Super Sensitive And Frustrated With Many Questions

[GFinDC]

I have been working on it for the past few months and already have figured out that I am intolerant to corn tortilla chips and gluten-free corn tortillas. I have also eliminated soy (i.e. worchester sauce, gluten-free terriyaki & soy sauce), Soy lecithin (wrong spelling) as it appears to bother me (found in many chocolates). I have not had regular milk products in six months except small amounts of gluten-free cheese and gluten-free plain yogurt during the past month. I drink Pacific Brand Vanilla Rice Milk since I became lactose intolerant from gluten and take a lactose enzyme daily.

Hi Sylviann,

I have a reaction to casein that is very pronounced. I just plain can't get to sleep if I eat dairy. It takes me 3 days to get over it before I start to feel normal again (or what I consider normal, others may disagree). I just wanted to mention it because I consider it a nuero reaction, but it definitely isn't due to gluten. I also have a hard time getting to sleep if I eat meat in the evening. I stick mostly to whole foods anymore, and am mostly grain free at the moment.

I kind of wonder how you are doing your elimination diet? I mean what process you are following? Just curious since your first post mentioned a long list of suspect things. The way I did an elimination diet was to choose one food to eat (plus water) for a couple days, then add another food the next day, then add one more food the next day. If you have a fast occurring reaction you can do this and build up your list of safe foods pretty quickly. Some people have slower reactions and they might need to add new foods every other day or every 3 days, just depends on the person. So my first couple days were apples and water, and then adding one a day from there, like apples, then bananas, then rice, then eggs. The idea being to build up a list of foods you can eat. It is good to add things first that you think are going to be ok, starting with whole foods, not processed foods. After a couple weeks you have a nice list of foods that are ok for your body. Of course when you hit a food that causes a knee jerk reaction it gets eliminated. Following this kind of process, and not adding more than 1 food a day, it ought to be possible to detect anything causing a reaction. Pills, medicines, drinks, sauces, everything is considered a test food that has to be added 1 day at a time. Barring medical needs of course. Medicines do need to be researched though.

I am asking because I have seen web sites that recommend starting with an elimination diet with a list of 25 or so foods, and rotating out a few at a time or some such craziness. Sometimes they say to rotate out a food group. Personally I don't think those type plans are very likely to be successful in a reasonable amount of time. There are just too many variables involved to make sense of it, IMHO. I also try not to add more than 1 food to my diet per day, even now, as that lets me detect problems easier. Not saying I don't make mistakes sometimes though.

[oceangirl]

Sylviaan,

I'm late to this thread and, to quote Patti, JerseyAngel, am a "super-duper sensitive". Yes, yes, yes! to all those companies you mentioned re: CC, particularly Bob's and Amy's, although unless it is a completely dedicated company, with ALL of them! I, too, eat only what I cook from scratch with a very FEW items I know are okay. (Tinkyada, Fage Greek yogurt, Cabot cheddar... stuff like that.) AND, I do have other intolerances, most notably, legumes and many nightshades along with soy. What I experience physically from these is absolutely discernible from a gluten response in me. These things cause great discomfort; gluten causes pain and a lasting reaction with many specific and varied components unlike any other. To put a fine point on it: I am AFRAID of gluten.

I am VERY similar to JerseyAngel in reactions. I recently suffered the longest and most painful glutening in 4 years and was feeling absolutely desperate when Patti alerted me to possible cc in McCormick's spices. Voila! In three days of removing these, I was back to myself. I keep a detailed food log and have done so for 4 years- it is enormously helpful.

Everyone IS different. Trust your instincts- you are most likely right. Cook your own food and eat mostly like a caveman and you may feel better!

