Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance?

terribeth07

Recommended Posts

terribeth07 Apprentice
terribeth07
Posted

I just did a 4 week gluten free trial & then ate just as normal & felt very nauseas the next day. Do you think that is enough of an "unofficial" diagnosis to say I am gluten intolerant? I tested normal on the celiac blood panel & have had several other tests done on me over the past 5 years. The doctor was telling me it was IBS but I was not accepting that as my diagnosis so I decided to try the gluten free diet on my own.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I would keep eating gluten for a week, if your system can stand it. That will give you a clearer idea of whether your gluten challenge was positive. How did you feel during the time you were gluten free? Did it help your symptoms at all?

terribeth07 Apprentice
terribeth07
Posted
  • Author

Sorry I didn't see this reply until today (the email notification must not have been working). I was off of gluten for 4 weeks & went back on it for 2 days & got very nauseous. I never actually got sick but very nauseous & still am now a week later. I haven't eaten any gluten since last Monday morning. Do you think it could still be related to the gluten? It seems like a big coinsidence if it's not related.

During my gluten free challenge I didn't get sick but I hadn't been sick for a couple months leading up to it either. My sickness wasn't constant. It was on & off for 5 years which has made it hard to diagnose. I have had so many other tests done so I don't know what else it could be.

Anyone have any advise? Could it be gluten intolerance? Should I still be nauseous even though I haven't had any gluten in a week?

Please help!!! I can't afford to go to the doctor anymore b/c my health insurance skyrocketed which is why I'm doing this on my own.

terribeth07 Apprentice
terribeth07
Posted
  • Author

Sorry to keep posting this but can anyone help me with this? I'm starting to feel better now but was sick for 1 1/2 weeks after 4 weeks of gluten free & 2 days back on gluten. Should I still be sick from just 2 days with gluten?

leadmeastray88 Contributor
leadmeastray88
Posted

Sure, it's possible! Reactions are different and vary in intensity and duration from person to person. If you ate gluten for every meal for 2 straight days, then I'd say that's a reasonable amount of time to be sick.

If you feel better gluten free, then why not just stick to it? You have nothing to lose but your nausea, and you don't need a doctor's prescription!

My doc told me I had IBS too...and I say "BS" to that. Go with your gut...literally :P

terribeth07 Apprentice
terribeth07
Posted
  • Author

Thanks for your reply. I'm going to stick with the gluten free diet & then in about a month try to eat barley & see if that makes me sick. Then I can hopefully see if it's just wheat or all gluten.

ravenwoodglass Mentor
ravenwoodglass
Posted
Sorry to keep posting this but can anyone help me with this? I'm starting to feel better now but was sick for 1 1/2 weeks after 4 weeks of gluten free & 2 days back on gluten. Should I still be sick from just 2 days with gluten?

Unfortunately the reaction can last that long, it's takes time for the antibodies to 'deactivate'. Some of us will even notice a pattern to our reactions after we have accidentally gotten it again after being gluten free for a while.

If you are having stomach pain some find Pepto Bismal to be effective and if energy, fatigue and brain fog are also an issue sublingual B12 will help a lot with that.

I am glad to hear that you are going to stick with the diet. Hopefully you will be feeling better soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


terribeth07 Apprentice
terribeth07
Posted
  • Author

Another question, I have had several people tell me that my sickness after gluten free & then eating gluten doesn't necessarily tell me anything. They said that anytime you drastically change your diet your body will go into shock & will make you sick. Is that true?

ravenwoodglass Mentor
ravenwoodglass
Posted
Another question, I have had several people tell me that my sickness after gluten free & then eating gluten doesn't necessarily tell me anything. They said that anytime you drastically change your diet your body will go into shock & will make you sick. Is that true?

No it's not.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,347
    • Most Online (within 30 mins)
      7,748
    Sherry Huisman
    Newest Member
    Sherry Huisman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • James47
      I’m terrified it’s too late for me😭

      By James47 · Posted

      Hiya..I was 48 when diagnosed two years ago and I was in right bad way but strict gluten-free diet you will recover I promise x
    • James47
      Long term recovery

      By James47 · Posted

      Hi everyone I'm James, I hope you are all feeling well??. Accidentally had gluten at weekend and I've had severe diarrhea since sat night. My question is ,the longer someone like myself has been following a strict gluten-free diet will the exposure to gluten be lot more extreme as body now has been free of it well over a year ? Any information be much appreciated and any tips on how to stop the constant diarrhoea I have currently also be appreciated guys x
    • Cathijean90
      I’m terrified it’s too late for me😭

      By Cathijean90 · Posted

      Thank you so much Scott 🫶🏻
    • Wheatwacked
      SkinSafe

      By Wheatwacked · Posted

      I use Listerine.  Rinse first to soften the tarter, then brush with Oral B electric toothbrush super sonic.  The $15 ones at the supermarket.  At 73 I still have all my teeth.  While a blood test can measure iodine levels, it's not the most accurate method for assessing iodine status, and urinary iodine excretion is considered a better indicator.  Have any of your dermatologists ever done a biopsy for dermatitis herpetiformis?  I may have missed it.  Note the similarity of Casal's necklace to one of your symptoms. Pellagra rash is a characteristic skin manifestation of niacin (vitamin B3) deficiency. It typically presents as:  Erythema: Red, sunburned-like areas of skin, often on the face, neck, arms, and legs.  Scaliness: Dry, flaky skin that may become thickened and crusty.  Hyperpigmentation: Darkened patches of skin, particularly in sun-exposed areas.  Casal's necklace: A dark, pigmented band around the neck.  I am currently taking these} Vitamin D 10,000 IU (250 mcg) DHEA 100 mg 500 mcg Iodine  10 drops of Liquid Iodine B1 Thiamin 250 mg  B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg 4 times a day for hyperlipidemia. B5 Pantothenice Acid 500 mg Vitamin C 500 mg     Selenium 200 mcg  Several times a week
    • Itsabit
      SkinSafe

      By Itsabit · Posted

      I will. Thanks. I did just have mg B12 drawn. I should also state that I am already taking a Vit D supplement, as I live in the US in New England sand just about everyone who lives here is deficient, esp during our winters with less exposure to natural sunlight. I was also taking a chewable bariatric vitamin as well because of my food issues related to my cancer treatment (which was many years ago, but there are long term effects.) I just stopped it because I was unable to get any gluten information about it. And it did contain iodine. Is there even a vitamin that doesn’t? I don’t know, but I will check. I also take Calcium and Magnesium in the form of “Rolaids” for leg cramps/spasms, with good effects. Thanks. 
×
×
  • Create New...