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Hi From A New Gluten Free (possibly Celiac) Gal!

syren4444

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syren4444 Rookie
syren4444
Posted

Hi all,

So glad to have found these boards, I'm sure it will be a huge help to me in the coming time as I learn more about keeping to a celiac diet.

My story as abbreviated as I can make it:

'04 Weird persistant rash that took forever to go away, head to toe.

'05 -stopped eating wheat for weight control reasons (on super strict limited diet), still ate oats, barley and other guten sources

'06-'08 - developed mild symptoms of Ulcerative Colitis. spent about two years never getting a straight diagnosis because my symptoms didn't match up to any standards, did colonoscopy '06, was put on every drug imaginable, none worked.

'08- I hear about Celiac and wonder if that is my issue, see a new Gastro (recommended by celiac association), and he thinks i have IBS and puts me on a two week dose of a drug to kill bug possibly causing my issues. He does celiac blood test and warns me it will come back negative no matter what since I've been sans gluten for 3+ years. He says he needs to do it to authorize the further celiac testing.

12/08 - still severe, gassy stomach cramps and issues, so make drastic diet overhaul, eating more variety, healthy fats, nuts etc, but also more gluten (ezekiel bread, oats). Stop BCP's. The new diet or possibly the IBS drug works, no more blood symptoms, less stomach issues, celiac test negative as expected, but we don't test further due to assuming celiac isn't an issue.

5/09 Diagnosed with PCOS, no menstrual cycles, weight gain, bloating, tired, etc. My new amazing GYN doc thinks there is a chance I'm celiac and causing some things she sees in my blood reports.

5/09 - Did LABCORP gene test. Positive for DQ2. Find our my Aunt might have been diagnosed Celiac years ago.

Over the years I

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mamaw Community Regular
mamaw
Posted

Hello & welcome

Bone Loss & blaoting, gassy, all can be from celiac or gluten intolerance... not all genes have been ID as yet .

Remember that products should state no gluten. Being wheat free does not make a product gluten free. ALways look for gluten-free!!!!!!

Some never experience anything when they get gluten, others react differently. Our bodies are very unique so what bothers one may not be a bother to another...

Labcorp did my celiac blood panel & my DNA testing....

lizajane Rookie
lizajane
Posted

you may be surprised at how many symptoms you DO have that you just didn't realize were related to gluten. i have been gluten free for 2.5 months. i didn't ever realize that i had more gas than normal people until i stopped eating gluten and then was glutened by accident. i also started getting a weird version of heartburn when i get glutened- terrible pressure and feeling like i need to burp. (that sounds so gross to me! ha!) it kept me up for TWO hours in the middle of the night one night after trusting someone who said a meal was gluten free. my fatigue was devastating for 4 years and was immediately improved upon going gluten free. but again, being glutened by accident makes me sleepy and loopy and kinda stupid!

and yes, from what you said, i think you really are gluten intolerant if not celiac.

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