Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Problems


wilem008

Recommended Posts

wilem008 Contributor

Hi,

Im just wondering if anyone has or has had any problems with their thyroid?

Im december 2007 I was diagnosed with an 'over-active thyroid' - Hyperthyroidism. I was re-tested in Feb 2008 and everything was pretty much normal...

But Im wondering if I now have Hypothyroidism - Under-active thyroid? I have so many of the symtpoms: Including:

Poor muscle tone

Fatigue

Cold intolerance, increased sensitivity to cold

Depression

Muscle cramps and joint pain

decreased sweating

Dry, itchy skin

Weight gain and water retention

Constipation

Hmm, Im going to make a doctors appoinment to get get this looked at...but my real question is:

For those who have had problems with their thyroid....what symptoms did you have? And more specifically, did you have any physical symptoms in your throat?

The reason I ask is: For the last few years on and off (and constantly for the last week), I have had problems with my throat...

Its not like having a sore throat...I feel pressure at the front of my throat, just above my collar bone (at the base of my neck). It feels like there is a lump stuck in my throat...its hard to describe!

Can anyone relate to this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

You need to get a full thyroid panel done that includes a tsh, t3, t4, free t3, free t4, and blood test for thyroid antibodies. You could have hashimoto's disease. A lot of doctors don't like to treat for thyroid problems if the lab range is upper normal for ie tsh. Endocrinologists have accepted that the level for tsh is more narrow. I don't have the actual numbers. I was diagnosed with subclinical hypothyroid in Dec. 1999 but was not treated until Feb. 2000 after two miscarriages. My symptoms were general malaise, no energy, weight gain, and cold intolerance. I started levothyroxine in Feb. 2000 after my second miscarriage that required a d & c. May of 2000 I became pregnant and went on to deliver my first son in Feb. 2001. During my pregnancy is when I was diagnosed with hashimoto's disease. I do believe the two miscarriages were related to my untreated thyroid problem. The funny thing is that around 1998ish, my friend that I worked with at the time, was an ultrasound tech in the x-ray dept. where we worked. We were having a demo for new ultrasound machines and they needed patients to examine different parts. She did my thyroid and said it looked funny and pulled out a text book and said it looked just like the ultrasound picture of a thyroid with hashimotos. So I lied and went to the doctor and said I was having symptoms and he ordered thyroid tests. I was told they were normal. At that time I was really young in the medical profession so I did not question it. When I was given the diagnosis in 2000 I had to chuckle and proceded to tell the story. I was told by the endocrinologist that it was not uncommon and until then my thyroid had been compensating. Now that I have been gluten free for six months I am absorbing my meds better and I have been, for the first time had to have my level of levothyroxine lowered. I am currently taking 112 mcg of levothyroxine and 5 mcg of cytomel(T 3) twice a day. Recently I have been skipping my second dose of the cytomel until I can get some of my symptoms of overmedication relieved.

nasalady Contributor
Hi,

Im just wondering if anyone has or has had any problems with their thyroid?

Im december 2007 I was diagnosed with an 'over-active thyroid' - Hyperthyroidism. I was re-tested in Feb 2008 and everything was pretty much normal...

But Im wondering if I now have Hypothyroidism - Under-active thyroid? I have so many of the symtpoms: Including:

Poor muscle tone

Fatigue

Cold intolerance, increased sensitivity to cold

Depression

Muscle cramps and joint pain

decreased sweating

Dry, itchy skin

Weight gain and water retention

Constipation

Hmm, Im going to make a doctors appoinment to get get this looked at...but my real question is:

For those who have had problems with their thyroid....what symptoms did you have? And more specifically, did you have any physical symptoms in your throat?

The reason I ask is: For the last few years on and off (and constantly for the last week), I have had problems with my throat...

Its not like having a sore throat...I feel pressure at the front of my throat, just above my collar bone (at the base of my neck). It feels like there is a lump stuck in my throat...its hard to describe!

Can anyone relate to this?

I'm glad you're going to see a doctor! Please do so as soon as possible, these are serious symptoms! The previous poster is correct about the blood tests that should be run and that you may have Hashimoto's.

Here's my story:

As a teenager, then a young adult, I was always the coldest person in the room....EXCEPT for a brief period in my twenties when my heart rate shot up to 120 beats per minute and I felt much warmer than usual. I went to the ER and they said I was hyperthyroid but they looked at me skeptically because I was overweight. The ER docs couldn't figure it out.

