Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Saw A Gi This Morning. . .

ptkds

By ptkds
in Doctors

Recommended Posts

ptkds Community Regular
ptkds
Posted

I saw a GI this morning because of some rectal bleeding, diarrhea, and stomach pain. I saw him a few years ago shortly before I was diagnosed with Celiac, but I didn't go back after my PCP told my I had celiac. I just didn't see the need.

I was discussing some of the symptoms of my kids, and mentioned how they vomit after they have had gluten. He told me that "vomiting is NOT a symptom of Celiac". I stayed very calm and told him that my kids (especially the littler ones) almost always vomit after they have been glutened, and he said "well, I'm not saying they don't have celiac, but vomiting is just not a symptom of celiac."

It is sad how little these doctors know about Celiac!

But on the other hand, he is running a whole bunch of tests, starting with a follow-through x-ray of my small intestines and a colonoscopy. He said he is looking for intestinal lymphoma. I am really worried about that now. I am really anxious to get the results.

Please pray that it is nothing serious! I looked up this cancer, and it has a very low survival rate.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Praying for you that he does not find what he is looking for. But then, maybe he doesn't know a lot?? :lol: People with celiac don't vomit?? :rolleyes: Extra tests can't hurt in ruling out other diagnoses :P

ravenwoodglass Mentor
ravenwoodglass
Posted

Please let us know how you fare on the test. One word of caution, if they are using a bariun solution for this test make sure it is gluten free. The gluten free form is a thin liquid not thick and will have the consistancey of water.

LDJofDenver Apprentice
LDJofDenver
Posted

Oh please! (throwing up is not a sign!) My poor son was throwing up his entire childhood, and I've spent my adulthood frequently doing the same, especially the older I got. Just blows me away at how little our front line of doctors know about this disease! When is this going to change?

My GI doc ordered a CT scan of abdominal and pelvic areas, looking for the same. Apparently there's a small percentage of celiacs that get this specific type of lymphoma. My CT scan was normal, all was good, but I know how scary it is to just be sent for something like that. It's one thing to read about it (the possibility), but entirely another to be the one sent for a test for it! Hopefully everything will be fine with you, and you'll feel relieved that you had the tests done. Think of how many people are walking around with something unknown inside of them - - at least I now have the benefit of knowing, and that peace of mind.

ptkds Community Regular
ptkds
Posted
  • Author

Ok, I don't know if yall will believe this, but here goes.

Today the GI doctor CALLED ME to APOLOGIZE for telling me that vomiting is not a symptom. He said that after our conversation, he got to thinking and went and did a little research, and he found out that it IS a symptom. He said he wanted to apologize because he likes to tell patients about things that he knows for sure. He also said he didn't want me to lose confidence in him.

I couldn't believe he called me! That just blew my mind! I don't know if a doctor will EVER apologize like that to me agian! I now respect the man even more because this proves that he is willing to admit that he has made a mistake.

ravenwoodglass Mentor
ravenwoodglass
Posted
Ok, I don't know if yall will believe this, but here goes.

Today the GI doctor CALLED ME to APOLOGIZE for telling me that vomiting is not a symptom. He said that after our conversation, he got to thinking and went and did a little research, and he found out that it IS a symptom. He said he wanted to apologize because he likes to tell patients about things that he knows for sure. He also said he didn't want me to lose confidence in him.

I couldn't believe he called me! That just blew my mind! I don't know if a doctor will EVER apologize like that to me agian! I now respect the man even more because this proves that he is willing to admit that he has made a mistake.

I believe you and it sounds like a doctor who is willing to learn. Good for him. My GI did the same when I was finally diagnosed as he didn't even consider doing an endo because my blood work was negative. It is nice when doctors are willing to admit they are human.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,882
    • Most Online (within 30 mins)
      7,748
    tina.walstad
    Newest Member
    tina.walstad
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • gregoryC
      Celebrity Cruise for Gluten Free

      By gregoryC · Posted

      Just finished my second celebrity cruise. My first was on one of their oldest ships, it was awesome! Now we have sailed on the edge class. Wow! Not only do they have so many gluten-free options but the selection is mind blowing! Any given day you will have between 5 to 7 different gluten-free cakes to try. Yes that is right, one day at the coffee shop I had to choose between 5 gluten-free cakes not including the several puddings on display. So they gave me a small piece of each. 2 were great, 2 were just good, and 1 I did not enjoy. But never have I had the tough decision of which cake to eat?  These selections are from their normal options available for all guest. In the main dining room they always surprised me with some awesome desserts.  In my opinion the best pizza was on the Millennium class and best buffet on the Edge class. Although these two ship vary in size they are both consistent and serving high quality food from the main dinning room. The edge class gives you 4 “main” dining rooms (all included). I was unsure how this would work with my gluten-free diet? It worked great! I was able to order or see the next night’s menu for each of the four dinning venues finding that very little to no modifications needed to be made due to their extensive gluten free options.  The Millennium and Edge class ships provide the best gluten-free options from any of the cruise lines I have sailed with. You will find a larger selection and options on the edge class ships, however you will not be disappointed with the smaller Millennium class. Which is still my favorite cruise ship to date.   
    • trents
      9 year old- questionable results

      By trents · Posted

      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
      9 year old- questionable results

      By ABP · Posted

      My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually.  After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9.  Most recently her genetic test for celiac was positive.  After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi.    It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think.    I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary.    Signed Confused and Concerned Mama
    • Scott Adams
      Gluten Free ADHD medications

      By Scott Adams · Posted

      I guess using "GF" instead of "PL" would have been too easy! 😉
    • trents
      Help with blood test result

      By trents · Posted

      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
×
×
  • Create New...