Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Awareness Letter Writing Campaign


angel-jd1

Recommended Posts

angel-jd1 Community Regular

The folks over at USASillyYaks noticed that on Oprah's site that they are looking for people with odd disorders, so many people have been posting their letters under that topic at the Oprah site. Just thought I would give you all a heads up on that.

How is the letter writing going for everyone??

-Jessica :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



yllehs91 Apprentice

Hey. I just got finished e-mailing about 20 companies (most of them that were on here already). But I also added about 2 --one news station & one newspaper -- from my area to the list. I e-mail the generic e-mail, but with a msg at the top, explaining how long I've had it, and that it's imporant to me, and to get the msg out...etc...so that it'd be a bit more personal. Well, I hope it works! Good luck everyone! :D

angel-jd1 Community Regular
I just got finished e-mailing about 20 companies

WOW! Nice work!!! Let us know if you hear anything back from them.

-Jessica :rolleyes:

KaitiUSA Enthusiast

I emailed about 50 news stations and shows so far.

I also put in for the Oprah show and gave my story with a brief letter.

I plan to snail mail some companies and am finishing up the letters now...also contacting local stations.

angel-jd1 Community Regular
I emailed about 50 news stations and shows so far

Keep up the great work Kati!!

-Jessica :rolleyes:

jams Explorer

Hey there! I am a newbie but wanted to kick in some support. I sent a bunch of emails out to the places that Katie listed. Hopefully someone will hear something! I live near Milwaukee. There was a big article in the paper in past years about celiacs. They were referencing the Gluten Free Trading Company here in Milwaukee. It will be exciting to see if this campaign gets responses! I'll watch for updates!

jams Explorer

OOPS! Sorry Kaiti not Katie!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel-jd1 Community Regular

Today is our last official day for sending letters out!! Keep up the

great work folks!!

-Jessica

Roo Explorer

Hey guys,

I'm on the e-mail list for Stlouisalerts and this came around today. I guess all the hard work of letter writing paid off!!!!!!!!

I already set my TIVO!

Roo

In a message dated 4/28/05 7:41:10 AM, kl_king@swbell.net writes:

I rec'd an email from the TODAY Show.

yllehs91 Apprentice

that is so great! okay, can ya do me a favor? what channel is it on? ABC? (I used to watch it, but not anymore, so I forgot) :unsure: And it comes on @ 7 am central right? :unsure: Haha..please let me know. Good work everyone! ;):lol: Even if it's only one, it's something! :D

Roo Explorer

I think it's NBC May 10th at 7:00 A.M.

Roo

celiac3270 Collaborator
I think it's NBC May 10th at 7:00 A.M.

Roo

Wow...making progress :)

angel-jd1 Community Regular

Just thought I would share my response from 30 min. meals on the food network.

-Jessica :rolleyes:

Thank you for your recent e-mail and your comments regarding programming on Food Network.

All of our programming is dedicated to addressing our viewer's infinite connection to entertaining, eating and dining out in unique and original ways. Though it is our hope that every viewer enjoys the great variety of programs offered on Food Network, we realize that not every program is suited for every taste.  The comments and suggestions offered in your e-mail will be kept in mind as we plan future programming.

Once again, thank you for taking the time to write to Food Network.  Your views on our programs provide the most direct and accurate information upon which we can make programming decisions.  Please know that your comments will be employed in evaluating current and future programming on Food Network.

Best regards,

Food Network Viewer Services

Food Network

HGTV

FINE LIVING Network

DIY - Do It Yourself Network

Shop at Home

Great American Country

angel-jd1 Community Regular
I rec'd an email from the TODAY Show.  They are going to air a segment

on Celiac May 10 with cooking demos.

Not for sure on this, trying to still do some checking, but I believe it is an Australian today show that is having the segment.

-Jessica :rolleyes:

angel-jd1 Community Regular

This excerpt comes from the USASillyYaks Website Open Original Shared Link

Jenn has gotten it where we can watch the Australian Today show online!! Awesome!!

