Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ot - Singulair - Bad Reaction!

Jana315

Recommended Posts

Jana315 Apprentice
Jana315
Posted

Sunday night & Monday night, I woke up with horrible coughing fits - I am having allergies right now to something in the air... On Monday night, it was so bad that I couldn't stop coughing, tried lots of things. Finally, in my sleepy stupor, I grabbed a Singulair pill that I had from a trial pack. I did get back to sleep & stopped coughing, but I woke up feeling heavily drugged (not common unless I'm glutened) and had very intense stomach/intestinal pain/gas/cramping ALL day yesterday and into the night last night.

I've googled Singulair and it is suppose to be gluten-free, but I found another gluten-intolerant person who reacted badly to it. I looked at the list of side affects and the top ones are tiredness/fatigue, stomach/intestinal issues. It is strange that I never noticed the intensity of the side affects until going gluten-free (going on 2 months now), but I don't take allergy meds very often, only "as-needed" and most times, not even when I need them, only when I'm in dire need.

Has anyone else had such a nasty reaction? How long did it last? I think I'm better today, but the day is still early....

Jana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


brigala Explorer
brigala
Posted

I've been taking Singulair every day since it was new on the market, and never had an issue with it. I know that doesn't mean a whole bunch, though. I'm sorry you reacted to it.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I had a very bad reaction to Singulair, which was prescribed to me when I had bronchitis/pleurisy as a reaction to the flu shot.

It made my coughing and wheezing immediately worse--much worse-- rather than better, and my doctor didn't believe me when I called him to tell him that. He switched me to Advair--and the same thing happened. The doctor didn't believe that that was possible.

He wanted me to take more, and I refused, and asked if I couldn't just use albuterol instead. He agreed, I did, and the albuterol helped a lot. I've not needed any kind of inhaler since. (I used to have mild exercise-induced asthma until I went off gluten.)

This was several years ago. A few months after this episode, both Singulair and Advair began to carry a black-box warning; apparently, some people died from their reactions to it.

I do not know if they still carry that black-box warning.

JillianLindsay Enthusiast
JillianLindsay
Posted

I've been on Singulair for years and never had a problem other than tiredness (and I take it at night of course so it's a welcome SA). When I was diagnosed with Celiac, my pharmacist called the company directly and they told her the product is gluten-free. Perhaps there's something else in it you are reacting to, or you could have a very sensitive stomach and experienced the GI SA they mentioned. Hope you figure it out! Singulair has been so helpful to me due to my asthma and allergies. Good luck!

Sunday night & Monday night, I woke up with horrible coughing fits - I am having allergies right now to something in the air... On Monday night, it was so bad that I couldn't stop coughing, tried lots of things. Finally, in my sleepy stupor, I grabbed a Singulair pill that I had from a trial pack. I did get back to sleep & stopped coughing, but I woke up feeling heavily drugged (not common unless I'm glutened) and had very intense stomach/intestinal pain/gas/cramping ALL day yesterday and into the night last night.

I've googled Singulair and it is suppose to be gluten-free, but I found another gluten-intolerant person who reacted badly to it. I looked at the list of side affects and the top ones are tiredness/fatigue, stomach/intestinal issues. It is strange that I never noticed the intensity of the side affects until going gluten-free (going on 2 months now), but I don't take allergy meds very often, only "as-needed" and most times, not even when I need them, only when I'm in dire need.

Has anyone else had such a nasty reaction? How long did it last? I think I'm better today, but the day is still early....

Jana

tarnalberry Community Regular
tarnalberry
Posted

You should let your doctor know about the reaction. I'm guessing that it was likely reacting to the med itself, not gluten in it. While many people will do fine on many medications, it is completely possible to have a bad reaction to one.

  • 1 year later...
pelsteen Newbie
pelsteen
Posted

Sunday night & Monday night, I woke up with horrible coughing fits - I am having allergies right now to something in the air... On Monday night, it was so bad that I couldn't stop coughing, tried lots of things. Finally, in my sleepy stupor, I grabbed a Singulair pill that I had from a trial pack. I did get back to sleep & stopped coughing, but I woke up feeling heavily drugged (not common unless I'm glutened) and had very intense stomach/intestinal pain/gas/cramping ALL day yesterday and into the night last night.

I've googled Singulair and it is suppose to be gluten-free, but I found another gluten-intolerant person who reacted badly to it. I looked at the list of side affects and the top ones are tiredness/fatigue, stomach/intestinal issues. It is strange that I never noticed the intensity of the side affects until going gluten-free (going on 2 months now), but I don't take allergy meds very often, only "as-needed" and most times, not even when I need them, only when I'm in dire need.

Has anyone else had such a nasty reaction? How long did it last? I think I'm better today, but the day is still early....

Jana

I have been gluten free since 8/17/2010 but have continuing low-level cramping disrupting my sleep. I've been taking 2 5mg chewable Singulair tablets for about 5 years due to allergies, sinus infections, and comstant respiratory illness. Since I got my latest refill, I have been spending 2-3 hours/night cramping and not sleeping when I take one tablet before I go to bed. When I take two, I get a gluten reaction half as bad as what I had before God answered my despair and told me I had Celiac disease. Last night, I spent 16 hours in bed and may have slept about 8. As of now, I'm DONE with at least that bottle of pills. Getting a respiratory infection is better than being almost completely unable to sleep!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,974
    • Most Online (within 30 mins)
      7,748
    Maura Gissen
    Newest Member
    Maura Gissen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi! I have been diagnosed with celiacs and hashimotos for about 1.5 years. I have been on a gluten-free diet since then, and was on a strictly AIP diet for about 6 months a while back. I'm now pregnant, making food eliminations really hard. However, even with cutting out gluten and cross-reactive foods like corn, dairy, oats and yeast, I'm still having flare ups and I cannot pinpoint the foods (some weeks I am fine, others not so much). My symptoms are less digestive and more dizziness, brain fog, and a general feeling of being "sick." Can anyone relate? Does anyone have guidance? I feel really stuck and frustrated. 
    • trents
      Worsening oral health with celiac

      By trents · Posted

      The form of the magnesium is important. Go for one that has high absorbability. Most of us opt for magnesium glycinate. Mag citrate is also good. Don't settle for the oxide forms. They aren't absorbed well and tend to have a laxative effect 'cause they just draw water into the colon a' la Milk of Magnesia. Costco is a good place to shop for things like that. Also, good bone and dental health involves vitamin D. Are you taking a dedicated D3 supplement? Have you had your D levels checked? In many ways, vitamin D is turning out to be a master vitamin of human metabolism and celiacs are often low on this one. What was the numerical score on your IGA along with the reference range? I can probably tell you whether it was TTG-IGA by the magnitude of the score. The only other likely option besides TTG-IGA would be Total IGA which usually has scores that range in the hundreds.  I do think it important for you to get a follow-up endoscopy/biopsy to check for healing of the villi. If that isn't happening like it should, you still are not absorbing nutrients well and that could easily explain your dental issues.
×
×
  • Create New...