regular

Hiya Sweetie!

I am so sorry about your cross contamination...

I didn't know anyone else who loves apples & peanut butter like I do :):):)

I just found out last week I am rice intolerant

So far, I can tolerate corn...

good luck & be well B)

xox

Lisa16 Collaborator

Angie, I am in pretty much the same boat you are. Here are a few things that help me.

Can you have almond milk? If so, that might satisfy some of the creamy cravings.

Nuts have saved me-- I love the flavored almonds and cashews. That also helps and they seem to be very important. You can make cashew butter or even try some sunbutter (made from sunflower seeds-- it is surprisingly good.)

Also, take an avocado and mix it with a little honey-- kind of puree it together. I know it sounds gross, but it tastes very much like ice cream in a weird way. You might have to close your eyes. Lots of cultures eat avocados sweet.

Also, if you take a tomatoes a blend it with a bit of green onion and add olive oil and a smootch of apple cider vinegar, you great a great dressng for avocado chunks.

Fresh squeezed orange juice is great too-- it satisfies the sweet cravings.

Dark chocolate does not have to have milk in it-- that might be something to hunt down too.

Also, I bought this cool machine from cuisinart that has a slicer in a spinning drum. You put a potato in there (or a sweet potato-- these are great!) and you have istant potato chips that you can fry in oil. I put some paprika on mine for a little spiciness.

These things make me feel less deprived. And if you can get the soy back, you have even more stuff you can play with.

Hang n there!

Lisa16 Collaborator

Oh! I forgot coconut milk/cream. You can sweeten that with honey and eat it with fruit. Sprnikle some nuts of there or a nice mint leaf.

You can also make a kind of ice milk out of it. Make mix in some fresh orange juice and freeze.

Then there are sorbets. If you boil a little water and honey and add fruit juices (or mint or basil or whatever floats your boat) you can freeze this for an easy sorbet. You wiull have to stir it at some point to keep it from forming crystals.

mattathayde Apprentice

i feel you on the cravings, and they seem to get worse the worse i feel. maybe you could find a place to get a burger at (sans bun) that fits your dietary requirements. i have 5 guys here and they are very good about being attentive to gluten issues so i go there when i want to be lazy and have something tasty

try to find something to keep your mouth busy, sun flower seeds, gum that meets your requirements, a candy that meets your requirements (if possible). just find something to do and that should help some, i know when i am sitting around at home i get bored and want to eat, or just do something with my mouth (i eat a lot of sun flower seeds, picked it up from my dad)

hope you get it all figured out

-matt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.