Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pirate's Booty

Newbie Celiac

Recommended Posts

Newbie Celiac Newbie
Newbie Celiac
Posted

I had my first post-diagnosis reaction to gluten and I am trying to figure out what it was. The only new thing I have eaten was Pirate's Booty Aged White Cheddar. The ingredients looked gluten free and I found a website that said it was gluten free but my reaction says otherwise.

Has anyone else had a problem with this product?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I haven't had any issues with any of their gluten-free products that I have tried. I have been known to eat a whole bag of the cheese ones in one sitting :ph34r:

One thing you have to consider is that for some of us the reaction to gluten is a delayed reaction. Look at what you have eaten for up to 3 days before in addition to what you are that day. A food diary can be helpful for some in pinpointing what caused the problem.

Another possibility is that you may have an issue with dairy.

Newbie Celiac Newbie
Newbie Celiac
Posted
  • Author

Thanks - I'm thinking about all I ate 2 and 3 days ago that may be the issue. I was at a BBQ but there were other celiacs there and they are ok. Maybe I ate something contaminated.

I'm getting over my lactose intolerance now that I'm gluten free and I have eaten cheese so not sure that is the issue. Good to have it confirmed that others are not having issues so I'm sure it was something else.

GlutenGalAZ Enthusiast
GlutenGalAZ
Posted

Do you notice if you have a problem with corn?

I can't tolerate yellow corn but am okay wtih white corn. I believe majority of popcorn (that you buy in bags) is yellow.

I stopped buying popcorn already made up and just buy the white kernnels and make my own at home on the stove.

Good Luck with everything

ravenwoodglass Mentor
ravenwoodglass
Posted
Thanks - I'm thinking about all I ate 2 and 3 days ago that may be the issue. I was at a BBQ but there were other celiacs there and they are ok. Maybe I ate something contaminated.

I can't say for sure of course but you could be right about the BBQ, you could easily have been CC'd there. If you really liked the Booty you could wait until you are feeling better and then give it another try and see if the same thing happens.

mimommy Contributor
mimommy
Posted

My little girl is pretty sensitive and she has never been cc'd by Pirates Booty, so I trust the brand.

  • 3 years later...
whidbeywoman Newbie
whidbeywoman
Posted

Hi NC, I also ate Pirates Booty and had a very bad reaction (twice). My theory is that they're using cheese from a preshredded source, & that the cheese is tainted by being dusted with a modified food starch that contains gluten. In my experience, I'm not willing to have another episode so if it doesn't say "certified gluten free" it's off limits for me. Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

This is a very old post that you are responding to so any information may be out of date and the posters are no longer frequenting the forum to see your reply.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Dora77
      - Dora77 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Permanent Floating & Undigested Stools for a Year

      For some context: I have type 1 diabetes (T1D) (since 11 years) and celiac disease(since 4 years) For about a year now, I’ve been experiencing permanent floating and undigested stools. I’ve had a pancreas elastase test done. The first result was extremely low at 44, but a second test came back at 236. My doctor said that since one result is normal, it...
    2. TerryinCO
      - TerryinCO posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Status Update...

      The Docs' and NP haven't committed to Celiac determination yet but say go gluten-free diet because... And I have with improved physical results - feeling better; overall functions better, and more energy. Still 10 pounds down in weight but I still have BMI of ~23. It's been just over a month now gluten-free diet. I'm fortunate I get along with diary/milk...
    3. cristiana
      - cristiana replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Increasing symptoms after going gluten free

      I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free. Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention...
    4. Jy11
      - Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Conflicting results

      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac?
    5. Pasballard
      - Pasballard replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Increasing symptoms after going gluten free

      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they are high in carbs. I put on 25 lbs in a short amount of time. Whole Foods are the best way to go but I struggle with this. The cost of gluten free is also a problem. I love black licorice but most have gluten....
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,973
    • Most Online (within 30 mins)
      7,748
    Heather T.
    Newest Member
    Heather T.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Dora77
      Permanent Floating & Undigested Stools for a Year