Good luck!

lisa

[sylviaann]

Sylviaan,

I'm late to this thread and, to quote Patti, JerseyAngel, am a "super-duper sensitive". Yes, yes, yes! to all those companies you mentioned re: CC, particularly Bob's and Amy's, although unless it is a completely dedicated company, with ALL of them! I, too, eat only what I cook from scratch with a very FEW items I know are okay. (Tinkyada, Fage Greek yogurt, Cabot cheddar... stuff like that.) AND, I do have other intolerances, most notably, legumes and many nightshades along with soy. What I experience physically from these is absolutely discernible from a gluten response in me. These things cause great discomfort; gluten causes pain and a lasting reaction with many specific and varied components unlike any other. To put a fine point on it: I am AFRAID of gluten.

I am VERY similar to JerseyAngel in reactions. I recently suffered the longest and most painful glutening in 4 years and was feeling absolutely desperate when Patti alerted me to possible cc in McCormick's spices. Voila! In three days of removing these, I was back to myself. I keep a detailed food log and have done so for 4 years- it is enormously helpful.

Everyone IS different. Trust your instincts- you are most likely right. Cook your own food and eat mostly like a caveman and you may feel better!

Good luck!

lisa

Thank you Lisa I read your recent post about the spices and I have started looking closely at mine, since a have a closet full of McCormick's. What spices are you using now? Are there any safe spices out there?? I am frustrated about snacks..I love fruit but I crave something more. I stand at the pantry and stare, thinking there is nothing safe I can eat. What do you do??

[weluvgators]

This discussion is SO interesting and helpful for me and my family - they are *just* little kids - KWIM?? And, I feel terribly uncertain as to whether I am welcome to participate in this discussion, as my last post to this thread simply seems to be gone.

Thank you very much, Sylvia, for posting here. You are sharing such valuable information!

So, does anyone have any leads for understanding how peripheral neuropathy affects the motor skill development of a child? This is a huge light bulb moment for me!!

And, once peripheral neuropathy has impacted motor skill development, are there ways to help improve the neurological function again? Which nutrients would be best checked? Or are nutrients not at play in this action?

It is SO hard and overwhelming to research this condition for one person, and I am just terribly overwhelmed trying to understand it for myself and three others that have such limitations in what they can do to help themselves.

Am I simply looking for answers and support in the wrong place?

Sylvia, I would love to connect with you! But the PM function is not working for me now. I am not able to access the PM you did send. I am terribly interested in doing follow up with the doctor you have (does he see children?), and I just can't believe how long I have overlooked one of my kids on this issue . . . but she was not the most obvious reactor . . . and it took me a long time to realize that she is indeed extremely sensitive to gluten exposure.

And, I have considered many other issues, and we have done many elimination diets (and continue to do elimination/addition diets as needed) to determine our dietary restrictions. And, we do avoid more than *just* gluten. And, yes, I have considered lyme, candida, heavy metal toxicity, nutrient levels, etc.

But the reality is: we are not on our death beds. We are not having medical crises. We just have subtle symptoms that the damage is being done. Well, when they are *my* symptoms, they don't seem so "subtle" .

Still wishing healing and health for ALL!

[weluvgators]

I am frustrated about snacks..I love fruit but I crave something more. I stand at the pantry and stare, thinking there is nothing safe I can eat. What do you do??

We are very sensitive, but none of us were in medical crisis when discovering our gluten sensitivity. And while I do have some incredibly sensitive testers, there is always room for discrepancy in our testing methodology (observation of symptoms is our primary method).

Some of our snacks:

baby carrots with poppyseed dressing, we have been using Brianna's

turkey sticks

fried potatoes in a really good oil

sweet potatoes (fries, with ham, pineapple)

broths - I like to drink them and strive to do more turkey - I used a bunch of turkey legs and it turned out awesome

celery sticks with nut/seed butters - I would do a soft cheese too, but we don't do dairy - my daughter likes them with blueberries

turkey and ham sticks

dates

bananas, apples, pears - so many different ways to cut/slice/dice

leftovers! I love eating off of our leftovers as a snack, as do the kids

potato chips - we love the Kettles chips, but we avoid the salt & vinegar

Noodles - plain, with dressing, with fish (tuna and/or salmon), add beans, celery, carrots, onions, fresh herbs

