Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie~help Could This Celiac?

persistent~Tami

Recommended Posts

persistent~Tami Newbie
persistent~Tami
Posted

My story~ have always suffered from dark circles sometimes they would get darker ,which could never be explained.These I figured I'd be doomed with the rest of my life..At age 34 came down with Shingles.Have had trouble with yeast infection,vaginal and skin.

In Jan/09 my health seemed to deteriorate at a rapid rate ,one thing after another searching for answers I began to search the net.I came across this site after almost 4 months of searching,I grateful as I am ,I'm also sad to see so many people suffering for years without even a clue to what is really wrong..The good news is there is hope!

When symptoms started in Jan/09 ,I tried to seek medical help and was told it was Psychosomatic, Basically

it was in my head... go figure. :angry:

Symptoms started with general fatigue and maliase ,then skin hurt like I had the flu,easliy fatigued,easily bruising,tingling in hands,feet ,face,legs,bloating after eating ,acid reflex,panic attacks,insomnia,irritability,DX with new optical migraines,chest pain,cramping in hands and feet,muscle spasms random areas,throat pain,trouble swallowing at times,buzzing sensation in body,burning tongue sensation,irregular heart beat,fat pads on fingers wrinkling,increased back pain with no new obvious cause,fullness in ears with fluid retention,unexplained rashes felt like razor burn ,even though I had not shaved in these areas,trouble concentrating,memory problems,dizzy,nausea,eye floaters,brain fog,balance trouble,Fluctuating between severe diarrhea and constipation,left abdominal pain that seemed to be mild and then gets worse.

Since all this started ~I had my blood analysed ,it showed Candida,inflammation,paraites,uric acid,and Dx with Leaky Gut Syndrome,positive ANA with speckled pattern,low Vit D,xray of hand showed subchondral bone cyst,I've become lactose intolerance,Migraines from hell!! and all the above.

I have leaky Gut and Candida,but also feel this may all be due to having Celiac disease,I dont know where to start first ..do I kill the Candida ,do I heal the leaky gut or take care of the possible Celiac???????

Is is possible to take care of all at once?

I'm currenty taking~Priobiotic, Argentyn, Daily Health Vit,Imuzyme,OPC,Selenium,Vit E, colostrum,garlic tabs,vitex,Vit C,And NAC..

Previously was taking fish oil ,essential fatty acids ,MSM with chondrotin and was told not to take these by the Dr who did anaylysed my blood and recommended my current meds..

I've noticed a change but seems gradual, is this normal? how soon did you start to feel better? Is there anything you would recommend that Im not taking?

If you can shed some light ,any advice would be appreciated.Trying to get my life back and,its tuff when no one seems to give me a straight answer.

Thank you to all who responds,I appreciate any advice.. Sincerly Tami,dont forget to laugh its better than crying :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Liveenjoylife Apprentice
Liveenjoylife
Posted

Well first off I want to say you do sound like you are putting up with a lot there. I am no doctor but some of the symptoms you explain I had with celiac disease. I didn't even have a doctor diagnose me, I did so my self. I have been on B12 and magnisium and calcium, multivitamin and removed all wheat from my diet and I am all better now. The horrbile symptoms went away. OR you could be dealing with Chrons disease. I would talk to your doctor about both because it could be either or.

persistent~Tami Newbie
persistent~Tami
Posted
  • Author
Well first off I want to say you do sound like you are putting up with a lot there. I am no doctor but some of the symptoms you explain I had with celiac disease. I didn't even have a doctor diagnose me, I did so my self. I have been on B12 and magnisium and calcium, multivitamin and removed all wheat from my diet and I am all better now. The horrbile symptoms went away. OR you could be dealing with Chrons disease. I would talk to your doctor about both because it could be either or.

Thank you so much for your reply,I am trying to get in to my primary Dr at this moment to get tested.I also am doing self treatment and for the last 3 days have been gluten free ,i've noticed my energy level has increased and lymphnoids in armpit are starting to decrease in size.I definalty will check on the chrohns as well. Again thanks for you r support.

leadmeastray88 Contributor
leadmeastray88
Posted
Thank you so much for your reply,I am trying to get in to my primary Dr at this moment to get tested.I also am doing self treatment and for the last 3 days have been gluten free ,i've noticed my energy level has increased and lymphnoids in armpit are starting to decrease in size.I definalty will check on the chrohns as well. Again thanks for you r support.

