Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long For Diagnosis?


SharonF

Recommended Posts

Guest Viola

I'm not sure how it works in the U.S., but here in Canada you would think that the government would want celiac disease tested for right away. It took over 20 years of doctor appointments, hospital visits etc. before I was diagnosed, and here health care is paid by taxes. Early diagnosis of celiac disease would save a lot of tax money! :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

In the US you keep going to the doctor until your insurance company drops you for excessive usage. However they won't pay for you to see a nutritionist or homeopath who may actually solve the problem. Then you are forced to only go to emergency rooms which are more expensive and are required by law to treat you regardless if you have insurance or not. Since you can't pay the bill the hospitals and insurance companies charge even more to recover their costs. Then you can get Medicaid which about 90% of the tax dollars go to supporting a bureacracy and not to health care. It just seems to me that if everyone focused on proper nutrition that at least half of what we spend on health care could be spent on something else. Maybe we could afford to invade another oil rich Middle Eastern country.

Wait there is someone knocking on my door, oh no it's the goons from ConAgra and Pfizer coming to take me away!

Guest Viola
:lol: Ianm, I hope those goons didn't take you away, we don't want to loose you :rolleyes:
mytummyhurts Contributor

I'm becoming really disappointed in our doctors and their schooling. Insurance companies too. It's all about the profits now. That's probably why they don't do the test on everyone, the insurance companies probably don't want to pay for it, even if it's cheap. But even if it only costs them $20, $20 multiplied by millions is a lot. And they do need to stay in business. :unsure:

Guest ajlauer
I'll never forget when the docoor told me I had it, that he didn't know much about it and that in a year I would know more about it than he did. When I saw him about a month ago he said he had just given a talk on it to other doctors. I sure hope he learned a lot in the meantime!

:o You gotta give that doctor credit. I've never had one admit that they didn't know something!! It's usually an attitude of, "If I didn't learn it in medical school, it doesn't exist, and you're crazy!" I would think that if the doctor was decent enough to admit an ignorance.... he probably did do some research on celiac disease when he got home that night. :)

Guest nini

I had been sick all my life. My mom said that as an infant I had projectile vomiting, couldn't tolerate breast milk, infant formula or even regular milk... She gave me regular milk though because at the time in the small town she was in there weren't any options. I've had chronic ailments all my life, as a teenager I was very skinny except for my bloated belly and my mom would tell me to just "suck in my stomach" :blink::blink:

I'll be 36 in May and I didn't get diagnosed until 2 years ago, after several years of severely declining health during and after my pregnancy with my daughter. I had been going to the same medical group for almost 2 years with what they termed as "bizarre" symptoms and they kept sending me for test after test. Fortunately they finally sent me to a GI that recognized all of the symptoms as celiac and tested me for it right away.

I'm just thankful that we found out and also got my daughter dx, and now she won't have to go through the same health issues that I did.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,109
    • Most Online (within 30 mins)
      7,748

    Kathy001
    Newest Member
    Kathy001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.