Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone React To Gluten Free Oats?

Crayons574

Recommended Posts

Crayons574 Contributor
Crayons574
Posted

Hello~

I was wondering how you all react to eating gluten free oats. I know that some people have no problem with them, while others cannot tolerate them--despite them being gluten free. Anyone know why that is? How do you react to gluten free oats? They make me very bloated and naceous...but not the same reaction as if I eat gluten or soy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flourgirl Apprentice
flourgirl
Posted

You'll find that a lot of us can't tolerate them. For me it's just like being glutened.

tarnalberry Community Regular
tarnalberry
Posted

The reason why is because the oat protein - avenin - is molecularly very similar to gliadin - the wheat protein. Some people's systems do not differentiate between the two, and react to oats.

Cynbd Contributor
Cynbd
Posted

I definitely react to oats. I have been gluten-free for 2 1/2 years, and I very recently bought some certified gluten-free Oats for the first time since going gluten-free, and I reacted immediately to them. Those oats moved through my system like a freight train :huh: Yikes! But I recovered quickly. I recall having the same reaction at times when I used to eat them pre-gluten free.

FMcGee Explorer
FMcGee
Posted

How long are people supposed to wait before trying oats, after going gluten-free? I miss them a lot and really want to try them again, but I'm worried. It's only been three weeks for me, and my symptoms haven't all cleared up yet. My boyfriend bought me a (very expensive) box of gluten-free oats but my gut (hee) says to wait a bit longer. Am I being paranoid?

tarnalberry Community Regular
tarnalberry
Posted
How long are people supposed to wait before trying oats, after going gluten-free? I miss them a lot and really want to try them again, but I'm worried. It's only been three weeks for me, and my symptoms haven't all cleared up yet. My boyfriend bought me a (very expensive) box of gluten-free oats but my gut (hee) says to wait a bit longer. Am I being paranoid?

I would wait about six months, myself. Maybe four if you feel totally great in four months. But you want to give your intestines time not only to clear out any existing gluten reaction, but repair the gut as well. (The gluten molecule just triggers the immune system to attack itself - the immune system reaction is somewhat self-sustaining, and can continue for up to two weeks without the presence of gluten. So, you need to make sure that all of that is done with in your system, AND you've had a fair amount of time healing any existing damage.)

FMcGee Explorer
FMcGee
Posted
I would wait about six months, myself. Maybe four if you feel totally great in four months. But you want to give your intestines time not only to clear out any existing gluten reaction, but repair the gut as well. (The gluten molecule just triggers the immune system to attack itself - the immune system reaction is somewhat self-sustaining, and can continue for up to two weeks without the presence of gluten. So, you need to make sure that all of that is done with in your system, AND you've had a fair amount of time healing any existing damage.)

Good to know! I didn't know that, about the immune system taking two weeks to stop reacting. Thanks very much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted

I bought Bob's Red Mill certified gluten-free oats after being gluten-free for about 6 years. It was the best bowl of oatmeal I ever tasted (w/ a little brown sugar and blueberries!). I had no reaction! But I'll only have them occasionally. Don't wanna jinx myself.

Gemini Experienced
Gemini
Posted
Hello~

I was wondering how you all react to eating gluten free oats. I know that some people have no problem with them, while others cannot tolerate them--despite them being gluten free. Anyone know why that is? How do you react to gluten free oats? They make me very bloated and naceous...but not the same reaction as if I eat gluten or soy.

I tolerate gluten-free oats just fine but I was a big oatmeal and fiber eater before my diagnosis. I think it has far more to do with tolerating fiber. If you ate a more processed diet beforehand, getting much more fiber in your body may be tough. You have to work up to fiber intake. There are those who may be allergic or intolerant of oats also but I think those numbers are small. It sounds like you are having a fiber problem right now so you may want to wait a bit and try again.

Also be sure to drink reasonable amounts of water with fiber intake as that helps with digestion.

FMcGee Explorer
FMcGee
Posted
I tolerate gluten-free oats just fine but I was a big oatmeal and fiber eater before my diagnosis. I think it has far more to do with tolerating fiber. If you ate a more processed diet beforehand, getting much more fiber in your body may be tough. You have to work up to fiber intake. There are those who may be allergic or intolerant of oats also but I think those numbers are small. It sounds like you are having a fiber problem right now so you may want to wait a bit and try again.

Also be sure to drink reasonable amounts of water with fiber intake as that helps with digestion.

This is essentially exactly what my dietician just told me! She said it's not the oats themselves that some people react to, it's their extremely high fiber content, and that if you rarely at them before going gluten-free, you shouldn't start until you've worked up to them, which is why it takes so many people some time to tolerate them. It's always interesting to hear different views on things like this.

Gemini Experienced
Gemini
Posted
This is essentially exactly what my dietician just told me! She said it's not the oats themselves that some people react to, it's their extremely high fiber content, and that if you rarely at them before going gluten-free, you shouldn't start until you've worked up to them, which is why it takes so many people some time to tolerate them. It's always interesting to hear different views on things like this.

You mean to tell me that there are people getting paid to give this advice?!?! :P

Oatmeal is a fantastic source of fiber and it keeps you full for hours. I always eat a bowl before hiking so I don't have to lug too much food with me. I just wish the gluten-free version didn't cost so much!

It makes you think twice before making some oatmeal cookies.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast.
    2. Scott Adams
      - Scott Adams replied to Russ H's topic in Publications & Publicity
      1

      Coeliac UK Research Conference 2025

      Thanks for sharing this!
    3. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared....
    4. trents
      - trents replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Blood tests low iGA 4 years later digestive issues

      Keep us posted.
    5. Scott Adams
      0

      Celiac.com Video News: November 2025

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748
    Megannnnn
    Newest Member
    Megannnnn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.