To get tested you must be eating gluten or you'll risk getting a false negative.

Until testing is done, eat like you normally would. Once all testing is done then you can start. :)

gfb1 Rookie
gfb1
Posted
[snip]

I had my blood analysed ,it showed Candida,inflammation,paraites,uric acid,and Dx with Leaky Gut Syndrome,positive ANA with speckled pattern,low Vit D,xray of hand showed subchondral bone cyst,I've become lactose intolerance,Migraines from hell!! and all the above.

I have leaky Gut and Candida,but also feel this may all be due to having Celiac disease,I dont know where to start first ..do I kill the Candida ,do I heal the leaky gut or take care of the possible Celiac???????

Is is possible to take care of all at once?

I'm currenty taking~Priobiotic, Argentyn, Daily Health Vit,Imuzyme,OPC,Selenium,Vit E, colostrum,garlic tabs,vitex,Vit C,And NAC..

Previously was taking fish oil ,essential fatty acids ,MSM with chondrotin and was told not to take these by the Dr who did anaylysed my blood and recommended my current meds..

[snip]

whew... you've got a ton to deal with... i almost hate to ask... but;

who tested for what?? you've got a small reference to "paraites" . did you mean "parasites"?? if so, which one/ones??

parasites in the blood are very serious. you need to check this out first thing to tackle, BEFORE all the rest.

i also don't intend to be mean-spirited, and want you to find the relief and help that you deserve..... but (yes, another but) the candida diagnosis is probably meaningless and you note that you have a "Dr" who "analyzed my blood and recommended my current meds.."

None of the things you mention are medicines. they are (at best) nutraceuticals -- with little or no effecitve action. is this a medical doctor (MD or DO), or something else?? its really lousy to be sick and feel abandoned by the medical establishment; but, you've got to hang in there and find a professional who can help.

everyone on this list has had some idiot-of-a-doctor say something stupid along the way (there are a couple of threads in the forum). just walk out the door, report them to the chamber of commerce and local/state doctors association -- then FIND SOMEONE NEW. we recently moved to scenic southern NJ and found a gastroenterologist who told us he is treating >150 celiac patients and has been a real blessing. they do exist and, sometimes, in the oddest places!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,509
    • Most Online (within 30 mins)
      7,748
    Mr-Collateral531
    Newest Member
    Mr-Collateral531
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certified gluten free oats

      By trents · Posted

      Yes, I would think that for the 10% of celiacs who can't tolerate oats it would cause villous atrophy just like gluten. No, it would not produce marsh 3b villous atrophy in a couple of days. Nothing will produce measurable villous atrophy that fast. It takes at least two weeks of at least 10g of gluten consumption daily (10g is the amount found in about 4-6 slices of wheat bread) to develop measurable villous atrophy and even then probably not 3b villous atrophy. Are you asking these questions in because you are considering taking on a gluten challenge?
    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Thanks for the awnsers i understand there is maybe system reaction but do they create or cause villious atrophy? And igmf you it them for example a couple of days di they instantly induce marsh 3b?
    • robingfellow
      Can gallbladder issues cause symptoms of celiac disease?

      By robingfellow · Posted

      My gallbladder was at 94% ejection fraction according to my HIDA scan before surgery, when the "normal" range is considered to be between 30-80%, so the surgeon recommended removal because I had been experiencing severe chronic upper quadrant pain and even vomiting despite having a strong stomach. A biopsy after surgery showed intense inflammation suggesting my gallbladder was on the verge of bursting if I hadn't gotten it removed.   The last time my iron and vitamin d levels were checked post-gluten free diet they were in a normal range (I take 60mg iron tablets every other day, and vitamin D capsules daily) I do also take magnesium daily, specifically 400mg magnesium bisglycinate at night to aid my sleep since I try to avoid taking melatonin due to personal preference.   I'll definitely have to keep in mind the point about celiac possibly causing gallbladder problems, I'll probably wait until I can see a proper GI and get their input before I attempt to reintroduce gluten back into my diet that way any reaction I may or may not have can be properly assessed.
    • Mr-Collateral531
      Can gallbladder issues cause symptoms of celiac disease?

