Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hashimotos Thyroiditis And Celiac Disease


Tiff

Recommended Posts

Tiff Apprentice

Hello Everyone,

I am fairly new to this forum, but so far I have been given some great advice.

I was just wondering for all of you who have Hashimotos Thyroid Disease if you have ever heard of someone taking Lugols Solution (iodine) along with their medication. I am currently taking 112mcg of Levoxyl. I am 30 years old and have had Hashis since the age of 14.

I know this is a little of suject with the Celiac forum, but I also believe that I have a gluten intolerance. If anyone has any advice that would be great!! I have done a little research on the internet but I can't seem to find much correlation between Hashimoto's Thyroiditis and Lugols Solution (Iodine)

Thank you

TIFFANY :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tiff Apprentice

Oh I forgot to add that my current doctor prescribed 2 drops a day of Lugols Solution (Iodine)

I have been taking it but I still wonder if anyone has heard of this before?

I don't have a goiter, but I do have a small nodule on one side of my thyroid gland that my endocronologist said was common with Hashi's and there was no concern.

I would appreciate any advice

Thank you so much!!!

Mother of Jibril Enthusiast

Hi Tiff,

In a normal person, iodine might stimulate your thyroid to produce more hormones (a trick some people use to lose weight... although I'm not sure it's a good idea). If you have Hashimoto's disease, however, your thyroid is basically a "dead horse." No amount of kicking is going to make it perform again ;) It like being a type I diabetic... if your pancreas has stopped producing insulin, the only thing you can do is add supplemental insulin. There's no medication that can force your pancreas to produce insulin if it doesn't have that capability. The strategies that type II diabetics use (like taking medication, losing weight, and changing their diet) have very little effect.

Tiff Apprentice
Hi Tiff,

In a normal person, iodine might stimulate your thyroid to produce more hormones (a trick some people use to lose weight... although I'm not sure it's a good idea). If you have Hashimoto's disease, however, your thyroid is basically a "dead horse." No amount of kicking is going to make it perform again ;) It like being a type I diabetic... if your pancreas has stopped producing insulin, the only thing you can do is add supplemental insulin. There's no medication that can force your pancreas to produce insulin if it doesn't have that capability. The strategies that type II diabetics use (like taking medication, losing weight, and changing their diet) have very little effect.

Thanks Mother of Jibril,

Yeah, I was thinkin the same thing. But I just thought someone may know why he put me on the iodine. It kind of worries me. I almost feel like a guinea pig. My doctor said it supports the thyroid gland. I am on a detox program, but I still don't understand why he would put me on Lugols Solution. Why is it so hard to find a good, reliable, trustworthy, doctor that you don't have to second guess what they are doing. Trust me, I have been through all the bad ones. I just want to find one good doc.

I just don't know if I should stop the Lugols or just keep taking it until I finish the detox in 3 weeks. My husband believes that it can't hurt even if it isn't really helping my thyroid.

Thanks for you advice I greatly appreciate it

TIFF :D

nasalady Contributor
But I just thought someone may know why he put me on the iodine. It kind of worries me. I almost feel like a guinea pig. My doctor said it supports the thyroid gland. I am on a detox program, but I still don't understand why he would put me on Lugols Solution. Why is it so hard to find a good, reliable, trustworthy, doctor that you don't have to second guess what they are doing. Trust me, I have been through all the bad ones. I just want to find one good doc.

I just don't know if I should stop the Lugols or just keep taking it until I finish the detox in 3 weeks. My husband believes that it can't hurt even if it isn't really helping my thyroid.

I just thought I should mentione that iodine can DEFINITELY hurt if you are one of the celiacs who develop the skin rash, dermatitis herpetiformis (aka DH). DH sufferers are supposed to avoid iodine until the rash clears up.

JoAnn

Nancym Enthusiast

I'm starting to hear that iodine deficiency is coming back because people are cutting down on using iodized salt, using sea salt instead.

Iodine in reasonable quantities won't hurt and yes, I have heard of people using Lugol's. But too much iodine can make your hypothyroid worse, so don't go nuts with it.

It depends on where you are with Hashi's. Your thyroid goes through a period of dying. Sometimes it produces a little thyroid, sometimes you can actually go hyperthyroid with it. Not sure how much help iodine is to you once your thyroid is completely non-functional. I have a dead thyroid myself, irradiated it to kill it. I had Graves disease, which makes you hyperthyroid.

