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Celiac 4x Higher In Ibs Patients

happygirl

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happygirl Collaborator
happygirl
Posted

For article on Celiac.com: https://www.celiac.com/articles/21807/1/Cel...rers/Page1.html

Abstract of Study: Open Original Shared Link

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flourgirl Apprentice
flourgirl
Posted

Thanks for the posting, Happy Girl! My mom, I'm convinced, is Celiac, but she won't be tested. Lately she is having some serious "bouts" but says it's just IBS. This backs up my thinking, but, like so many others, I can provide information but can't force family to test. I'm always grateful for more info. :)

happygirl Collaborator
happygirl
Posted
  • Author

This is related, as well: https://www.celiac.com/gluten-free/index.ph...c=53907&hl=

Tim-n-VA Contributor
Tim-n-VA
Posted

No. It's just IBS.

I have celiac. My oldest brother has IBS and thyroid issues. Our mother had diabetes. His daughter has an auto-immune condition that resulted in a false diagnosis of Lupus. All diseases of the immune system. He has a pill that he can take. If he doesn't take it and eats a "normal" meal he has all the classic celiac symptoms. He has to give himself B12 injections because he doesn't absorb the pill form.

But it's just IBS.

Lisa16 Collaborator
Lisa16
Posted

I was mis-diagnosed with IBS for 23+ years. Do not be quick to exclude celiac as a possibility.

I hate the diagnosis of IBS because you are repeatedly told "there is nothing you can do about it." Furthermore, once you get stuck with that diagnosis, doctors are not so willing to do the celiac tests.

Maybe that will change now.

The only surprise to me is that the rate is ONLY 4x.

nutralady2001 Newbie
nutralady2001
Posted

Mis diagnosed with IBS for close to 50 years............ first it was called "mucous colitis" but then IBS became "fashionable" so got that label............ all w/o testing of course :rolleyes::angry:

happygirl Collaborator
happygirl
Posted
  • Author

I read this recently, "Some call celiac disease the mockingbird syndrome because it mimics the symptoms of other health conditions like irritable bowel syndrome, fibromyalgia, chronic fatigue syndrome or stress" SOURCE: Medical News Today

Interesting that Celiac is the "mockingbird sydrome" when there are objective tests to diagnose the condition (fully aware that the testing is not perfect, and doesn't catch non-celiac gluten intolerance) - but Celiac is fully defined and testable....instead of the more general, subjective, often 'diagnoses of exclusion' in IBS, fibro, cfs, or stress (when we know that generally, these syndromes are labeled without 'ruling out' other things. I would say, as a whole the Celiac tests (for Celiac, not ncgi) are better than the "tests", as a whole, for IBS, fibro, cfs, or stress.

Shouldn't it be the other way around? Shouldn't the other diseases be mockingbird syndromes of Celiac?

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jerseyangel Proficient
jerseyangel
Posted
Shouldn't it be the other way around? Shouldn't the other diseases be mockingbird syndromes of Celiac?

Excellent point.

Lisa16 Collaborator
Lisa16
Posted

Oh yes! If only doctors would look at it that way instead! How many more people could be saved?

In the immortal words of Momma Goose, "thump.... thump.... thump!" Of course, she was talking about french fries at the time. But this is an even bigger head-banger.

And to make matters even worse, with IBS they tell you, "Oh, don't worry about it. Studies show there are no long term detrimental effects to your overall health."

Cancer anyone?

ravenwoodglass Mentor
ravenwoodglass
Posted
Oh yes! If only doctors would look at it that way instead! How many more people could be saved?

In the immortal words of Momma Goose, "thump.... thump.... thump!" Of course, she was talking about french fries at the time. But this is an even bigger head-banger.

And to make matters even worse, with IBS they tell you, "Oh, don't worry about it. Studies show there are no long term detrimental effects to your overall health."

Cancer anyone?

I was misdiagnosed with IBS for many many painful years. That diagnosis cost me a great deal. My signature really says it all. Folks should also bear in mind that IBS is not IMHO a 'diagnosis' of anything. It is simply a catch all term which means doctors don't want to find out what the real cause is.

