Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Web Resource

shirleyujest

Recommended Posts

shirleyujest Contributor
shirleyujest
Posted

This site has periodically been posted here but just to remind: Open Original Shared Link There aren't a ton of them but there's an Outback not far from me and I want to visit it just to support them for having a gluten-free menu. PS how are they, never been there?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


FMcGee Explorer
FMcGee
Posted

If you go to Outback, be prepared with elastic-band pants and some lipitor. I'm really glad it has a gluten-free menu, but it is definitely not the place to go for healthy eating! My boyfriend tells me he's always thought of it as a treat (not one I can have, though, because I can't digest red meat) rather than a default dinner option.

shirleyujest Contributor
shirleyujest
Posted
  • Author

Well thanks for the warning. :o They do have salmon and grilled chicken but if you don't care for red meat the smell of it can be icky.

FMcGee Explorer
FMcGee
Posted
Well thanks for the warning. :o They do have salmon and grilled chicken but if you don't care for red meat the smell of it can be icky.

I also have the unfortunate disadvantage of despising salmon, and being unable to eat greasy/cheesy food. I think Outback and I just don't get along, which shouldn't influence anyone else's feelings about it!

shirleyujest Contributor
shirleyujest
Posted
  • Author

Well now I know, if I dine there I WON'T run into you. :D

I read your happy news on the other thread. Congratulations! Have you picked out your dress and the location? Weddings are fuuunnn!

FMcGee Explorer
FMcGee
Posted
Well now I know, if I dine there I WON'T run into you. :D

I read your happy news on the other thread. Congratulations! Have you picked out your dress and the location? Weddings are fuuunnn!

Ha! Right - if we ever dine together, we can go to Bonefish! Where I will not order salmon!

Thanks for the congratulations! We're going to get married in my parents' back yard. It's really beautiful - my dad loves gardening and has done a great job with it. I haven't picked a dress, but I probably won't go for the traditional white gown, because I don't like tight things (thanks for that bloating, celiac disease!), look pretty washed out in white, and we're getting married outside in Virginia in July, so I don't want to be sweating the whole time in something that doesn't breathe. We'll see! I did already line up a caterer who's thrilled to do a gluten-free wedding, so, yay! She doesn't do cakes, though, so hopefully some gluten-free cake tasting is in the future. :)

shirleyujest Contributor
shirleyujest
Posted
  • Author
Ha! Right - if we ever dine together, we can go to Bonefish! Where I will not order salmon!

Thanks for the congratulations! We're going to get married in my parents' back yard. It's really beautiful - my dad loves gardening and has done a great job with it. I haven't picked a dress, but I probably won't go for the traditional white gown, because I don't like tight things (thanks for that bloating, celiac disease!), look pretty washed out in white, and we're getting married outside in Virginia in July, so I don't want to be sweating the whole time in something that doesn't breathe. We'll see! I did already line up a caterer who's thrilled to do a gluten-free wedding, so, yay! She doesn't do cakes, though, so hopefully some gluten-free cake tasting is in the future. :)

Oh that sounds beautiful. Not to mention the price is right. :D Keep me posted, okay, it'll be a special time for you planning it, and doing all the cake-tastings. Hey, you may need to do a LOT of research.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


FMcGee Explorer
FMcGee
Posted
Oh that sounds beautiful. Not to mention the price is right. :D Keep me posted, okay, it'll be a special time for you planning it, and doing all the cake-tastings. Hey, you may need to do a LOT of research.

Definitely! Cakes are serious business, so multiple comparisons are only sensible!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,258
    • Most Online (within 30 mins)
      7,748
    Ldimmick
    Newest Member
    Ldimmick
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess I’ll call it lucky my Dr ordered a rescreen of a liver ultrasound from 5 years ago that triggered this or I would likely have tripped into cirrhosis. It’s all pretty jarring.
    • Heather Hill
      Does this definitely suggest Coeliac Disease?

      By Heather Hill · Posted

      Many thanks for your responses, much appreciated.  The tests did include tTg IgA and all the other markers mentioned.  I also had sufficient total IgA so if I'm reading the Mayo clinic thing correctly, I didn't really need the anti-deaminated gliadin marker? So, if I am reading the information correctly do I conclude that as all the other markers including tTg IgA and DGP IgG and tTg IgG and EMA IgA are all negative, then the positive result for the immune response to gliadin, on it's own, is more likely to suggest some other problem in the gut rather than Coeliac disease? Until I have a view from the medics (NHS UK) then I think I will concentrate on trying to lower chronic inflammation and mend leaky gut, using L glutamine and maybe collagen powder. Thank you for your help so far.  I will get back in touch once I have a response, which sadly can take quite a long time.   Kindest Heather Hill 
    • trents
      Test uncertainty

      By trents · Posted

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Test uncertainty

      By trents · Posted

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
×
×
  • Create New...