Tiff Apprentice

Thank you for all of your advice!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,007
    • Most Online (within 30 mins)
      7,748

    kgoss3tt
    Newest Member
    kgoss3tt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • aperlo34
      How are you feeling now?  I’m 2.5 Months in and feeling similar. Muscles twitching, some cramps in my muscles etc. 
    • Cindy Neshe
      I purchased food items online seeing the gluten-free symbol. No where online did it say the products were cross contamination with Gluten in their facility. Has anyone else found this with products? We need better communication to make sure people who have sensitivity issues properly notified before purchasing the item. I have actually emailed companies and asked about their statement on the product that it is gluten-free but found out their facility is not dedicated gluten-free, which means Gluten can come in contact with the gluten-free food item. I had to call, nothing listed on the product. I know that a "Dedicated gluten-free Facility" will be listed but why are these manufacturers not listing cross contamination? The answer is probably they don't want to be accountable. 
    • Brianne03
      Our daughter was recently diagnosed with Celiac. Everyone else in the family was subsequently tested. My results are the only ones I'm not confident with, despite my doctor saying they were normal. I guess I'm just looking for peace of mind because my research shows that TTG-IGA numbers greater than 10 U/mL are considered positive for Celiac and mine was 11.6 U/mL. I am happy to be wrong and not have Celiac, but need reassurance and expertise either way because my PCP said he was just going by the labs consideration of normal and wasn't sure beyond that. Could the test be indicative of other autoimmune issues, beyond Celiac, because I do have Hashimoto's?  In addition to having another autoimmune disease, I have had a chronic case of "dermatitis" in my genital/rectum area since 2020. I've seen tons of specialists, used many creams, taken pills and vitamins, have had biopsies, allergy tests (patch and skin prick), changed up all sorts of things, etc. with no real answers or solutions to make it go away. I have resorted to using a daily topical cream just to keep it at bay because otherwise I often feel like I am on fire...red, sore, bleeding, and oh so itchy!  The other thing that makes me question my results, is that I did a 23andMe genetic test years ago and it shows I have two copies of a genetic variant indicative of Celiac disease. Just looking for some clarification; thank you!! PS, I've tried figuring out how to attach screenshots of my test results, but no luck.
    • Brianne03
      Thank you for all the helpful suggestions. She has had stomach issues since the day she was born; when a baby projectile vomiting, as a big kid mostly cramping and stabbing pain after eating and just overall feeling of not feeling great...headaches, tired. We've talked to her doctor about it several times over the years; the did some testing when she was about 2 years old, prescribed a few stomach meds over the years that never helped and most recently did a simple blood test and an endoscopy to confirm and voila....answers!! Her iron and vitamin D were both super low. Wish it didn't take so long for her to get some relief, although honestly she's wishing she didn't know because she's already feeling like she's missing out because everything in our world revolves around food. She graduates this year and going to college is going to bring on a whole new level of stress...for her and me. I'm hoping by then she'll be confident in reading labels and advocating for herself and what she can and cannot eat, etc. 
    • Scott Adams
      It sounds like you’re doing an amazing job helping your daughter navigate her new gluten-free lifestyle—it can be a big adjustment, especially for little ones! To address your questions: Increased bowel movements: It’s possible her digestive system is beginning to work better now that she’s gluten-free, and she’s clearing out what wasn’t moving before. Chronic constipation and impaction can take time to resolve fully, and daily Movicol might still be helping this process. Over time, her bowels should normalize as her gut heals, but if the frequent stools persist or seem excessive, it’s worth checking with her doctor to rule out other issues like malabsorption or food intolerances. Pinkish stool color: Changes in stool color can be common after diet changes, but pinkish stools should be monitored closely. If it’s not blood and doesn’t seem to bother her, it could just be due to something she’s eaten—like certain fruits, vegetables, or food dyes. However, if the color persists, worsens, or is accompanied by other symptoms, definitely mention it to her doctor to rule out any underlying concerns. Bloated tummy: A distended tummy from celiac disease can take time to go down as her gut lining heals and inflammation reduces. It varies for every child, but improvements are often seen within a few weeks to months of being strictly gluten-free. Staying consistent with the diet and ensuring she gets all the nutrients her body needs—especially iron, zinc, and B vitamins—will support this process. If the bloating doesn’t seem to improve or worsens, her doctor may want to investigate further. It’s still early days, so keep doing what you’re doing and stay patient with her progress. Keep track of her symptoms, and don’t hesitate to bring up any concerns at her follow-up appointments. Recovery can be a slow process, but most kids with celiac thrive once their gut heals. Sending lots of positive thoughts your way—she’s lucky to have you looking out for her!
×
×
  • Create New...