Greens - I am loving turnip greens and collard greens

Pear pieces wrapped with ham slices

Collard/Any greens wrapped around turkey - turkey "taco"

fruit ices - blend fruit, ice, nut butters, honey

Bean dips - we have to avoid garbanzos, but hummus is good! You can also do bean dips other beans - use veggie sticks for dipping

raw freezer fudge - made with nut butters, maple syrup, vanilla, salt

cucumber/tomato/onion salad - with mozzarella if you can do dairy (I can't but I have been craving it this week for some reason )

Larabars and some other bars that we have - organic raw food bar or something

"cookies" made from dried apples, dates, soaked nuts, agave - blended and dehydrated

cantaloupe

seeds and nuts - I prefer to have my nuts soaked. I did find a source at our local grocery that we seem to be doing well with, but sourcing these has been problematic

I apologize if my list is filled with stuff that you cannot eat, but it is what is working well for us at the moment. Now, if I could just get others to be able to help more with the food prep and cleanup, we would be doing even better! It is hard to keep up with all of the feeding I do!

One big difference from what you wrote is that I tend to stand at the refrigerator and kitchen counter . . . but I don't have a pantry!!

Hope it helps!

[oceangirl]

Hi again,

It IS inconvenient but you get used to it and for me there is no price to feeling well and to NOT having a gluten reaction which, besides all the pain and lovely GI symptoms, makes it difficult for me to breathe and can last for DAYS! I eat Planter's nuts for snacks (no CC noticed at all), Larabars, grapes, bananas, watermelon in season, fried or baked sweet potato fries, all nuts and seeds. I actually don't snack a lot. Michael and I cook all our own food- a crockpot is indispensable as we both work- and I never eat out. (Boo hoo... glad I used to quite a bit, lo, many years ago...)

I gave all my McCormick's to my ex-husband who was thrilled (although his partner is gluten-intolerant, too, so they'll need to be careful...) I am only using fresh spices while I try to figure the spice thing out. I use lots of shallots and garlic as they give rich flavor. Oh yeah, and salt. (Real salt or Morton's)

Gotta get to work! Good luck; hang in there and thanks for your post. You are not nuts!

lisa

[ravenwoodglass]

And, once peripheral neuropathy has impacted motor skill development, are there ways to help improve the neurological function again? Which nutrients would be best checked? Or are nutrients not at play in this action?

My neuro involvement started in childhood. It got severe by the time I was diagnosed. I had to use canes or walls to walk without falling and my reflexes had been gone in my legs by the time I was 10. What helped me the most was sublingual B12. It helps the nerves fire correctly and aids in the healing. For me it took about 6 months before the ataxia resolved enough for me to walk unaided and about 2 years to regain reflexs in my legs. A physical therapist may also be able to help in the process with specific excercises. Because of the long amount of time it took for me to be diagnosed (close to 40 years from the development of DH and ataxia and other neuro involvement) my ataxia may never resolve completely but last year I saw a PT for a different matter and he also worked with me on the ataxia issue. I have kept up the excercises and am still seeing improvement as my body gets stronger and more stable. I should note that even the tiniest amount of CC will bring the movement issues to the forefront again, even if it is not enough to give me severe gut problems.

[dilettantesteph]

I have had good luck with buying McCormicks whole spices and grinding them myself.

[sylviaann]

We are very sensitive, but none of us were in medical crisis when discovering our gluten sensitivity. And while I do have some incredibly sensitive testers, there is always room for discrepancy in our testing methodology (observation of symptoms is our primary method).