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

I am another one who was "diagnosed" with IBS when I was 14. I am 34 now. It took my young son being diagnosed with Celiac for my doctor to take my complaints seriously. Twenty years of suffering....

lonewolf Collaborator
lonewolf
Posted

I was diagnosed with IBS in college. (At first they called it "colitis", then decided it was IBS.) All my symptoms went away on the gluten-free diet. But I don't have Celiac, because I don't have the right genes. I wonder how many other people are like me - severely gluten intolerant, but not Celiac, and misdiagnosed with IBS.

ravenwoodglass Mentor
ravenwoodglass
Posted
I was diagnosed with IBS in college. (At first they called it "colitis", then decided it was IBS.) All my symptoms went away on the gluten-free diet. But I don't have Celiac, because I don't have the right genes. I wonder how many other people are like me - severely gluten intolerant, but not Celiac, and misdiagnosed with IBS.

What genes were you told you have? There are 7 more genes other than DQ2 and DQ8 that are associated with celiac they just are not recognized yet in the US. Gene testing is in it's infancy, so to speak, and should not be used to say you for sure have celiac or not. If it walks like a duck and it quacks like a duck it is not a horse.

lonewolf Collaborator
lonewolf
Posted
What genes were you told you have? There are 7 more genes other than DQ2 and DQ8 that are associated with celiac they just are not recognized yet in the US. Gene testing is in it's infancy, so to speak, and should not be used to say you for sure have celiac or not. If it walks like a duck and it quacks like a duck it is not a horse.

All I got back was a note saying that I was negative for DQ2 and DQ8 and therefore did NOT have Celiac. My son has double DQ3 subtype 7, so I know I have at least one copy of that.

All 4 of my children were tested (two had symptoms) and all came back negative on the whole Celiac panel. The 2 with symptoms went gluten-free anyway and have had great results. When a 14 year old decides she feels better eating gluten-free "no matter how much anyone teases me", you KNOW that there's something to it.

I don't really care that much if I actually have Celiac or not - there's no way I will EVER eat gluten again after the amazing turn around in my health.

ravenwoodglass Mentor
ravenwoodglass
Posted
All I got back was a note saying that I was negative for DQ2 and DQ8 and therefore did NOT have Celiac. My son has double DQ3 subtype 7, so I know I have at least one copy of that.

All 4 of my children were tested (two had symptoms) and all came back negative on the whole Celiac panel. The 2 with symptoms went gluten-free anyway and have had great results. When a 14 year old decides she feels better eating gluten-free "no matter how much anyone teases me", you KNOW that there's something to it.

I don't really care that much if I actually have Celiac or not - there's no way I will EVER eat gluten again after the amazing turn around in my health.

I do so wish US medicine would look outside their own narrow little world. There are other genes that are associated with it and clearly recognized in other countries. Perhaps someday the US will catch up on the research. I am glad your family is doing so much better.

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    • Ann13
      Inhaler problem

      By Ann13 · Posted

      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
    • trents
      Inhaler problem

      By trents · Posted

      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
    • Ann13
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      By Ann13 · Posted

      Re food,  I said the gluten free thing isn't necessarily about gluten itself, but chemical sprays they use on GRAINS which cause allergic throat & vocal cord issues regardless of the inhaler you're using.  Your issue may not be the inhaler but eating gluten free food that still will bother you because they have been sprayed with certain chemicals. Barley & oats cause vocal and throat issues with me as well as gluten free flours. We didn't have gluten issues in the world yrs ago...the food changed somehow or they're using sprays that cause reactions in some people.  Re inhaler: Symbicort is registered as gluten free but companies can change their ingredients at any time so you may want to check with the company who makes it and get an ingredient list.  I don't believe I'm reacting to the inhaler...I believe it's a gluten free pasta I've been eating so I'm taking it out of my diet. I've used the inhaler for over 1 year and no problems up until now so I suspect it's the pasta. 
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      By trents · Posted

      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
    • trents
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      By trents · Posted

      Are you saying you believe there is gluten in the inhaler products? I mean you talk a lot about reacting to foods that are supposed to be gluten free but this thread is about inhalers. 
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