      By Mr-Collateral531 · Posted

      I have dealt with gallbladder issues on-and-off for about ten years now. I was diagnosed with biliary dyskinesia in 2016 but chose to keep my gallbladder. Then in July 2022, I was diagnosed with celiac disease. Your surgeon is partially right in that your gallbladder can definitely cause some of those issues. However, the flip side to the coin is celiac can cause issues with your gallbladder. It’s a lesser studied area of disease manifestation, but limited research has shown a correlation between celiac, gallbladder dismotility, and how a gluten-free diet can help increase the gallbladder ejection fraction. Which literally happened in my case. In 2016 my HIDA scan measured my gallbladder ejection fraction as 29%. Then in 2023 after going strict gluten free, my HIDA scan measured it as 100%. It’s not perfect. I get right upper quadrant pain from time to time still. But at least I got that piece of evidence for myself.  I haven’t found any empirical studies on it but I have a theory. The gallbladder stores your bile for digestion. When the food enters your small intestine, the cells of your duodenum secrete cholecystokinin (CCK). CCK is what tells your gallbladder to empty. It’s literally Greek for “bile sac move.” Since the duodenum is a prime location for epithelial cell damage in celiac, it seems very possible that this can alter production of digestive hormones like CCK. As the small intestine begins to heal it produces more CCK and therefore the gallbladder can once again function. If you care to share, why did you need to have yours removed? In regards to the low iron and low vitamin D despite supplementation, that is also common in celiac. I fought vitamin D deficiency for almost a year despite taking 5000 IUs a day. I don’t have anemia, but I know I can use more iron based on my last round of blood work. Best I can say is you need to right cofactors as well. My vitamin D level virtually stayed the same for three different blood tests all 12 weeks apart. One was even after taking the prescription vitamin D of 50,000 IUs once a week. Once again, something not all doctors seem to know, but a nutrient deficiency isn’t necessarily treated by just taking more of that nutrient. Vitamin D metabolism requires many cofactors and processes in the small intestine, liver, and kidneys. And iron metabolism requires many cofactors as well including vitamin D. The biggest thing is to find a supplement regiment that works for you. Do you take specific vitamins or do you take a multivitamin? How much iron is in the supplement you take? What type of iron is it? Do you take magnesium? Another big game changer for me was adding 450mg/day of magnesium supplements for about two months and then dropping to 200mg/day. I would take 250mg of magnesium aspartate at lunch time and then 200mg of magnesium glycinate around 7:00pm. Magnesium is a huge cofactor for both vit D and iron metabolism. And that’s just one. Zinc, copper, vitamin K, boron, vitamin B6, folate, vitamin B12, and vitamin C are all contributing cofactors to vitamin D and iron metabolism. But too much supplementing is also dangerous. I’ve also been through iron overload and zinc toxicity in my post-celiac journey. Once again, doctors just saying to do one thing without considering anything else. I hope this helps and if you have any more questions don’t hesitate to ask.          
    • trents
      Certified gluten free oats

      By trents · Posted

      Your doctor may or may not be well-informed about the issue you raise so I would not agree that he/she would necessarily be the best person to rely on for a good answer. The question actually raises two issues.  The first issue has to do with cross contamination and individual sensitivity as dublin55 alluded to. Oats and wheat are both cereal grains that are typically grown in the same areas, transported in the same trucks, stored in the same silos and processed on the same equipment. So, there is usually significant CC (Cross Contamination). With gluten free oats, there is some effort to separate these processes that would otherwise cause significant CC and "gluten free" oats should meet the FDA requirement of not exceeding 20 ppm of gluten. But this 22 ppm standard is not strict enough for more sensitive celiacs. "Certified gluten free" oats (and other food products are held to a stricter standard, that being not exceeding 10 ppm. But even that is too much gluten for some super sensitive celiacs and will cause a reaction. The second issue with oats has nothing to do with gluten per se but with the protein found in oats called "avenin". Avenin has a structure similar enough to gluten to cause a reaction in some celiacs. This is called "cross reaction" not to be confused with "cross contamination" discussed in the previous paragraph. So, for whatever reason, whether cross contamination or cross reaction, it is estimated that about 10% of celiacs react to oats.
×
×
  • Create New...