Some of our snacks:

baby carrots with poppyseed dressing, we have been using Brianna's

turkey sticks

fried potatoes in a really good oil

sweet potatoes (fries, with ham, pineapple)

broths - I like to drink them and strive to do more turkey - I used a bunch of turkey legs and it turned out awesome

celery sticks with nut/seed butters - I would do a soft cheese too, but we don't do dairy - my daughter likes them with blueberries

turkey and ham sticks

dates

bananas, apples, pears - so many different ways to cut/slice/dice

leftovers! I love eating off of our leftovers as a snack, as do the kids

potato chips - we love the Kettles chips, but we avoid the salt & vinegar

Noodles - plain, with dressing, with fish (tuna and/or salmon), add beans, celery, carrots, onions, fresh herbs

Greens - I am loving turnip greens and collard greens

Pear pieces wrapped with ham slices

Collard/Any greens wrapped around turkey - turkey "taco"

fruit ices - blend fruit, ice, nut butters, honey

Bean dips - we have to avoid garbanzos, but hummus is good! You can also do bean dips other beans - use veggie sticks for dipping

raw freezer fudge - made with nut butters, maple syrup, vanilla, salt

cucumber/tomato/onion salad - with mozzarella if you can do dairy (I can't but I have been craving it this week for some reason )

Larabars and some other bars that we have - organic raw food bar or something

"cookies" made from dried apples, dates, soaked nuts, agave - blended and dehydrated

cantaloupe

seeds and nuts - I prefer to have my nuts soaked. I did find a source at our local grocery that we seem to be doing well with, but sourcing these has been problematic

I apologize if my list is filled with stuff that you cannot eat, but it is what is working well for us at the moment. Now, if I could just get others to be able to help more with the food prep and cleanup, we would be doing even better! It is hard to keep up with all of the feeding I do!

One big difference from what you wrote is that I tend to stand at the refrigerator and kitchen counter . . . but I don't have a pantry!!

Hope it helps!

Thank you..I totally understand about the constant planning, prep work, and cleanup! I stand and look at the refrigerator too! I was eating Larabars but now I am apprehensive (I ate a coconut one recently and twitched all night). I can't eat potato chips anymore. I heard that Lays Stax are supposed to be safe but I am scared to attempt eating any because it is a processed product.

I love sweet potatoes (are the Alexia sweet potato fries truly safe?) I need to know nut brands that are produced on dedicated gluten-free production lines (besides planters). I want to be able to leave the house to go on a shopping trip or day outing without starving myself. I noticed that many canned tuna products contain soy. Do you know of any gluten-free brands that are soy free?

Thanks a million,

Sylviaann

[sylviaann]

We are very sensitive, but none of us were in medical crisis when discovering our gluten sensitivity. And while I do have some incredibly sensitive testers, there is always room for discrepancy in our testing methodology (observation of symptoms is our primary method).

Some of our snacks:

baby carrots with poppyseed dressing, we have been using Brianna's

turkey sticks

fried potatoes in a really good oil

sweet potatoes (fries, with ham, pineapple)

broths - I like to drink them and strive to do more turkey - I used a bunch of turkey legs and it turned out awesome

celery sticks with nut/seed butters - I would do a soft cheese too, but we don't do dairy - my daughter likes them with blueberries

turkey and ham sticks

dates

bananas, apples, pears - so many different ways to cut/slice/dice

leftovers! I love eating off of our leftovers as a snack, as do the kids

potato chips - we love the Kettles chips, but we avoid the salt & vinegar

Noodles - plain, with dressing, with fish (tuna and/or salmon), add beans, celery, carrots, onions, fresh herbs

Greens - I am loving turnip greens and collard greens

Pear pieces wrapped with ham slices

Collard/Any greens wrapped around turkey - turkey "taco"

fruit ices - blend fruit, ice, nut butters, honey

Bean dips - we have to avoid garbanzos, but hummus is good! You can also do bean dips other beans - use veggie sticks for dipping

raw freezer fudge - made with nut butters, maple syrup, vanilla, salt

cucumber/tomato/onion salad - with mozzarella if you can do dairy (I can't but I have been craving it this week for some reason )

Larabars and some other bars that we have - organic raw food bar or something

"cookies" made from dried apples, dates, soaked nuts, agave - blended and dehydrated

cantaloupe

seeds and nuts - I prefer to have my nuts soaked. I did find a source at our local grocery that we seem to be doing well with, but sourcing these has been problematic

I apologize if my list is filled with stuff that you cannot eat, but it is what is working well for us at the moment. Now, if I could just get others to be able to help more with the food prep and cleanup, we would be doing even better! It is hard to keep up with all of the feeding I do!

