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Does An Allergy To Wheat Gluten And Gliadin Absolutely Mean No Barley Or Oats

quellybelly

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quellybelly Newbie
quellybelly
Posted

Not a diagnosed celiac, but I was recently diagnosed with a high whole wheat, wheat gluten, and wheat gliadin allergy. However, on the same test I showed no allergies to oats and barley (though I did for rye, spelt, etc.). All the research I've done online shows a chemical similarity between barley and wheat. Should I avoid it even if I don't show an allergy to it?

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The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
Not a diagnosed celiac, but I was recently diagnosed with a high whole wheat, wheat gluten, and wheat gliadin allergy. However, on the same test I showed no allergies to oats and barley (though I did for rye, spelt, etc.). All the research I've done online shows a chemical similarity between barley and wheat. Should I avoid it even if I don't show an allergy to it?

I'm just a yoyo on the Internet, and you should really be asking your allergist, but according to the Mayo Clinic Open Original Shared Link the treatment for a wheat allergy is to avoid wheat. However, you need to remember that celiac disease isn't an allergy but an autoimmune disorder. So though on the one hand, having a wheat allergy doesn't necessarily mean that you are celiac, on the other not having a barley allergy doesn't necessarily mean that you aren't celiac. If you want to be safest, you should consult a gastroenterologist and find out whether you are or not (involves a blood test and a biopsy). Or go get a can of beef barley soup and/or a beer and see if you get a reaction. Regardless, good luck to you.

quellybelly Newbie
quellybelly
Posted
  • Author

Thanks for your reply. I guess my biggest hang up is whether a wheat gluten sensitivity necessarily means all gluten.

Guest caz
Guest caz
Posted

Hi-my 7yo son is allergic to barley (anaphylaxis) and rye grain. He is not coeliac. he can eat wheat and oats without problem. A general term 'gluten' is used for all the gluten like protiens that coeliacs react to-with barley the scientific name is hordien and rye has a different name as does oats but they are generically called 'gluten'

It seems you are specifically allergic to the 'wheat' variety from what you have written.

I made the intial mistake of thinking that gluten free would cover me for all things that may contain barley or rye...unfortunately there are many many more protiens in barely and rye than just the 'gluten' type ones.

We have found rye relatively easy to avoid-the barley a bit trickier.

I guess ultimately you dont want to take things from your diet if you dont have to...so perhaps get some clarification from your allergist?

good luck

caz

quellybelly Newbie
quellybelly
Posted
  • Author
Hi-my 7yo son is allergic to barley (anaphylaxis) and rye grain. He is not coeliac. he can eat wheat and oats without problem. A general term 'gluten' is used for all the gluten like protiens that coeliacs react to-with barley the scientific name is hordien and rye has a different name as does oats but they are generically called 'gluten'

It seems you are specifically allergic to the 'wheat' variety from what you have written.

I made the intial mistake of thinking that gluten free would cover me for all things that may contain barley or rye...unfortunately there are many many more protiens in barely and rye than just the 'gluten' type ones.

We have found rye relatively easy to avoid-the barley a bit trickier.

I guess ultimately you dont want to take things from your diet if you dont have to...so perhaps get some clarification from your allergist?

good luck

caz

Wow. I'd never heard of anyone just allergic to barley. I'm glad that you replied, because it's helped me see that there is come differentiating between the two. Part of what's so difficult about this is learning about the different parts of the grains-- as you mentioned, there is more to barley than just the hordein. Anyway, best of luck.

ravenwoodglass Mentor
ravenwoodglass
Posted

Celiac is not an allergy it is an intolerance and an autoimmune disease. If you haven't already you do need to get a celiac panel done and possibly an endoscopic exam. YOU MUST BE eating gluten for these tests to have any chance of coming up positive. Even then there is a risk of a false negative for testing.

quellybelly Newbie
quellybelly
Posted
  • Author

Thanks. I guess I'm using the terms allergy and intolerance interchangeably, but I mean intolerance.

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OptimisticMom42 Apprentice
OptimisticMom42
Posted
Not a diagnosed celiac, but I was recently diagnosed with a high whole wheat, wheat gluten, and wheat gliadin allergy. However, on the same test I showed no allergies to oats and barley (though I did for rye, spelt, etc.). All the research I've done online shows a chemical similarity between barley and wheat. Should I avoid it even if I don't show an allergy to it?

I was diagnosed with wheat and brewers yeast allergy intially. No allergy to barley, rye or oats. After taking the wheat (I don't drink beer so..) out of my diet I started reacting strongly to oatmeal. I got DH on my knees and elbows and horrible C. That's how we found my celiacs.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thanks. I guess I'm using the terms allergy and intolerance interchangeably, but I mean intolerance.

Then you do have to avoid rye and barley for sure if you have been diagnosed with gluten intolerance. There are some gluten free oats around but ones that are normally found are heavily contaminated through processing so stick with certified gluten-free oats when you try them. I would hold off on the oats until you are fully healed then have some 3 times a day for a week. If you still feel fine after that week then they are likely safe for you.

Guest caz
Guest caz
Posted

what sort of testing did you have to diagnose your allergy/intolerance?-It really sounds like you need to go back to the person who did the testing for you to give you some sort of guideance.

Yes- I gather 'barley' anaphylaxis is reasonably uncommon. He doesnt have severe reactions to rye grain (eczema only).

Interestingly-my mum had coeliacs -it hasnt shown up in my children but one of my twins (who has EE) has tested positive for one of the genes-his EE seems much improved since our family has stopped eating barley in february when my son was diagnosed with his allergy to barley-will wait to see what his next gastroscope shows.

cheers caz

twin boys 7yrs

Joel-anaphylaxis to barley and sunflower, allergic rye grain, dustmite rye and other grasses, birch asthma hayfever eczema and now peanuts

Cam-EE-rescope/biopsy in august-mush

family history of coeliacs

quellybelly Newbie
quellybelly
Posted
  • Author

I went to a naturopath and did a blood test that tested for IgE and IgG antibodies against a wide spectrum of food.

gfb1 Rookie
gfb1
Posted
I went to a naturopath and did a blood test that tested for IgE and IgG antibodies against a wide spectrum of food.

were the blood tests done by a standard lab? or were they something like the 'biophysical 250'??

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