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Any Body Near Indianapolis..i Am Newly Diagnosed...

ME AND ME

By ME AND ME
in Meet Up Room

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ME AND ME Newbie
ME AND ME
Posted

JUST LOOKING FOR SOMEONE TO TALK TOO....FAMILY DOESNT UNDERSTAND AND MOST OF THE SO CALLED FRIENDS DONT CARE...

DONT REALLY WANT TO WHINE ABOUT IT (BOO HOO..LOL) BUT I FEEL KINDA ALONE WITH ALL THIS...

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Darn210 Enthusiast
Darn210
Posted

Hi ME&ME,

Indy has a local support group. Here is there website:

Open Original Shared Link

Take a look around, there is a lot of good information. They also hold beginner's meetings (schedule is on the site). They meet on the north side (Carmel) in the new Clarion building at 116th and Meridian.

In addition, this forum is also a great place for info.

  • 1 month later...
Momoftwo Newbie
Momoftwo
Posted
JUST LOOKING FOR SOMEONE TO TALK TOO....FAMILY DOESNT UNDERSTAND AND MOST OF THE SO CALLED FRIENDS DONT CARE...

DONT REALLY WANT TO WHINE ABOUT IT (BOO HOO..LOL) BUT I FEEL KINDA ALONE WITH ALL THIS...

I was recently diagnosed with celiac disease and I feel the same way. Are you in Indianapolis?

  • 11 months later...
shayre Enthusiast
shayre
Posted

I'm newly diagnosed too. I'm in Indy (Fishers). I just met a neighbor who has it as well. My hubby and I are planning a nice night out tomorrow for our anniversary. We are going downtown to eat and stay at the Conrad, so I've been online trying to research accomodating restaurants. I ran across this board, and I was already a member of celiac.com. Nice to meet you! Always good to stay in touch with local people. Are any of you intolerant of everything? I really don't know how I'll eat anything...or drink anything. I wish now that it was JUST gluten that I had a problem with. Hang in there dude! I wish that I could go back to when I just had to avoid gluten, so if that's all that you have to avoid...PLEASE count your blessings! There are a lot of people on this site who can't eat anything without feeling sick. I know that doesn't help right now, and believe me...I go through my angry phases!!! Just realize that it could always be worse! If you guys want to talk, I will try to stay on here more!

  • 5 months later...
Asianmom Newbie
Asianmom
Posted

Hello! I am from the Carmel area and have had Celiac for 12+ years now! I know how frustrating it can be, especially right now, as I am 7 1/2 weeks pregnant and SO sick anyways, and it actually takes me back to the days before being diagnosed with the constant stomach aches, and nausea. UGH! I hope you are able to find some people to reach out to and have talked to them...if not sounds like there are a few of us around here!!! Share your frustrations and vent away! It is hard when people do not understand! Nice to see you on here!

Financialman Newbie
Financialman
Posted

Hello from Southern Indiana. Hang in there. You have lots of friends on this forum who have gone through the same thing. Just stay in touch and keep posting and you will get through this.

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    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

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    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

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