One big difference from what you wrote is that I tend to stand at the refrigerator and kitchen counter . . . but I don't have a pantry!!

Hope it helps!

sylviaann

[weluvgators]

I am simply trying to research to help find health and wellness for my family. My name is Keila, and I have three amazing children: Jane (5.5 yo), Helen (4 yo) and Ross (20 mo). Helen was "easy" in the sense that her issues with gluten were obvious, and she is the reason that we went down the gluten free road. I once lived in a fantasy world of: "well, we will just live gluten free and never have to deal with that celiac thing." I meant, if we never eat an appreciable amount of gluten (she never tolerated ANY gluten) then you can never get a gold standard diagnosis and life should just go on - right? That was SO NAIVE. I wish someone had taken a whack at my head while I lived in this fantasy land to help me recognize and prevent the gluten exposures that we were getting. Those decisions left us with irreparable harm. The fact that I am most probably a celiac in recovery also seems to have compromised the health and nutrition for the kids as well. I feel quite certain that I was additionally passing on my own secretory antibodies for gliadin and ttg (oh and dairy too!) to them through my breast milk, but that kind of information is elusive to say the least!

It is incredibly painful to see the neurological implications of gluten CC as my children grow. My youngest has only had gluten CC exposure. I remember when he was starting to toddle, I would have to be very mindful if we had gluten CC exposure as his balance would degrade. He was like a drunk!! With Helen, the systemic reactions are terrible - especially the depression . . . but I get anxious and depressed too. It is just strange to see the manifestations in those who have not "normalized" gluten exposure.

hee hee! I am so glad you know what I love!! My DH, stubborn man that he is, is a Gator. As smart as those Gators are, he fails to understand that you don't end up with such exquisitely sensitive kids without TWO making it happen! Then again, it took me a very long time of persistent gluten free living for me to recognize the severity of the condition in myself, and I was motivated because of my breastfeeding position.

I cannot thank you enough for having been such a light bulb moment for me!! I have always been so focused on Helen and her more pronounced issues. However, Jane who went gluten free after we recognized a mixed household was not going to cut it for Helen, is the one that had the most gluten and dairy exposure with resulting malabsorption and peripheral neuropathy issues (that have been very hard for me to recognize and understand!!).

What a pleasure to meet you! Thank you SO MUCH!!

[weluvgators]

My neuro involvement started in childhood. It got severe by the time I was diagnosed. I had to use canes or walls to walk without falling and my reflexes had been gone in my legs by the time I was 10. What helped me the most was sublingual B12. It helps the nerves fire correctly and aids in the healing. For me it took about 6 months before the ataxia resolved enough for me to walk unaided and about 2 years to regain reflexs in my legs. A physical therapist may also be able to help in the process with specific excercises. Because of the long amount of time it took for me to be diagnosed (close to 40 years from the development of DH and ataxia and other neuro involvement) my ataxia may never resolve completely but last year I saw a PT for a different matter and he also worked with me on the ataxia issue. I have kept up the excercises and am still seeing improvement as my body gets stronger and more stable. I should note that even the tiniest amount of CC will bring the movement issues to the forefront again, even if it is not enough to give me severe gut problems.

Thank you so much for helping me figure this out. Have you found any websites or such where I can get ideas to incorporate into play for my kids? I do provide the kids with some general supplementation, and we eat an amazing array of good, whole foods. But we seem to all be fighting our way out of nutritional holes. This has really motivated me to do some more follow up for my oldest with the neurological gluten issues. I kept thinking that her gross and fine motor issues were stemming in part from respiratory impairment, as she definitely suffers from rhinitis with gluten CC. She does exhibit symptoms of respiratory impairment . . . and I had been thinking that *that* was the reason she seemed to be SO SLOW peripherally. Damage from peripheral neuropathy makes so much sense given her personal history.

