Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Frustrated

wilkjo1

By wilkjo1
in Coping with Celiac Disease

Recommended Posts

wilkjo1 Rookie
wilkjo1
Posted

I have to boys who are casein, gluten, soy, and everything else free, so you would think I would be a whiz already with my diagnosis, but no. I have only been at this for myself for two months. I went from creamer to soy milk in my coffee and from my whey protein powder to soy. I am thinking I may have a problem with soy since I am bloated up. The gluten caused esophogeal spasms. The dairy causes that and bloating. I am wondering once you finally figure out all the things that cause something, how long does it take your gut to heal? My boys were metal poisoned and autistic so their issue is a little different. My husband has many IGE allergies as well as the boys. I am clear for IGE, but what a pair my husband and I make. :rolleyes: Any info on how long it will take before I no longer look nine months pregnant while only weighing 105lbs would be appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

Hi, New and Frustrated, I am Older and Grumpy. I still cannot handle well being outside when it is over 110

daphniela Explorer
daphniela
Posted

I read somewhere that if your intolerant to milk, their is a good possiblity you will be intolerant to soy. I would avoid the soy and stick to coconut and almond milk. Check the labels on the almond milk many of them contain soy.

wilkjo1 Rookie
wilkjo1
Posted
  • Author

Hey guys, thanks so much for responding. I will definetly avoid the soy and see what happens. I am well versed in the gluten free part of the diet and such, because of the boys. We even mill our own flour. I still can't figure out why this all happened. Are you guys hypothyroid as well? What other foods have given you problems?

ang1e0251 Contributor
ang1e0251
Posted

I disagree that just because you are lactose intolerant you also cannot tolerate soy. I've lactose intolerant for 33 years but have used soy daily for many years. If you can't handle soy, but don't assume you can't unless you try it. If you like it like I do, it's a good solution and available in any grocery store.

Many people reported that it takes some time for their bloating to go down. Are you sure you are avoiding dairy completely? Are you getting some sneaky gluten in an unexpected way?

wilkjo1 Rookie
wilkjo1
Posted
  • Author
I disagree that just because you are lactose intolerant you also cannot tolerate soy. I've lactose intolerant for 33 years but have used soy daily for many years. If you can't handle soy, but don't assume you can't unless you try it. If you like it like I do, it's a good solution and available in any grocery store.

Many people reported that it takes some time for their bloating to go down. Are you sure you are avoiding dairy completely? Are you getting some sneaky gluten in an unexpected way?

Hi, Unfortunately since I have stayed away from soy the last four days the bloating is gone. I did like the soy milk a lot. I dropped the dairy shortly after the gluten, because it also caused esophogeal spasms. In the meantime my boys are a lot happier, because Mom is like them just for a little different reason. I am hoping that the dairy is temporary for me. The doc said if my villi heal that I may be able to have the dairy again. From the blogs I have seen, I am not so sure about that. I am going to check into hazelnut milk. Almond milk is ok, but watery. I know if any gluten were getting in my boys would be sick, so I think were ok there. I even changed my make up to gluten free. My boys react through skin absorption and I wasn't sure if I would. How long before your stomach healed?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,152
    • Most Online (within 30 mins)
      7,748
    TopRealtorBeach
    Newest Member
    TopRealtorBeach
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Matt13
      Biopsy results after 1,5 gfd

      By Matt13 · Posted

      Hi Guys, i did repeat biopsy after marsh3b (without erosion) and results are now: normal villi without atrtophy, 25/100 iel and moderate mononuclear inflamation in lamia propria, with occesional granulocytes. Doc says the he saw little erosion on duodenum. Is this good ? I mean is this progress? Please help!
    • Scott Adams
      Testing for celiac

      By Scott Adams · Posted

      In case you decide to go the route of a gluten challenge for a celiac disease blood test or biopsy: Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Wheatwacked
      Do I really need to get a biopsy?

      By Wheatwacked · Posted

      Kosher salt is not usually iodized. Shortly after starting GFD in 2014, I realized I wasn't getting enough iodine.  Growing up in the 50's and 60's we ate bread that used iodine as a dough modifier so each slice had about 100 mcg of iodine.  A sandwich and glass of milk supplied 300 mcg a day.  In the 70's they stopped using iodine as a conditioner in the US.  Then everyone got scared of milk.  The US intake of iodine dropped 50% since 1974.  Prescriptions of Thyroxine for hypothyroid disease doubled in the same period.  I tried using iodized salt and seaweed and took an expensive thyroid supplement but it wasn't enough.  In 2014 I had a sebaceous cyst (third eye blind).  The previous 6 cysts on my face had all drained and healed with no problem back in the 1990,s.  One on my check had sugically removed. They are genetic from my mom and my brother and son also get them in the same places.  This one I did not have surgery for because I wanted a bellweather to moniter healing.  It did not start healing until I started until 10 years when I started taking 600 mcg of Liquid Iodine a year ago Nov 2023. Lot's of comment about how it was offputting and maybe cancer, it was deep, down to the bone, but I can be obstenant.  Now it is scabbing over and healing normally.  Vision is returning to my right eye (glucoma), musle tone in my chest was the first sign of improvement.  For healing, iodine breaks down defective and aging cells to make room for new growth. I take Liquid Iodine drops from Pipingrock.com but there is also Strong Iodine and Lugols Solution. 50 mcg/drop a dropper full is 12 drops, 600 mcg.,  usually I put it in a can of Red Bull, My brother, son and his family also started taking it. https://www.pipingrock.com/iodine/liquid-iodine-2-fl-oz-59-ml-dropper-bottle-14690 390 drops for $8.  They ship internationally if you can't find it locally. It the US the Safe Tolerable Upper Limit is 1000 mcg a day.  In Japan it is 3000 mcg a day.  The Japanese traditional diet has 50% less breast cancer, nicer hair, skin and nails, and in the 80's the US educational system dropped down comared to the rest of the world while Japanese kids moved up to the top.  Low iodine affects brain fog. According to most education rankings, Japan generally has a higher education rating than the United States, with Japan often ranking within the top 10 globally while the US usually places slightly lower.  In the 1960s, the United States was near the top of the world for education, especially for young people.  About why iodine was removed from medicint: The Wolff-Chaikoff Effect: Crying Wolf? About why over 40% of us are vitamin D deficient: Mayo Proceedings,  Vitamin D Is Not as Toxic as Was Once Thought:  
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      Current "gluten challenge" recommendations are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily leading up to the day of the biopsy.
    • Bebee
      Testing for celiac

      By Bebee · Posted

      Thank you for your input!  I would really like to know if I have celiac disease because you need make sure you are not getting any cross contamination due to cancer concerns.  I guess I need to start with a knowledgeable Gastroenterologist. Thank you again!
×
×
  • Create New...