Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone React To Gluten Free Oats?


Crayons574

Recommended Posts

Crayons574 Contributor

Hello~

I was wondering how you all react to eating gluten free oats. I know that some people have no problem with them, while others cannot tolerate them--despite them being gluten free. Anyone know why that is? How do you react to gluten free oats? They make me very bloated and naceous...but not the same reaction as if I eat gluten or soy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

You'll find that a lot of us can't tolerate them. For me it's just like being glutened.

tarnalberry Community Regular

The reason why is because the oat protein - avenin - is molecularly very similar to gliadin - the wheat protein. Some people's systems do not differentiate between the two, and react to oats.

Cynbd Contributor

I definitely react to oats. I have been gluten-free for 2 1/2 years, and I very recently bought some certified gluten-free Oats for the first time since going gluten-free, and I reacted immediately to them. Those oats moved through my system like a freight train :huh: Yikes! But I recovered quickly. I recall having the same reaction at times when I used to eat them pre-gluten free.

FMcGee Explorer

How long are people supposed to wait before trying oats, after going gluten-free? I miss them a lot and really want to try them again, but I'm worried. It's only been three weeks for me, and my symptoms haven't all cleared up yet. My boyfriend bought me a (very expensive) box of gluten-free oats but my gut (hee) says to wait a bit longer. Am I being paranoid?

tarnalberry Community Regular
How long are people supposed to wait before trying oats, after going gluten-free? I miss them a lot and really want to try them again, but I'm worried. It's only been three weeks for me, and my symptoms haven't all cleared up yet. My boyfriend bought me a (very expensive) box of gluten-free oats but my gut (hee) says to wait a bit longer. Am I being paranoid?

I would wait about six months, myself. Maybe four if you feel totally great in four months. But you want to give your intestines time not only to clear out any existing gluten reaction, but repair the gut as well. (The gluten molecule just triggers the immune system to attack itself - the immune system reaction is somewhat self-sustaining, and can continue for up to two weeks without the presence of gluten. So, you need to make sure that all of that is done with in your system, AND you've had a fair amount of time healing any existing damage.)

FMcGee Explorer
I would wait about six months, myself. Maybe four if you feel totally great in four months. But you want to give your intestines time not only to clear out any existing gluten reaction, but repair the gut as well. (The gluten molecule just triggers the immune system to attack itself - the immune system reaction is somewhat self-sustaining, and can continue for up to two weeks without the presence of gluten. So, you need to make sure that all of that is done with in your system, AND you've had a fair amount of time healing any existing damage.)

Good to know! I didn't know that, about the immune system taking two weeks to stop reacting. Thanks very much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

I bought Bob's Red Mill certified gluten-free oats after being gluten-free for about 6 years. It was the best bowl of oatmeal I ever tasted (w/ a little brown sugar and blueberries!). I had no reaction! But I'll only have them occasionally. Don't wanna jinx myself.

Gemini Experienced
Hello~

I was wondering how you all react to eating gluten free oats. I know that some people have no problem with them, while others cannot tolerate them--despite them being gluten free. Anyone know why that is? How do you react to gluten free oats? They make me very bloated and naceous...but not the same reaction as if I eat gluten or soy.

I tolerate gluten-free oats just fine but I was a big oatmeal and fiber eater before my diagnosis. I think it has far more to do with tolerating fiber. If you ate a more processed diet beforehand, getting much more fiber in your body may be tough. You have to work up to fiber intake. There are those who may be allergic or intolerant of oats also but I think those numbers are small. It sounds like you are having a fiber problem right now so you may want to wait a bit and try again.

Also be sure to drink reasonable amounts of water with fiber intake as that helps with digestion.

FMcGee Explorer
I tolerate gluten-free oats just fine but I was a big oatmeal and fiber eater before my diagnosis. I think it has far more to do with tolerating fiber. If you ate a more processed diet beforehand, getting much more fiber in your body may be tough. You have to work up to fiber intake. There are those who may be allergic or intolerant of oats also but I think those numbers are small. It sounds like you are having a fiber problem right now so you may want to wait a bit and try again.

Also be sure to drink reasonable amounts of water with fiber intake as that helps with digestion.

This is essentially exactly what my dietician just told me! She said it's not the oats themselves that some people react to, it's their extremely high fiber content, and that if you rarely at them before going gluten-free, you shouldn't start until you've worked up to them, which is why it takes so many people some time to tolerate them. It's always interesting to hear different views on things like this.

Gemini Experienced
This is essentially exactly what my dietician just told me! She said it's not the oats themselves that some people react to, it's their extremely high fiber content, and that if you rarely at them before going gluten-free, you shouldn't start until you've worked up to them, which is why it takes so many people some time to tolerate them. It's always interesting to hear different views on things like this.

You mean to tell me that there are people getting paid to give this advice?!?! :P

Oatmeal is a fantastic source of fiber and it keeps you full for hours. I always eat a bowl before hiking so I don't have to lug too much food with me. I just wish the gluten-free version didn't cost so much!

It makes you think twice before making some oatmeal cookies.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,117
    • Most Online (within 30 mins)
      7,748

    rubyterrapin
    Newest Member
    rubyterrapin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.