What a big, giant, elusive and complex puzzle this is!

I finally made my way to a celiac experienced endocrinologist who was so very helpful. I feel good about the testing that she did, but we did not check my B12 levels - is that a blood test? I am not sure how/what to check nutritionally for the kids, to be honest. We did hair test analysis on my red siren, Helen, and that was rather depressing, but so very helpful. I hesitate to take interventive steps, and I hold hope that as they develop and mature our exquisite sensitivity will become more easily managed.

Does anyone have opinions / experience with B12 supplementation in kids? I hate to keep adding supplements, but I don't know how else to go about digging ourselves out of this hole!

Thank you SO MUCH!! It is SO nice to have this frank discussion with those that can ascertain trace gluten with observation of known gluten responses.

[weluvgators]

Thank you..I totally understand about the constant planning, prep work, and cleanup! I stand and look at the refrigerator too! I was eating Larabars but now I am apprehensive (I ate a coconut one recently and twitched all night). I can't eat potato chips anymore. I heard that Lays Stax are supposed to be safe but I am scared to attempt eating any because it is a processed product.

I love sweet potatoes (are the Alexia sweet potato fries truly safe?) I need to know nut brands that are produced on dedicated gluten-free production lines (besides planters). I want to be able to leave the house to go on a shopping trip or day outing without starving myself. I noticed that many canned tuna products contain soy. Do you know of any gluten-free brands that are soy free?

Thanks a million,

Sylviaann

The last time I spoke with Kettles (6 weeks ago or so), they informed me that they are now a gluten free facility! They discontinued the one flavor they had that had gluten in it - YEAH!! I did report that we were having trace gluten issues with the Salt & Vinegar flavor, but there was no follow up to that report. We discontinued use of that one and seem to be doing well with the barbecue and lightly salted ones.

I will be looking for the fish options . . . I think there have been past discussions about it around here. Our current supply contains soy, and we really should better source that one too! I am terribly behind on securing better sourcing for foods. It takes so much time to do all of this work!! But it has been SO REWARDING to see my kids get better and better and better! And, I love it that I am feeling better and better too!!

[ravenwoodglass]

Thank you..I totally understand about the constant planning, prep work, and cleanup! I stand and look at the refrigerator too! I was eating Larabars but now I am apprehensive (I ate a coconut one recently and twitched all night). I can't eat potato chips anymore. I heard that Lays Stax are supposed to be safe but I am scared to attempt eating any because it is a processed product.

I love sweet potatoes (are the Alexia sweet potato fries truly safe?) I need to know nut brands that are produced on dedicated gluten-free production lines (besides planters). I want to be able to leave the house to go on a shopping trip or day outing without starving myself. I noticed that many canned tuna products contain soy. Do you know of any gluten-free brands that are soy free?

Thanks a million,

Sylviaann

In referrance to the nuts, If you live in an area that has a Wegmans the nuts that they label gluten free will have the circle G. The presence of the G is important. Sometimes it is on one size of a variety but missing from another size. When I called the company to ask why I was told that certain different sizes are produced in different companies and if the other companies have CC risks the item will not be labeled as gluten free. I do love Wegmans and hope they continue to expand into more states. I have never been CC'd by them since the first the year they started the labeling. Most are also soy free but not all so do check for soy oil on ingredietn label.

[ravenwoodglass]

You are a Lifesaver Krista!! Thank you for all the great info and I appreciate you sharing the safe soda brands (when you have the opportunity

I have become "anal" about cross contamination..I sat in a restaurant last Sunday and would not touch my water glass because I was thinking like you. Next time I will ask for a bottle so I can feel comfortable.

