Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Label Mixup


cmom

Recommended Posts

cmom Contributor

Rather than just lurk as I normally do, thought I would share the experience I had last night. I was in my new favorite health food store and was checking out. I had put a package of Asian Gourmet rice crisps on the counter. The VERY KNOWLEDGEABLE checkout person picked them up and studied them. They were labeled gluten free so I did not read the ingredients (didn't think I'd have to). Then she told me that there was wheat in them from the soy sauce they used. She told me she had even called the company to ask how they could be labeled gluten-free when they contained wheat. They told her that they had gotten permission from someone to use that label even though there was wheat in the product. She was very helpful and said I probably should not get them. She didn't understand it either. How can they legally do this? Is it because the amount is miniscule? No matter how much, they are still not gluten FREE!

On the positive side, I was so impressed that this person had the knowledge and concern to tell me about this and to check the label for me. For anyone who may live in the area, the store was the Sahara Mart in Bloomington, Indiana.

:rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Wow that is ridiculous....why would they even want to have it labeled gluten free when its not? Shows how much they care about the consumers. <_< At least the lady was helpful and saved you from being glutened :D

lotusgem Rookie

Hi, you lurking person, you! I got a dose of gluten during my initial "learning what I can and cannot eat" months. We had in the house at that time some miniature bottles of Tabasco sauce, my most beloved of sauces. I had gotten them for my son to take to school with him in his lunch box. I looked at that teeny, weeny label and it said that it was made with vinegar. My joy was great as I realised that it wouldn't be necessary to give up this old favorite. I put the bottle away, and next time I went to the store, purchased a big bottle for everyone to use. So not long after, we sat down to dinner and the sauce was on the table. I sprinkled some on my food, took a bite with just one drop of sauce and almost immediately started cramping and bloating. I was flabbergasted and picked up the big bottle and looked at the ingredients. DISTILLED vinegar was on the list. What I think happened was that the tiny, little bottles had not enough room to include the word, "distilled", so they left it out and simply put "vinegar."

It doesn't seem like that should be legal, since in the U.S, where this product is made, a "vinegar" designation means that it is from an apple cider source. Anyway, it took me three days in bed before I got over that one. It was a flukey sequence of events, but it's just one more example of our need to always read the labels.

Paula

angel-jd1 Community Regular

Paula-

You might want to check out some of the newer literature and articles on vinegar. The only vinegars that are not safe are basically malt and the apple cider FLAVORED vinegars. I believe those are the only ones. I am sure someone can correct me if I missed any.

-Jessica :rolleyes:

lotusgem Rookie

Thanks, Jessica. I wasn't aware that my information was dated; my kingdom for a link! Actually, it seems to me that I had a conversation with someone at CSA about distilled vinegar. They said that it is supposedly distilled to the point of "safety"...safety being maybe several parts per million. But who's to say if that will cause a reaction. All I know is that I won't eat Tabasco again. The company that produces it will not make any guarantees about it being gluten free, and from my body's response, I can see why.

Paula

Guest Viola

I found a granola type bar labeled gluten free and read the ingredients. The first one was oats. I spoke to the clerk and she went over and crossed the gluten free off the box label and put a sign up. Then she phoned the company. I couldn't wait until she got an answer from the company, but will be dropping back into the store on Wed. I can't remember the name of the bar, but will write it down on Wed. and post back. The problem is with bars ... we adults might think to check the label, but young children would just see the gluten free and buy it and eat it. :(

