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Legal Seafoods


debmidge

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debmidge Rising Star

We visited a local Legal Seafoods and ordered gluten-free dinner. The restaurant management couldn't have been more helpful. It was a success. They have gluten free rolls & they are very good, but keep in mind that they are made with soy flour, onion and garlic (if these ingredients are issues for you). The mashed potato had (I thnk) garlic in it; so a baked potato is better choice. And as to baked potato, tell server not to "encrust" it with salt & Pepper if you have to avoid salt & pepper.


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    • trents
      I do not think that foregoing the biopsy when the ttg-iga is 10x normal has yet been adopted as a universal protocol in the U.S. We are not quite as far along on that one as they are in Europe I believe. One option is to trial a gluten free diet and then attempt a "gluten challenge" later on if for some reason it becomes important to distinguish between having celiac disease and NCGS (Non Celiac Gluten Sensitivity). Although, it is often the case that once you have been gluten free for a significant period, returning to gluten brings more violent reactions. Immunoglobulin A, Qn, Serum is not a test for celiac disease for celiac per se but is a test for IGA deficiency. If someone is IGA deficient, IGA test scores will be artificially low and cannot be trusted. Your daughter is not IGA deficient. Yes, the EMA doesn't get a score apart from being just positive or negative. Unless your daughter is a super sensitive celiac, the biggest challenges will not be keeping her safe in the home but rather away from home. Eating out is the biggest challenge to celiacs because you have not much control over how food is handled back in the kitchen. You can order naturally free gluten free foods but it may be cooked in pots and pans and on grills that are also being used for wheated things. This may be helpful, though some suggest measures in this article may be overkill unless you are super sensitive:   
    • lizzie42
      Thank you! That's so encouraging. We are planning to go 100 percent gluten-free at home apart from continuing to feed the other kids gluten till they get their tests. I assume that if you have zero gluten in the kitchen eventually cross contamination ends! It does seem overwhelming at first!    Once they've been gluten free for awhile is it obvious when they get exposed on accident? She's improved a lot in the last few weeks even on gluten since doubling her iron dose. Her ferritin has come up so I assume that's why. But she still has the huge meltdowns some days and it makes sense now. 
    • Jsingh
      Hi, I am mother of a six year old who was organized a year ago when she was fine.    to answer your question about removing gluten from your kitchen- it will be a mammoth task but your entire kitchen has to be free of gluten for her to be safe. Now I’ve learnt from this forum and others that different celiac patients show different level sensitivities to exposure to gluten. My daughter is extremely sensitive. And her sensitivities have only gone up in the months since the diagnosis. if there is anything that I can tell you from my experience for sure is that there is a learning curve no matter how careful are. It’s still a process for us- and to think of it that that after seeing her change as a person within three days of changing her diet I thought the job was done. I was so wrong.    We opted for no biopsy because the new guidelines in the US follows the European guidelines of no biopsy necessary in children if numbers are greater than 10 times the Normal among with other two positive tests. My daughters number were also greater then 100 and they also had EMA done.  My beast wishes to you. I will not lie it’s not hard to take care of a kid with celiac, but once she goes gluten-free and you see your child flourish despite the ups and downs of contamination here and there, it’ll give you enough strength. 
    • lizzie42
      Thank you! This is helpful. I actually read her results wrong. It looks like her tTG test was just higher than the test goes (it only goes up to 100 and hers was higher than that so it just said greater than 100 and 0-3 would have been normal). And the 109 was a different iga test (immunoglobulin A, Qn, Serum). The ema was just a straight positive. I think I'll just move forward with gluten-free for her and have the other kids and us still eat some till our tests next week). How do you completely eliminate gluten from the kitchen? Like the flour shelf, I wiped it all down and got rid of flour but what if one tiny speck of flour got in something, does that derail everything? Is the dishwasher good enough to clean baking bowls, etc? Luckily she loves larabars and most fruits and veggies and rice. Once the kitchen is safe home will be fine. It all makes sense now why she hates waffles and pancakes and always asks for rice for breakfast.
    • Deborah123
      My 5 year old had the blood test in August 2023, which came back negative.   We just had a well-visit & he has lost weight over the last 6 months.  My new Dr thinks its ENT issues causing his irritability & fatigue.  We recently switched pediatricians, and I'm not sure how much to push for a celiac re-test.  Obviously I'm not a Dr, but my gut feeling here is to re-test.  How common are false negatives & how much should I be pushing my Dr to prescribe a re-rest?   
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