Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone React To Gluten Free Oats?


Crayons574

Recommended Posts

Crayons574 Contributor

Hello~

I was wondering how you all react to eating gluten free oats. I know that some people have no problem with them, while others cannot tolerate them--despite them being gluten free. Anyone know why that is? How do you react to gluten free oats? They make me very bloated and naceous...but not the same reaction as if I eat gluten or soy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

You'll find that a lot of us can't tolerate them. For me it's just like being glutened.

tarnalberry Community Regular

The reason why is because the oat protein - avenin - is molecularly very similar to gliadin - the wheat protein. Some people's systems do not differentiate between the two, and react to oats.

Cynbd Contributor

I definitely react to oats. I have been gluten-free for 2 1/2 years, and I very recently bought some certified gluten-free Oats for the first time since going gluten-free, and I reacted immediately to them. Those oats moved through my system like a freight train :huh: Yikes! But I recovered quickly. I recall having the same reaction at times when I used to eat them pre-gluten free.

FMcGee Explorer

How long are people supposed to wait before trying oats, after going gluten-free? I miss them a lot and really want to try them again, but I'm worried. It's only been three weeks for me, and my symptoms haven't all cleared up yet. My boyfriend bought me a (very expensive) box of gluten-free oats but my gut (hee) says to wait a bit longer. Am I being paranoid?

tarnalberry Community Regular
How long are people supposed to wait before trying oats, after going gluten-free? I miss them a lot and really want to try them again, but I'm worried. It's only been three weeks for me, and my symptoms haven't all cleared up yet. My boyfriend bought me a (very expensive) box of gluten-free oats but my gut (hee) says to wait a bit longer. Am I being paranoid?

I would wait about six months, myself. Maybe four if you feel totally great in four months. But you want to give your intestines time not only to clear out any existing gluten reaction, but repair the gut as well. (The gluten molecule just triggers the immune system to attack itself - the immune system reaction is somewhat self-sustaining, and can continue for up to two weeks without the presence of gluten. So, you need to make sure that all of that is done with in your system, AND you've had a fair amount of time healing any existing damage.)

FMcGee Explorer
I would wait about six months, myself. Maybe four if you feel totally great in four months. But you want to give your intestines time not only to clear out any existing gluten reaction, but repair the gut as well. (The gluten molecule just triggers the immune system to attack itself - the immune system reaction is somewhat self-sustaining, and can continue for up to two weeks without the presence of gluten. So, you need to make sure that all of that is done with in your system, AND you've had a fair amount of time healing any existing damage.)

Good to know! I didn't know that, about the immune system taking two weeks to stop reacting. Thanks very much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

I bought Bob's Red Mill certified gluten-free oats after being gluten-free for about 6 years. It was the best bowl of oatmeal I ever tasted (w/ a little brown sugar and blueberries!). I had no reaction! But I'll only have them occasionally. Don't wanna jinx myself.

Gemini Experienced
Hello~

I was wondering how you all react to eating gluten free oats. I know that some people have no problem with them, while others cannot tolerate them--despite them being gluten free. Anyone know why that is? How do you react to gluten free oats? They make me very bloated and naceous...but not the same reaction as if I eat gluten or soy.

I tolerate gluten-free oats just fine but I was a big oatmeal and fiber eater before my diagnosis. I think it has far more to do with tolerating fiber. If you ate a more processed diet beforehand, getting much more fiber in your body may be tough. You have to work up to fiber intake. There are those who may be allergic or intolerant of oats also but I think those numbers are small. It sounds like you are having a fiber problem right now so you may want to wait a bit and try again.

Also be sure to drink reasonable amounts of water with fiber intake as that helps with digestion.

FMcGee Explorer
I tolerate gluten-free oats just fine but I was a big oatmeal and fiber eater before my diagnosis. I think it has far more to do with tolerating fiber. If you ate a more processed diet beforehand, getting much more fiber in your body may be tough. You have to work up to fiber intake. There are those who may be allergic or intolerant of oats also but I think those numbers are small. It sounds like you are having a fiber problem right now so you may want to wait a bit and try again.

Also be sure to drink reasonable amounts of water with fiber intake as that helps with digestion.

This is essentially exactly what my dietician just told me! She said it's not the oats themselves that some people react to, it's their extremely high fiber content, and that if you rarely at them before going gluten-free, you shouldn't start until you've worked up to them, which is why it takes so many people some time to tolerate them. It's always interesting to hear different views on things like this.

Gemini Experienced
This is essentially exactly what my dietician just told me! She said it's not the oats themselves that some people react to, it's their extremely high fiber content, and that if you rarely at them before going gluten-free, you shouldn't start until you've worked up to them, which is why it takes so many people some time to tolerate them. It's always interesting to hear different views on things like this.

You mean to tell me that there are people getting paid to give this advice?!?! :P

Oatmeal is a fantastic source of fiber and it keeps you full for hours. I always eat a bowl before hiking so I don't have to lug too much food with me. I just wish the gluten-free version didn't cost so much!

It makes you think twice before making some oatmeal cookies.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Doctors
      9

      Second chance

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    5. - Jmartes71 replied to Jmartes71's topic in Doctors
      9

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,671
    • Most Online (within 30 mins)
      7,748

    brad Mccarroll
    Newest Member
    brad Mccarroll
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.