-Jessica :rolleyes:

Alright hopefully I've included everyone who's gluten free. The upcoming Australian gluten free segment on TCN 9 is going to be available to all of us here in the states too! Jenn in LV

"Beaumont, Melissa" <MBEAUMONT@nine.com.au> wrote:

Subject: FW: Americans interested in an upcoming program on TCN 9 Today Show

Date: Mon, 2 May 2005 07:39:45 +1000

From: "Beaumont, Melissa" <MBEAUMONT@nine.com.au>

To: "TCN Today Show" <todayshow@nine.com.au>,

<jendenise0401@yahoo.com>

Hi Jennifer,

Thanks for your email.

I'll put the video on the web at www.ninemsn.com.au/today

Melissa

Guest BellyTimber

:D

1.How did you manage to write all those letters in two days!

2.Please can we copy your letter in the U.K. but with adaptations (to cater for the fact that some people get certain foods on doctor's prescription at a flat rate - not me though - and that our national coeliac society publishes a food and drink directory with monthly amendments).

3.Our coeliac awareness week is around 20th of May but we ought to be thinking of 2006. I can't write any letters in time this year!

Fabulous work, hoping lots of benefit comes!

:D

angel-jd1 Community Regular

You are welcome to use my letter.

Copy and paste the letter and send it as an email is the fastest way for me personally.

Good luck with your letter writing campaign in the UK!!! Let us know how that goes.

-Jessica :rolleyes:

Guest BellyTimber

:lol:

Shall have to discuss with people whom to mail it to. Perhaps this will be ready for 2006!

:)

  • 6 months later...
ms-sillyak-screwed Enthusiast
ok here are some more:

Kaiti you are a doll! I just love you! You never stop amazing me. Thanks for all the info. I don't know you but, you have helped me on the darkest day of my life with the death of my Auntie her feeding tube and celiac disease testing. I am forever a fan. I thank God for your big heart and kindness.

I'm going to do some letter writing.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,886
    • Most Online (within 30 mins)
      7,748

    CiCi1021
    Newest Member
    CiCi1021
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Moms Across America for one. Here's the article that kicked off long thread and more than one thread on Celiac.com this past summer:  Our community feels the testing needs to be tightened up. As of now, GFCO allows food companies to do self-testing and self-reporting. Testing is also done We strongly believe testing needs to be done more frequently and there needs to be drop in, unannounced testing by the FDA and certification groups.
    • CiCi1021
      What celiac watchdog groups have looked into what you mentioned? Thanks.
    • trents
      Welcome to the forum, @CiCi1021! Well, to begin with, most of us have found it isn't necessary to buy a lot of specifically labeled "gluten free" or "Certified Gluten Free" prepackaged food items as long as you are willing and able to cook from scratch. This is especially true since testing by celiac watchdog groups has cast some serious doubt on how consistently food companies are actually meeting gluten free and certified gluten free standards. It's probably just as effective and certainly less expensive to buy naturally gluten free mainline food products such as fresh meat, vegetables and fruit and prepare your own meals. The only major exception to that in my experience is loaf bread. It's very difficult to make your own gluten free bread products and have them come out decent with regard to texture. The major food companies have invested a lot into that component and have come up with some pretty good stuff that's hard to duplicate for yourself.
    • CiCi1021
      Struggling with costs of all the special food.  Are there any organizations out there that will assist with costs? 
    • trents
      I would ask the GI doc about the elevated IGA score of 401. That one is what we commonly refer to as "total IGA" and also known as "Immunoglobulin A (IgA)". It could be nothing but it can also indicate some other health issues, some of them serious in nature. I would google potential causes for that if I were you. Also, if there is a chance the GI doc will want to do more testing for celiac disease, either antibody testing or an endoscopy with biopsy, you should not cut back on gluten consumption until all celiac disease testing is done. Otherwise, you will invalidate the testing.
×
×
  • Create New...