Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

6 Days Of Gluten Free And Things Seem Worse?!

balmerhon

Recommended Posts

balmerhon Rookie
balmerhon
Posted

Thanks to everyone who has responded to my other posts about my son.

He has tested negative for Celiac but in order to try to improve his diarrhea, we decided to try a gluten free diet for a few weeks to see if things got any better.

Right now, I can only say his poop is worse. :( He's eating well and seems his usual happy, energetic self. But man, it's not pretty. Fortunately he only has it 1-3x a day. Nevertheless, I'm concerned I may be doing him more harm than good at this point.

Any thoughts? Does it take a while to work through his system?

From my other posts about him, I'm aware there are things I need to bring up with his doctor, but for now, I just need to hear some other experiences regarding diarrhea and going gluten free.

Thanks so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

If a person is eating well while on a gluten-free diet then they cannot be doing harm to themselves. Now, say this person has a un-known soy allergy and begins eating lots of soy since they are not eating wheat, then in that case they are doing harm.

Your son has not been gluten-free very long. Are you sure he is 100% gluten-free? It took me and my family months before we figured the whole diet thing out.

Good luck!

foodiegurl Collaborator
foodiegurl
Posted

I am by no means an expert, but from my personal experience, I felt worse before I felt better. Well, gosh, i never even felt bad before diagnosis, I was basically symptom-free, then I cut out gluten, those first 2 weeks were awful! Everything hurt my tummy, and my #2 experiences were not pretty either.

From what I read, I am assuming it was because my intestines were not used to absorbing certain things, so when they were finally absorbing things again, it was a shock to my system, and caused immense pain and discomfort for the first 2 weeks, especially with dairy and anything acidic.

I am back to eating dairy just fine (knock on wood), and acidic things, but in moderation.

I hope he feels comfort soon!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,404
    • Most Online (within 30 mins)
      7,748
    Jenih67
    Newest Member
    Jenih67
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Okay thanks Scott. So based on my results will they order more tests to be done? Kind of confused.
    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      Yes, this sounds right. Let us know when you find out your results.
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Hi thanks for your response! This is the only other info that’s on my test results for the IgA. The initial testing performed in the Celiac Disease Reflex Panel is the total IgA. If the total IgA is <10 mg/dL, the reflex tests that will be ordered are the Tissue Transglutaminase IgG Antibody and the Deamidated Gliadin Peptide IgG Antibody. If the total IgA is >=10 mg/dL, the reflex test that will be ordered is the Tissue Transglutaminase IgA Antibody. Does that give some insight?  following up with my Dr early next week… thanks again.  And I didn’t eat more gluten than usual during the last 6-8 weeks on purpose. Just a normal diet prior to testing. I had gluten everyday for 6-8 weeks though I’m sure.
    • Scott Adams
      Celiac, Fructose and Lactose

      By Scott Adams · Posted

      Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses.  I also had temporary issues with chicken eggs, but could eat duck eggs.
    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...