Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Those That Have A Medical Alert Braclet For Your Kid(s)


g1gg1e

Recommended Posts

g1gg1e Rookie

What have you bought?

My 2yo is going to get one , Ive found a sports band for small kids to wear. Its the smallest I can find.

We feel this will keep strangers from randomly handing her candy MAYBE and make people more aware in the family.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

I recently bought a bracelet for my 16-month-old son when we found out he has a peanut allergy. I saw these when I ordered my own bracelet and I thought it was really smart:

Open Original Shared Link

The velcro is pretty sticky... it hasn't been too hard keeping it on his wrist! And I think it DOES help people recognize that he has a serious medical condition. The one piece of advice I would give you is to skip the permanent marker (to write on the insert). If you want one, just make a tiny strip yourself with the relevant information (name, birthday, your phone number, diagnosis, etc...) and get it laminated at Kinko's. The permanent marker wears off REALLY quickly.

kbdy Apprentice
What have you bought?

My 2yo is going to get one , Ive found a sports band for small kids to wear. Its the smallest I can find.

We feel this will keep strangers from randomly handing her candy MAYBE and make people more aware in the family.

We went to MedicAlert Open Original Shared Link

I really feel a lot better with her having it on all the time. It never comes off & the reps there are very, very helpful. I highly recommend them!

  • 4 weeks later...
g1gg1e Rookie
We went to MedicAlert Open Original Shared Link

I really feel a lot better with her having it on all the time. It never comes off & the reps there are very, very helpful. I highly recommend them!

I'm looking at this one:

Open Original Shared Link

Its small enough for her wrist and looks friendly for a 2 yo.

Any more suggestions or feedback? :)

  • 1 month later...
Lisa79 Enthusiast

Something I had not thought of till I just noticed this post.

Its got me thinking we should get something.

AMQmom Explorer

My 8 and 4 year old girls and I each wear a bracelet from Fiddledeeids. We are really happy with them. I now make my own bands to hook onto the original i.d. tag so we have all different ones for holidays, etc. Makes me feel better. I do have to tell you, though - the youngest and I have each had our own medical emergencies and the bracelets were not even looked at (I had to point them out). They are looked at by friends and teachers, etc...just not medical team. I asked the ambulance crew about it and they just brushed it off saying that they don't usually check out jewelry (can you believe it??) We are a small rural area, maybe that is why...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,204
    • Most Online (within 30 mins)
      7,748

    izzieh
    Newest Member
    izzieh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...