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inmyhead

By inmyhead
in Coping with Celiac Disease

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inmyhead Rookie
inmyhead
Posted

I feel so dumb right now! I have been trying to figure out why I have been feeling so crummy lately (like I have been glutened). I knew that I had not eaten anything unsafe. Ha Ha. As I sat here reading the website drinking this new organic drink I found at Walmart, I had an epiphany. I had read the ingredients in the store, but I got distracted and did not finish. I just reread the label and learned that drink has barley and wheat grass in it. Too bad I had already finished drinking it. At least this time it is not in my head. :lol: Please tell me I am not the only one that has a brain lapse every now and then. It is all very ironic, the drink tasted terrible. If I am going get glutened, couldn

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KaitiUSA Enthusiast
KaitiUSA
Posted

Everyone has their moments when that happens. Don't beat yourself up about it things like that happen sometimes. Happened to me a few times...just learn from them when you can and try to prevent it next time. But sometimes accidents are inevitable. Did you get a bad reaction yet?

inmyhead Rookie
inmyhead
Posted
  • Author

I do not know how many people are like this. I have had some minor stomach issues already and nausea, but for me, the worst is yet to come. Most of my problems are neurological. Usually the day after I eat something I shouldn't have I get really fatigued, depressed, and extremely irritable. I get so upset over such minor things. This usually last three to four days. Plus my face breaks out in very painful cystic acne. I have been drinking this stuff for a couple of days, and have been having lots of problems. I should have guessed, but I do not usually think of drinks as having gluten in them. I had been trying to figure out what I had eaten wrong, but the only thing I had eaten differently (aside from the drink) was some Hebrew National hotdogs. I know those are gluten free, but I was really starting to wonder. Live and learn. Thanks for your support. It is really nice to share with people who know what you are going through. :D

skbird Contributor
skbird
Posted

You should see all the shampoo and conditioner I have in my bathroom now! My husband was laughing about it this morning. I have been looking for a gluten/wheat free shampoo and conditioner that don't have any parabens in them. AND to be totally fussy, I want them to be nice to my hair. I have gone through many... still not satisfied but getting there. Anyway, my favorite one I had found didn't seem to say wheat in the ingredients but one day I'm in there reading the flowery prose on the back of the bottle (you know, "You'll feel so radient - like running down flowery slopes to a secret meadow where your shiny hair... blah blah blah") and I see something about wheat. Dumb - I looked at the *ingredients* but not the description. And there is wheat in both. Sigh.

Happens to the best of us (at least I'd like to think that!) :D

Stephanie

Guest Viola
Guest Viola
Posted

I was having many problems one time a couple years ago. Couldn't figure out what it was. Mom and Dad were visiting, but they were pretty good, and I was watching like a hawk. Then one day Mom and I were sitting having Mom's favourite Lemon tea and Dad was leaning on the counter watching a program on TV and reading the tea box during the comercials. And yup ... The "Lemon Tea" had toasted wheat germ in it! I hadn't even thought to read the ingredients of Lemon tea. Who would have thought they would put wheat germ in it! :o:angry: You know that from then on I read everything :lol: I sure felt dumb at the time though :rolleyes:

Guest gfinnebraska
Guest gfinnebraska
Posted

I did the same thing with Malt-O-Meal Coco Roos. Read on here, somewhere, that they were gluten-free. Took it for gospel ~ DIDN'T even think of actually READING the label (hahaha), and, sure enough there it was: Oats!! First ingredient!!!! UGH!!! Needless to say, my daughter is loving my mistake!! I used them for dessert... she loves them for breakfast! :(

Guest ajlauer
Guest ajlauer
Posted
If I am going get glutened, couldn
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KaitiUSA Enthusiast
KaitiUSA
Posted
To take it to the next level... if you have already glutened yourself, and are already sick, can you have that piece of cake? Or would you get sicker? I'm not gluten-free yet, so it would be a good thing to know!

You would be more sick then you were.That's really not a good idea you get more sick and more damage. Let's put it this way....If you have a car and get into an accident and it gets some damage... does that mean go around and act careless and keep trying to give it more damage?

celiac3270 Collaborator
celiac3270
Posted

Sicker? Probably, but perhaps not. But definitely more damaged in the intestines, regardless of whether you feel worse as a result.

luvs2eat Collaborator
luvs2eat
Posted

I did the same thing a few weeks ago. We made this awesome taco meat and it didn't occur to me to read the many ingredients cause my son-in-law was cooking and he's got the skin form of celiac (hives and only mild intestinal symptoms). I woke up in the middle of the night positive there were WOLVERINES trying to claw their way out of my intestines!! I didn't know whether to sit or turn around, if you know what I mean. I sat... and sat... and sat... and sure enough... both the adobe sauce and the mole in the taco meat contained "toasted wheat bread."

I accused him of trying to poison me as he thinks I "cursed" him to get celiac disease... he found out about his about a year after I did... and as celiac disease didn't appear to be as common as I believe it will come to be... he accused me of cursing him. Hahaha

Guest ajlauer
Guest ajlauer
Posted

Kaiti and celiac3270: Thanks for the replies! Excellent analogy too!

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    • trents
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By trents · Posted

      @Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found in wheat, barley and rye. These other cereal grain proteins have their own names (avenin, secalinin, zein, etc). Unfortunately, confusion has been created in popular and pseudo scientific literature by the informal use of the term "gluten" when talking about the proteins found in these other cereal grains such that you sometimes read about "corn gluten", "oat gluten", "rice gluten", etc. But these are actually misnomers, with "gluten" having been added on as an informal appendage to the actual protein names. Having said that, the protein structures of these other cereal grains is close enough to gluten that, for some people, they can cause a celiac type reaction. But this is not true for most celiacs and those who fall into the NCGS category. Apparently, it is true for you. This whole idea that cereal grains are bad for all of us has been popularized by books such as Dangerous Grains for years but it is not a widely accepted idea in the scientific community.
    • Bebygirl01
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Bebygirl01 · Posted

      On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those on a 'traditional' gluten free diet , who are also still sick and struggling, are you also reacting to these other types of gluten as listed below? NOTE:  The new movement if you want to call it that, is now called 'grain free' and that is the true definition of gluten free. I no longer suffer with ataxia, confusion, anxiety, depression, OCD, Insomnia, ADD, acid reflux, dermatitis herpetiformis, migraines, headaches, and weight issues all due to going 'grain free'. I hope to reach as many of you out there that are still struggling and unaware of what might be setting you off such as my most recent glutening was from a vegan supplement that contained 'magnesium sterate' and 'glucose syrup' both of which are from Zien (zane) gluten at 55%. I was covered in sores that were bleeding, I was seeing squigly lines when I was trying to drive, had acid reflux, insomnia, and nightmares all from the gluten in Corn. Here are the other types of glutens that Celiacs and Gluten Intolerant people also react to: Wheat -Alpha Gliadin Gluten- 69% Rye - Secalinin gluten-30-50% Oats-Avenin gluten -16% Barley-Hordein Gluten -46-52% Millet-Panicin Gluten-40% Corn-Zien Gluten -55% Rice-Orzenin Gluten-5% Sorghum-Kafirin gluten-52% and Teff-Penniseiten Gluten 11%.
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation.
    • knitty kitty
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      By knitty kitty · Posted

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    • knitty kitty
      Increasing symptoms after going gluten free

      By knitty kitty · Posted

      @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products.   We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life.  Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency.  Thiamine is the B vitamin with the shortest storage time, and so  thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches.   Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy.  B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease.  Talk to your doctor and nutritionist about supplementing.
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