Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross-contact


daviddius

Recommended Posts

daviddius Newbie

Being that companies are not required to report potential cross-contamination on product labels, it is often a possibility that an item tagged as gluten-free could still have small traces of gluten. Items as simple as sugar, butter, or rice can be subject to cross-contamination simply from being processed on the same equipment or inside the same factory as other items that contain gluten.

My question is this:

When in a grocery store, and you see a product labeled gluten-free, do you buy it without more concern, or do you call the company to ask them if there is possibility of cross-contact?

I have only been gluten-free for 16 days, but have seen no results yet. I want to be careful with my consumption habits, but also realistic.

I am interested in any advice that can be provided. It would be most appreciated. Also, if I have missed a related posting that contains pertinent information, please let me know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hannahp57 Contributor

If you are what we call a super sensitive it is a good idea to call the company about cross contamination. I have used gluten free labeled products without any adverse reactions thus far..

you may not see any real improvements for months if you suffer the digestive symptoms. It was a solid three months before i felt okay with eating. six months before i felt BETTER. not good, but better.

for now plain easy to digest foods may be a better idea for you if this is the case and then later you may add packaged foods back in and see what you can and cannot tolerate

LDJofDenver Apprentice

I believe if not produced on dedicated lines that they must say "processed on equipment that also processes wheat (or nuts, or whatever).

Personally, if I see a product that says gluten free and on the back it says it is processed on shared equipment, I pass it by.

Have a lot of healing to do and was over 50 when diagnosed so I'm being careful. I'd say if you're newly diagnosed, the cleaner the diet the better, just to be on the safe side.

I think you'll find that after you've had gluten out of your system for several months you'll be ultra-aware of it when you (accidentally) ingest it. Most of us seem to get quite sensitive to it, once it's been eliminated from our diets.

  • 3 weeks later...
daviddius Newbie

hannahp57 and LDJofDenver, thank you very much for your advice. It has been helpful as I have continued on with a gluten free diet.

psawyer Proficient
I believe if not produced on dedicated lines that they must say "processed on equipment that also processes wheat (or nuts, or whatever).

Nope! Those labels are completely voluntary. Disclosure of shared facilities (buildings) or equipment is not required by law. The labeling laws in Canada and the US only apply to things INTENTIONALLY included in the product.

And, if you ask a company to "guarantee" that a product is gluten-free, expect the answer to be "no." Every time. Every company. The best you can hope for is that they will say that there are no gluten-containing ingredients used in this product, or in the same plant, and that they take every precaution, and blah blah blah. But you won't get a guarantee because that would make them legally liable if one of their suppliers accidentally sent them a contaminated batch of (insert ingredient name).

oceangirl Collaborator

No, I trust nothing that says "gluten free" unless it's a known dedicated company, but then, I'm one of those ridiculously super-sensitives. I also don't use many of those "substitute" foods- I cook most everything from whole foods myself. Sticking with whole foods and keeping a detailed food log is very helpful especially for the first year or so. My food log is 4 years old and it has helped me play detective countless times.

I am right now suffering after a heinous night and I believe the culprit is INHALED gluten from my niece and nephew stuffing their cute little faces with wheat chex in the back seat of my car- I'm not kidding- I can think of nothing else. And four years in, I know a gluten reaction and it is NO FUN!

Good luck and good health,

lisa

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,509
    • Most Online (within 30 mins)
      7,748

    Mr-Collateral531
    Newest Member
    Mr-Collateral531
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @robingfellow and @Mr-Collateral531, I also had to have my gallbladder removed in emergency surgery.  The gallbladder uses lots of thiamine vitamin b1 to function.   The gallbladder cannot secrete bile if it doesn't have sufficient thiamine.  Thiamine provides our muscles and glands energy to move and secrete needed enzymes and hormones.  The thyroid is another gland that requires lots if thiamine to function and secrete hormones.   Our brains, just thinking at a desk job, requires as much thiamine as our muscles do if running a marathon.   Migraines are linked to thiamine deficiency. Thiamine is the first of the eight B vitamins that our body needs. Thiamine can only be stored for three weeks at most.  Our thiamine stores can be depleted in as little as three days.  We need more thiamine when we have a physical injury (like recovering from surgery or fighting the flu), if we're emotionally stressed or traumatized, and if we're physically active.  Thiamine, like the other B vitamins, is water soluble and easily excreted in urine or most in diarrhea.  B vitamins are commonly poorly absorbed in Celiac Disease.  Thiamine and the other B vitamins need to be taken together because they interact with each other to make life sustaining enzymes.  Thiamine deficiency can affect individual organs.  Gallbladder dysfunction is connected to thiamine deficiency, as is hypothyroidism.    Migraines are connected to thiamine deficiency.  Gastrointestinal Beriberi (abdominal pain, vomiting, etc.) is a result of thiamine deficiency.  Tachycardia and fatigue are also symptoms of thiamine deficiency.   Thiamine and magnesium make enzymes that are essential for life.   Thiamine is needed to absorb certain minerals like iron.  Anemia and thiamine deficiency frequently occur together.  Thiamine deficiency can cause poor blood cell production (including low antibody production).   Thiamine interacts with other vitamins and minerals.  Vitamin D is not utilized by the body until turned into an active form by Thiamine. Thiamine is safe and nontoxic even in high doses.  High doses of thiamine correct deficiencies quickly which prevent further health deterioration.  A one a day type multivitamin is not sufficient to correct vitamin and mineral deficiencies that occur in the malabsorption of Celiac Disease.   The Gluten free diet is low in vitamins as they are not required to be enriched with vitamins lost in processing.  Supplementing with thiamine and the B vitamins boosts their absorption.   Helpful Reading: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/ P. S. Try a DNA test to see if you have any known genes for Celiac Disease before doing a gluten challenge.
    • Matt13
      Thanks for the reply ! I am asking because tomorow i have egd and nobody told me not to eat gluten-free oats… and i was scared that it could ruin my biopsy results… 
    • trents
      Yes, I would think that for the 10% of celiacs who can't tolerate oats it would cause villous atrophy just like gluten. No, it would not produce marsh 3b villous atrophy in a couple of days. Nothing will produce measurable villous atrophy that fast. It takes at least two weeks of at least 10g of gluten consumption daily (10g is the amount found in about 4-6 slices of wheat bread) to develop measurable villous atrophy and even then probably not 3b villous atrophy. Are you asking these questions in because you are considering taking on a gluten challenge?
    • Matt13
      Thanks for the awnsers i understand there is maybe system reaction but do they create or cause villious atrophy? And igmf you it them for example a couple of days di they instantly induce marsh 3b?
    • robingfellow
      My gallbladder was at 94% ejection fraction according to my HIDA scan before surgery, when the "normal" range is considered to be between 30-80%, so the surgeon recommended removal because I had been experiencing severe chronic upper quadrant pain and even vomiting despite having a strong stomach. A biopsy after surgery showed intense inflammation suggesting my gallbladder was on the verge of bursting if I hadn't gotten it removed.   The last time my iron and vitamin d levels were checked post-gluten free diet they were in a normal range (I take 60mg iron tablets every other day, and vitamin D capsules daily) I do also take magnesium daily, specifically 400mg magnesium bisglycinate at night to aid my sleep since I try to avoid taking melatonin due to personal preference.   I'll definitely have to keep in mind the point about celiac possibly causing gallbladder problems, I'll probably wait until I can see a proper GI and get their input before I attempt to reintroduce gluten back into my diet that way any reaction I may or may not have can be properly assessed.
×
×
  • Create New...