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New Sensitivities

fran641

By fran641
in Coping with Celiac Disease

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fran641 Contributor
fran641
Posted

Something still has me baffled. I have been gluten free since Dec. 08 and it seems the longer I'm away from gluten I'm becoming hypersensitive. I am definitely feeling better gut wise but these itches and rashes keep popping up. Shouldn't I be healthier, thus less prone to allergies as I improve my eating? When I would be accidentally glutened I would know it because of nausea. Lately it was a rash from grits, then extreme itching from McCormick's Old Bay. (both products I used frequently without problems for months) I just had dinner out and now I am itching from head to toe. Probably a cross contamination issue at the restaurant but this symptom is new to me. I feel like I'm freaky about everything I put in my mouth lately. Not a great place to live especially since I am so happy with my gut issues being resolved with the gluten free diet. Thanks for any information anyone can give me......I'll go away now and scratch these itches all over my body. :o

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Jackie927 Rookie
Jackie927
Posted

You are too funny. I am having some of the same issues but I have not been gluten free as long as you. I hope you get some answers so I can read them. I wish you no more itches......and me too. I'm all bruised up.

glutenfreeinaz Newbie
glutenfreeinaz
Posted

Fran,

Have you tried increasing the amount of yogurt or probiotics? They are supposed to help with digestion and with immunity.

Shauna

fran641 Contributor
fran641
Posted
  • Author
Fran,

Have you tried increasing the amount of yogurt or probiotics? They are supposed to help with digestion and with immunity.

Shauna

[]Yes, I do eat yogurt every other day and take probiotics everyday. The funny thing is that I seem to be digesting my meals fine, no d, gas or bloating. I feel better after eating than I have in many years. It is the external symptoms that concern me. Could damage be occuring in my intestines without my knowing it if these external symptoms are going on?

mushroom Proficient
mushroom
Posted

I can offer words of condolence, but not much enlightenment. I am 20 months down the gluten free road, and still chasing itchies. I am very much afraid that they do come from additional intolerances/sensitivites, of which we were previously unaware. For me they have been, successively, soy, citric acid, potato starch. I have not stopped itching yet since going gluten free, but think I am finally getting a handle on it. Hope to goodness nothing else shows up, and that I can stop scratching soon :D:D

Good luck with finding out what is doing it for you.

Liveenjoylife Apprentice
Liveenjoylife
Posted

It sucks, I know, lol. New things will pop up, but I have found that over time it will all diminish. It took me 4 months but am better under control with reactions to foods. I am sure it will turn that way for you too. Just patience, it takes time and yes it is a hard road.

fran641 Contributor
fran641
Posted
  • Author

I hate all the itching that I have but it is only occasionally and external. My poor sister has internal colon itching, it's truly an itch that can't be scratched! When I was diagnosed in Dec. she decided to try going gluten free (didn't get tested until after quiting gluten so her test was negative). After getting off the gluten the itching quit. But she isn't very committed to staying off gluten and the symptoms return. She has been to lots of specialist about this problem and they could not find a thing wrong or a solution to the itching. Obviously they didn't check for celiac..

Thanks for mentioning the soy, citric acid...I'll watch those too.

Glad you are doing so well after 4 months Liveenjoylife. It's been 7 months for me but these new allergies are just beginning. Hopefully this too shall pass....

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Jackie927 Rookie
Jackie927
Posted

Wow! Now I know why after going gluten free for a month and not having hardly any symptoms to having many symptoms after eating normal foods again. I didn't know you become more sensitive after being gluten free for a period. OH NO! And OH the itches! I also think the Soy is a NO NO for me. All of you are so kind and understanding and I didn't even ask the question. ANGELS in my pc. Thank you for all of the answers.........that everyone can read and learn and try to help ourselves.

lizard00 Enthusiast
lizard00
Posted

Have you been tested for food allergies? It's different from celiac testing because whether you have or haven't been eating specific foods before the test doesn't matter. It might shed some light on what foods are causing you to itch.

ang1e0251 Contributor
ang1e0251
Posted

I would agree that this sounds like a histamine reaction or an allergy. Sometimes they lay in wait until our gluten issues are in hand then jump out and make us itch. Do you think you might have a problem with MSG? What ingrediants are in the two foods you most suspect?

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    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
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      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
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      Autoimmune Reaction to SO many foods

      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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