Warmest regards,

Sylviaann

Florida

The brand was Virgils, I picked up some root beer yesterday. They also do not use HFCS wich I avoid not for gltuen issues but because it spikes my blood sugar levels.

[sylviaann]

Keila,

I am so sorry you've had a rough time! You are on the right path for finding answers and treatment options.

If you are able to travel to Atlanta, I really think you would love my doctor. There is a nice Holiday Inn Express close to her office and some rooms have a full kitchen. Whole Foods is less than 5 minutes from the hotel.

My husband is not happy about my eating situation either (probably because it affects him) and I am feeling alone dealing with this. I have always been very independent and now if I want to travel, I have to drag the kitchen sink with me.

My sister-in-law is a physician and is in denial about my condition (my Celiac Specialist wants my brother and his children to be tested). So many people have disappointed me because they did or do not believe me. They look at you as if you are being fanatical about cross contamination.

I believe lack of knowledge is the major obstacle!

Sylviaann

Florida

[ravenwoodglass]

I have had good luck with buying McCormicks whole spices and grinding them myself.

I also have no isses wt\tih the company if I stick with their single ingedient spices but I avoid the varities that are mixes.

[sylviaann]

Thank you so much for helping me figure this out. Have you found any websites or such where I can get ideas to incorporate into play for my kids? I do provide the kids with some general supplementation, and we eat an amazing array of good, whole foods. But we seem to all be fighting our way out of nutritional holes. This has really motivated me to do some more follow up for my oldest with the neurological gluten issues. I kept thinking that her gross and fine motor issues were stemming in part from respiratory impairment, as she definitely suffers from rhinitis with gluten CC. She does exhibit symptoms of respiratory impairment . . . and I had been thinking that *that* was the reason she seemed to be SO SLOW peripherally. Damage from peripheral neuropathy makes so much sense given her personal history.

What a big, giant, elusive and complex puzzle this is!

I finally made my way to a celiac experienced endocrinologist who was so very helpful. I feel good about the testing that she did, but we did not check my B12 levels - is that a blood test? I am not sure how/what to check nutritionally for the kids, to be honest. We did hair test analysis on my red siren, Helen, and that was rather depressing, but so very helpful. I hesitate to take interventive steps, and I hold hope that as they develop and mature our exquisite sensitivity will become more easily managed.

Does anyone have opinions / experience with B12 supplementation in kids? I hate to keep adding supplements, but I don't know how else to go about digging ourselves out of this hole!

Thank you SO MUCH!! It is SO nice to have this frank discussion with those that can ascertain trace gluten with observation of known gluten responses.

I did my own personal research on blood labs and most standard blood labs do not test for "Intracellular levels". In other words, standard blood labs do not measure your true nutrient levels and are not truly accurate. The Intracellular Vitamin Analysis by Spectracell Laboratories is a special patented blood test that reveals a person

[sylviaann]

I also have no isses wt\tih the company if I stick with their single ingedient spices but I avoid the varities that are mixes.

I used their Garlic & Herb seasoning for the first time in over two weeks, this past Monday night! I was twitching all night. At first, I was thinking it might have been the coconut Larabar I ate that evening but now......maybe the seasoning was my problem!! I called Larabar before I purchased the product and they told me it was manufactured in a gluten-free dedicated facility. This left me perplexed as to why my twitching came back!

[ravenwoodglass]

I used their Garlic & Herb seasoning for the first time in over two weeks, this past Monday night! I was twitching all night. At first, I was thinking it might have been the coconut Larabar I ate that evening but now......maybe the seasoning was my problem!! I called Larabar before I purchased the product and they told me it was manufactured in a gluten-free dedicated facility. This left me perplexed as to why my twitching came back!

This will sound a bit simplistic perhaps but when your feeling good try the Larabar again and see if the same thing happens. Then you could again after you feeling well try the seasoning. That might help make it a bit easier to narrow down if I was one of those two items and not something you ate in the 3 days before.