lotusgem Rookie

Hi Shirley! Please do post again; it should be interesting to hear what the company has to say about that. I thought about another one that I ran across at our local health food store several months ago. In their zeal to capitalize on the demand for gluten-free foods, they put up signs here and there designating supposedly gluten-free foods. One such item was a hot cereal made by Arrowhead Mills, called Rice and Shine. The cover said something about gluten; I didn't srutinize because it was in the gluten free section. When I got it home, I noticed that the box actually said, "Made with gluten-free ingredients" and had an asterisk of microscopic proportions next to this statement. In very small letters elsewhere on the box it explained that the consumer could call them in regards to this claim. I called, and they said that it was made on the same equipment that they used to process gluten containing products and that they cleaned between batches. I was told that it could be eaten at my own risk as they were not prepared to guarantee its safety. So they wanted to cash in on the gluten-free status without wanting to ensure that the cereal was safe. They were rather snippy with me when I pointed this out. I will not purchase anything from this company, now. So I took the cereal back to the health food store, explained the situation, and next week there it was in the same place with the big gluten-free sign. The store owners too, sadly, are ready to jump on the financial gluten-free wagon, but are not too terribly interested in actually educating themselves as to the needs of Celiacs so that they can offer us truly safe foods. For instance, they have bulk bins of gluten-free foods right underneath leaking bags of wheat flour which gets all over the lids of the bins. When I mentioned it, they made some apologetic and concerned noises, and the next time I went, there were even more bags that were put there, I was told, by someone else. They are in business to serve people with special dietary needs, but don't really care about the very people that keep them afloat. So I stopped going there and set out to find my provisions elsewhere and have had very good luck with the help of some extremely nice store managers. It's nice to know that not everyone is an opportunist.

Paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

One of my biggest beefs with most stores, is that they put the gluten free cake mixes in with the regular mixes, in the flour (baking) section of course. Now, I'm a big girl and can wash my hands and wipe down the boxes as soon as I get them, but if a child is helping mom or dad shop, they will happily skip down to the gluten free cake mix, (which is likely covered in flour dust), put it in the buggy and then get their little hands up around their mouth. I've managed to convince one store to keep it all separate, and that's the one we shope at.

tarnalberry Community Regular

Arrowhead Mills is pretty well known for their stance on this one. They're "Made from Gluten-Free Ingredients" label... gotta love it. (But don't consider it small - most labels are smaller. You'll get used to looking for ALL the text, no matter how small, on labels. ;-) )

But be aware that most things that say gluten-free MAY WELL BE produced on lines that are cleaned after something with gluten is run. Production lines are expensive, so they're shared. There are standards for cleanliness, of course, but all of those products are eaten at your own risk - and, unfortunately, that's most of them.

lotusgem Rookie

Hi Tiffany. Yeah, I know that whatever we eat, is at our own risk. Heck, you could say that about life in general; it's at our own risk. But it just gripes me when some company is ready to make a buck off of our need for safe food without wanting to stand behind their product. Like, I understand, for instance, that Frito-Lay uses common lines to produce a variety of things, and that the lines are cleaned between batches, but they give you a much more solid assurance that our chances of getting sick from contamination are quite slim. They don't try to attract Celiacs with any flashy labeling making claims about being gluten-free, but they will provide a gluten-free list on request. I think that that is a fair commitment to the needs of the Celiac community, and I feel comfortable eating their foods. By contrast, Arrowhead Mills goes out of their way to label their products in a manner that is, in my opinion, deceptive, and then if asked about the gluten-free status, wash their hands of any responsibility. That's what I'm talking about.

Shirley, our local Wal-Mart has boxes of Hogsden Mills gluten-free soy flour pushed up right next to High gluten wheat flour! And we've probably all seen that kind of thing everywhere! We need education at so many levels.

Paula

Guest Viola

I stopped at the store that carried the granola type bars that were labeled gluten free yesterday. The bars are a Canadian product called Wild Country. The Organic Almond Nougat Bar is gluten free as are two or three others, however there are two that are not. The company has responded very well and have repackaged the two that are not! Way to go Wild Country! They not only repackaged them, but have changed the colour of the packaging of the ones that are not gluten free so they can be told apart at a quick glance :D Nice to see that this company has responded so well, and so quickly!

lotusgem Rookie

Bravo! :D

Guest nini

I've run into several instances where a product was labeled Gluten Free and then right in the ingredients there was very clearly listed a gluten ingredient. One was Oskri's sesame bars... they have since eliminated all gluten from their products but I don't trust them. Another one was one of those companies that puts out energy bars, they sent out a huge display that said Low Carb AND gluten free and labeled all of their bars gluten free, but alas, on the ingredients once more GLUTEN! I pointed this out to the store manager and they promptly pulled the display down and contacted the company, the reps response was, most of the bars are gluten free except for certain flavors, but there had been an error in the marketing dept with labeling, but they sent them out anyway. Another company I don't trust. Wish I could remember the name of it... I'll do a search and see if I can

Guest nini

OK, it was the Think Thin energy bars. According to the company, some are in fact gluten free, but some are not, read ingredients. I still don't trust this company after the error and nonchalance from the marketing dept.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.