Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iugr - Growth Restriction - Advice On Premie


MichelleinMA

Recommended Posts

MichelleinMA Newbie

:unsure:

I had a normal ultrasound and amnio at 16 weeks. At a follow-up at 21 weeks, the baby's situation changed to have low amniotic fluid and slowed growth. 2 weeks later the baby has entered the official IUGR range of being below the 10th percentile of growth and the fluid has decreased to a 3.

The doctor is saying we should begin to consider delivering when the baby reaches about 500 grams (1 pound). Yikes!!!!

Does anyone have experience with IUGR this early in pregnancy? Anyone have advice on what worked for them? Do you have experience with an extremely low birth weight baby in the NICU? Any advice?

Lastly, I have two children almost 8 and 5 1/2. If you have experience, when and what to you share with older children?

Thanks for your advice and prayers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast
:unsure:

I had a normal ultrasound and amnio at 16 weeks. At a follow-up at 21 weeks, the baby's situation changed to have low amniotic fluid and slowed growth. 2 weeks later the baby has entered the official IUGR range of being below the 10th percentile of growth and the fluid has decreased to a 3.

The doctor is saying we should begin to consider delivering when the baby reaches about 500 grams (1 pound). Yikes!!!!

Does anyone have experience with IUGR this early in pregnancy? Anyone have advice on what worked for them? Do you have experience with an extremely low birth weight baby in the NICU? Any advice?

Lastly, I have two children almost 8 and 5 1/2. If you have experience, when and what to you share with older children?

Thanks for your advice and prayers.

No advice but I'll send lots of prayers!

My sister is a NICU RN - she's worked in a Level III NICU (which is where you'll be if you need it) for 25 years since graduating from college/nursing school. Those nurses are so dedicated and so caring. You will find that they give good advice and help support the parents while they care for the babies. My best to you. Hugs and kisses for your little one.

Fiddle-Faddle Community Regular

My first baby was IUGR, but not until the second half of the pregnancy.

I'm assuming you are on bed rest?

If you are not now under the care of a high-risk specialist, I would look into switching ASAP.

Best of luck, and lots of prayers on their way to you!

foodiegurl Collaborator

My daughter had IUGR (and I had severe pre-eclampsia and HELLP), but it was not caught until she was born. She was born at 38 weeks, at only 4 1/2 pounds, but other than being small, she was perfectly healthy! And by 6 mos, she was the same size as all the other 6 mos old babies :)

wannaBAmama Newbie

I responded to a similar post last week on sillyyaks - I'm not sure if you are the same person. I've been involved with reproductive immunologists who have been monitoring my pregnancy and treating my immune system flares (high natural killer cells) with regular IVIG infusions. I read a thread on the public support board which talks about 2nd trimester IUGR and low amniotic fluid sometimes being caused by an immune flare. Here is the info I posted there:

thread about IUGR and low fluid:

Open Original Shared Link

Alan Beer Center (note: Dr Beer passed away but other doctors have taken

it over- and there are other RI's around the world who follow their

treatments)

Open Original Shared Link

good luck to you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,338
    • Most Online (within 30 mins)
      7,748

    jojocle
    Newest Member
    jojocle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
    • knitty kitty
      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.   P.S.  When trying not to itch the dermatitis herpetiformis, if you press gently on a large area (press with your whole hand) above the itchy spot, the itchiness goes away.  The bigger area of stimulation drowns out that one jangling dermatitis herpetiformis itchy nerve in the brain. For skin care products, I use tallow balm which is absorbed better into the skin than petroleum products or plant products.  Tallow balm (Vintage Traditions is my favorite) helps my Dermatitis Herpetiformis spots look and feel better quickly.  Tallow soap and olive oil soap is beneficial as well.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • Itsabit
×
×
  • Create New...