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Could I Be Celiac? Please Help


blue102

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blue102 Newbie

I'm a 25-year old female. I don't have any major issues at the moment, but I have had lots of little issues all my life, and I'm obsessed with trying to figure out what is wrong with me. Maybe I'm a hypochondriac...but I know something's not quite right.

First of all, I was diagnosed with clinical depression and anxiety around age 14, but that started around age 12. I was put on antidepressants, and have been on and off them ever since. I always end up having a breakdown and going back on them. I have also been diagnosed with PMDD.

I had many emotional problems in high school, and looking back, I was almost schizotypal: believed that God was speaking to me through signs and music, severe paranoia (thinking people were spying on me, thinking I was being talked about, etc.), severe social anxiety, low motivation and energy, thinking that I was being given profound insight from some higher power, etc. Yeah, crazy! That all stopped when I went on the antidepressants.

I have recently been reading a lot of psychology and I think I may have a few autistic traits, including a tendency to become absorbed in an interest, incessant skin-picking (insert EWW here), and some distractibility, among other things. I recently visited a psychiatrist to see if I might be ADD, but he determined I'm not. So why is it that I have two college degrees and can't keep a job? I've had 7 jobs in the last year. Psych says I get bored too easily, which may be the case. But I think there is an issue with focus somewhere.

Sometimes when I'm stressed my mind shuts off. When I meet someone new, it's a stressful experience for me because I'm shy, and I've been known to stutter, garble my words, and blank out on many an occasion.

I also have Vocal Cord Dysfunction, and I get attacks sometimes where I can't breathe. This isn't asthma. It's related to anxiety, supposedly. Funny, I don't feel anxious when it happens.

So in my search to find what the name for my wierdness is, I've crossed several things off the list: Asperger's, ADD...god...even personality disorders. Nothing is wrong with me. I've been told that I'm just gifted and have a hard time relating to people. But that wouldn't explain the blank-outs and concentration problems.

I keep coming across this "gluten allergy" stuff on the net. I would be happy to give up wheat if it would end these silly issues of mine. It would be nice to know that it's something as simple as that, and not some brain disorder that I need meds for.

I could be completely off base, but I was wondering if this could be the culprit. I have heard that celiac disease can cause symptoms like these. On another note, my sister has ulcerative colitis. Am I on the right track here?

Any advice or insight would be greatly appreciated!!!

Edit: I'm going to add also that I've had severely chapped lips all my life. It doesn't seem to ever improve much, and it's getting worse...?


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ianm Apprentice

I had many of the problems you just described before going gluten-free. I had VERY low energy and could not focus on anything for any length of time. I had very severe social difficulties. It was difficult for me to speak, put two sentences together and engage in a coherent conversation. In the time that I have been gluten-free all of that has gone. I have lots of energy and am clear headed. The social anxiety is much better now. I am 37 and the problems I still have are more habits than gluten induced. I work at it everyday and it gets better a little each day. I am not the person I used to be a year ago and that is a GOOD thing. You have nothing to lose by trying a gluten free diet. The changes won't happen overnight, it will be a good 2-3 months on average before you notice any difference but it is worth it to try.

KaitiUSA Enthusiast

For the chapped lips thing-that is the first sign of dehydration and you should drink more water.

I think you should in fact be tested. What your sister has is something that celiac disease is often mistaken for. Also the symptoms you are having can be associated with celiac disease. Some people don't even have any symptoms with it. I would get these tests done:

-Anti-Gliadin (AGA) IgA

-Anti-Gliadin (AGA) IgG

-Anti-Endomysial (EMA) IgA

-Anti-Tissue Transglutaminase (tTG) IgA

-Total Serum IgA

I would also get the gene test done to see if you carry a celiac gene.

Good luck and if you have any questions you came to the right place this is a great place for support and info.

blue102 Newbie

Hey guys, thanks for the replies. I plan on having the tests done sometime in the future (finances allowing). I've printed out the list you gave me, Kaiti, thanks. I think I will try the gluten-free diet until then, and see if it helps.

KaitiUSA Enthusiast

If you are getting further testing do not go gluten free yet. This will mess with the accuracy of the tests. They need you on gluten heavily for a good 3 months to get accurate results. Just keep that in mind :D

Lesliean Apprentice

I was told I had vocal chord dysfunction when I really had vocal chord inflamation due to gluten ingestion. It took 6 doctors to finally diagnose it correctly and then it was my discovery that it was gluten that was causing the symptoms. Now that I am gluten free my breathing is completely normal. I wish for you the same!

Good luck,

Leslie

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    • trents
      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
    • Maura Gissen
      Hi! I have been diagnosed with celiacs and hashimotos for about 1.5 years. I have been on a gluten-free diet since then, and was on a strictly AIP diet for about 6 months a while back. I'm now pregnant, making food eliminations really hard. However, even with cutting out gluten and cross-reactive foods like corn, dairy, oats and yeast, I'm still having flare ups and I cannot pinpoint the foods (some weeks I am fine, others not so much). My symptoms are less digestive and more dizziness, brain fog, and a general feeling of being "sick." Can anyone relate? Does anyone have guidance? I feel really stuck and frustrated. 
    • trents
      The form of the magnesium is important. Go for one that has high absorbability. Most of us opt for magnesium glycinate. Mag citrate is also good. Don't settle for the oxide forms. They aren't absorbed well and tend to have a laxative effect 'cause they just draw water into the colon a' la Milk of Magnesia. Costco is a good place to shop for things like that. Also, good bone and dental health involves vitamin D. Are you taking a dedicated D3 supplement? Have you had your D levels checked? In many ways, vitamin D is turning out to be a master vitamin of human metabolism and celiacs are often low on this one. What was the numerical score on your IGA along with the reference range? I can probably tell you whether it was TTG-IGA by the magnitude of the score. The only other likely option besides TTG-IGA would be Total IGA which usually has scores that range in the hundreds.  I do think it important for you to get a follow-up endoscopy/biopsy to check for healing of the villi. If that isn't happening like it should, you still are not absorbing nutrients well and that could easily explain your dental issues.
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