      By Dora77 · Posted

      For some context: I have type 1 diabetes (T1D) (since 11 years) and celiac disease(since 4 years) For about a year now, I’ve been experiencing permanent floating and undigested stools. I’ve had a pancreas elastase test done. The first result was extremely low at 44, but a second test came back at 236. My doctor said that since one result is normal, it rules out pancreatic insufficiency because, according to them, elastase levels would always stay low if that were the issue. However, could the 236 have been a false result? My doctor also thinks I don’t have pancreatic insufficiency because I’m able to gain weight. I also get hgh injections as my bone age is younger than my real age, this also contributes to weight gain, so I dont know if weight gain can rule out malabsorption. But maybe if I had real malabsorption I wouldnt gain any weight even with hgh? For celiac, I’m on a gluten-free diet, but there might b small cross-contamination from things like pepper labeled as “may contain gluten.” or sausages which dont have gluten ingredient but say may contain. My doctor said that small amounts like this wouldn’t harm me and even mentioned that an occasional small exposure to gluten may not do much damage (which seems questionable since I thought even tiny amounts could be harmful). She also said that when Im older (Im m17) I could try eating small amounts of gluten and do antibody blood tests to see if I can tolerate small amounts or not. For reference, I’m asymptomatic when it comes to celiac, so I have no idea if I’ve been “glutened” or not. My first concerning celiac blood test was semi high IgA, then 3 months later we did a check up and my IgA was high so it was confirmed celiac. Since than I’ve had celiac antibody tests done yearly to see how my diet is going, and they’ve been negative, but I’ve heard those aren’t always reliable. I’ve never had a follow-up endoscopy to confirm healing. I also always kept eating „may contain gluten“ food. (I live in Germany so I dont know if „may contain gluten“ is as risky as in the usa but I suppose both are as risky) These stool issues started around the same time I was doing excessive heavy lifting at the gym. Could stress or lifting have triggered this, or is that less likely since the symptoms persist even after I stopped lifting? Occasionally, I’ll feel very mild stomach discomfort, but it’s rare and not severe. My doctor (also a dietist) said floating, undigested stools could still be “normal,” but that doesn’t seem realistic to me. Could this be impacting my vitamin or protein absorption? I also did a fructose intolerance breath test and had a high baseline of 20 ppm, but it never increased—only decreased over time. I fasted for 12 hours and didn’t eat fructose beforehand, but my stomach didn’t feel completely empty during the test. Could this mean the test was inaccurate? For lactose intolerance, I did the breath test but only fasted 10 hours and had eaten lactose prior because I wasn’t aware of the proper diet restrictions. My results were: 14, 12, 15, 25, 35, 40, 40 ppm—which would be considered positive. But given that I didn’t fast long enough or follow the right diet, could this result be unreliable? Has anyone else dealt with similar symptoms? What ended up being the cause for you? And sorry for the long text!
    • TerryinCO
      Status Update...

      By TerryinCO · Posted

      The Docs' and NP haven't committed to Celiac determination yet but say go gluten-free diet because...  And I have with improved physical results - feeling better; overall functions better, and more energy.  Still 10 pounds down in weight but I still have BMI of ~23.  It's been just over a month now gluten-free diet.  I'm fortunate I get along with diary/milk well and most other foods. I wanted ask about this site's sponsor, gliadin X.  If this is legit, seems like a good product to keep on hand. Though it says it's only a safety for incidental gluten contact - not a substitue for gluten-free diet. What's your input on this? This may be sensitive subject since they're a sponsor. I've used resources here and other sites for information, gluten-free food/product lists. So thank you for all that support. That's it for now - Stay warm...  -2F this morning in Colorado!
    • cristiana
      Increasing symptoms after going gluten free

      By cristiana · Posted

      I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free.   Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention that I also experienced were iron supplements, a temporary dairy intolerance (this is common in coeliacs and should pass when your gut heals properly), and eating oats, as mentioned above.  Other symptoms I got were musculoskeletal pain after diagnosis, but again, once my coeliac blood tests were normal, I had no more pain. I did notice patterns emerging in foods that I reacted to and learned to steer clear of them, then gradually reintroduced them when my gut healed, such as soya, pure oats and dairy products.    You might like to keep a food diary. Cristiana
    • Jy11
      Conflicting results

      By Jy11 · Posted

      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac? 
    • Pasballard
      Increasing symptoms after going gluten free

      By Pasballard · Posted

      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
×
×
  • Create New...