Things seemed to normalize after a few weeks, and I went back to feeling cold, tired, having dry skin, being unable to lose weight, etc., etc. But I thought this was normal! :(

I had gone back to college in my late twenties, and I was in the middle of final exams one semester when my thyroid swelled up suddenly, and started pressing on my windpipe. The pressure was so intense it became hard to breathe, and I was frightened so I went to the ER again. I was also scared because I was experiencing extreme fatigue for the first time...I was falling asleep in the middle of the morning, and I was in the middle of finals!!

The ER doctor told me that my TSH was over 90 (normal is less than 5, my normal now is less than 1). TSH is Thyroid Stimulating Hormone, produced by the pituitary gland. I had Hashimoto's thyroiditis, and my thyroid had basically died under the constant attack of my own immune system, but my pituitary gland was trying to "resurrect" it by pouring more and more TSH into my blood stream until the level was 100 times the optimal amount. This had caused the thyroid to swell up.

It is typical in Hashimoto's Syndrome to go through one or more periods of hyperthyroidism, until the thyroid starts to burn out, at that point the final descent into hypothyroidism begins.

My niece has Graves Disease, which is the OTHER thyroid autoimmune disease; she is generally hyperthyroid, but her doctor said that if she doesn't take her medication she could become hypothyroid.

Those of us with celiac disease are much more susceptible to developing other autoimmune diseases and both Hashimoto's and Graves have been linked to celiac disease by medical researchers.

I now take 200 mcg of Unithroid per day. And probably will for the rest of my life.

I hope you do see a doctor...and that you start to feel better very soon!

JoAnn

Gemini Experienced
Hi,

Im just wondering if anyone has or has had any problems with their thyroid?

Im december 2007 I was diagnosed with an 'over-active thyroid' - Hyperthyroidism. I was re-tested in Feb 2008 and everything was pretty much normal...

But Im wondering if I now have Hypothyroidism - Under-active thyroid? I have so many of the symtpoms: Including:

Poor muscle tone

Fatigue

Cold intolerance, increased sensitivity to cold

Depression

Muscle cramps and joint pain

decreased sweating

Dry, itchy skin

Weight gain and water retention

Constipation

Hmm, Im going to make a doctors appoinment to get get this looked at...but my real question is:

For those who have had problems with their thyroid....what symptoms did you have? And more specifically, did you have any physical symptoms in your throat?

The reason I ask is: For the last few years on and off (and constantly for the last week), I have had problems with my throat...

Its not like having a sore throat...I feel pressure at the front of my throat, just above my collar bone (at the base of my neck). It feels like there is a lump stuck in my throat...its hard to describe!

Can anyone relate to this?

I have had Hashi's for about 15 years. The throat symptoms are common for Hashi's and are caused by the enlargement of the gland when it is overworked/under attack by the immune system. A good thyroid doctor will be able to get things under control but it can take awhile.

Do not worry about this as, once the problem has been corrected with meds, the thyroid responds well and may start working better. Once I went gluten-free for about 4 years, I was able to half my Levoxyl dose and may be able to stop it completely. The gluten free diet will help tremendously as it will calm your immune system down and this benefits the thyroid.

The throat "lump" as you call it is still there, though. I have gotten used to it and it is no big deal anymore. Just eat your food in smaller bites to make swallowing easier. Most people with Hashi's or Graves will have an enlarged gland but it doesn't necessarily mean anything serious. Not to worry.....this is all fixable! ;)

Jamie1763 Newbie

I have Hypothyroid as well....and yes sometimes i feel like someone is pushing on the front of my throat....Once treated you will feel much better......symptoms go away rather quickly. Good luck!

mamaw Community Regular

I've been on both sides of the thyroid hyper & hypo. Thyroid storm put me in ICU for Two weeks.... I had RAI two years ago. I didn't do it without kicking & screaming! NOw I have grave's , symptoms of both hyper & hypo & 1 1/2 ago dx'd with dysthyroid orbitopathy.. I just keep adding on auto-immune diseases......not fun at all....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,338
    • Most Online (within 30 mins)
      7,748

    jojocle
    Newest Member
    jojocle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
    • knitty kitty
      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.   P.S.  When trying not to itch the dermatitis herpetiformis, if you press gently on a large area (press with your whole hand) above the itchy spot, the itchiness goes away.  The bigger area of stimulation drowns out that one jangling dermatitis herpetiformis itchy nerve in the brain. For skin care products, I use tallow balm which is absorbed better into the skin than petroleum products or plant products.  Tallow balm (Vintage Traditions is my favorite) helps my Dermatitis Herpetiformis spots look and feel better quickly.  Tallow soap and olive oil soap is beneficial as well.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • Itsabit
×
×
  • Create New...