Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Normal For Gluten Intolerance?


loxleynew

Recommended Posts

loxleynew Apprentice

So is it normal for people with gluten intolerance to be able to eat gluten in moderation? Ive been testing it out and seemingly I can eat it as long as it's in moderation and there are no ill effects. Maybe i'm not even gluten intolerant and the doctor was retarded?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TiffLuvsBread Rookie
So is it normal for people with gluten intolerance to be able to eat gluten in moderation? Ive been testing it out and seemingly I can eat it as long as it's in moderation and there are no ill effects. Maybe i'm not even gluten intolerant and the doctor was retarded?

You may have gotten a false positive if you were tested (?), I can't even eat peanuts that say "manufactured on shared equipment with wheat" or I get violently ill. If I were to even eat bread in moderation I would swear I was dying. I took a bite of a bratwurst last month (no bun obv.) and swallowed it before I realized it tasted like pure beer - sick as a dog - one bite.

But with that said all people are different. But the way this works in your body I don't know that you could eat 'in moderation' without feeling some kind of effect, unless you are a sleeper Celiac which I hear also exists. To me they are like unicorns ( :P ) but I do hear that people can have it without actually feeling the effects.

If this is the case, you need to still be very very strict with your diet if you had a positive test, because even if you don't feel symptoms your small intestine is still breaking down and you expose yourself to a myriad of health-issues that you really won't want to deal with (higher cancer rate, infertility . . .)

Just my 2c! Best of luck!

Penny-M Newbie

I have to ask if you were diganosed with Celiac or not. Myself, I am not a "common celiac". I have been tested to where myself and my father carry the genetic marker but we show no signs of other celiac indicators. However, I have been skin tested to where I am highly allergic to wheat, oats, barley and rye. I tried an accupuncture and she gave up because I showing no signs of over coming the allergy. s I do have scarring on my intestines which is a sign of damage from Gluten. I get extremely bloated with intense abdominal pain. I do not vomit, havent since I was a baby, so I remain ill for days after eating anything with gluten. When I first started on this trek, I experimented with different wheat products, and I found that I thought I could eat some things with wheat however everytime I would experience a different symptom, sometimes different from what I was used to, so I wouldn't think it was related. After going to a gastrointestinal dr and I told him of this, he told me to never eat gluten again because even though I may not feel the same symptoms the end result is damage to my internal organs. He did do the endoscopy and that is where we found the damage. I also believe that due to the fact I have an auto immune deficiency I don't absorb nutrients properly which doesn't help. My father suffers from abdominal pain, bloat and gas but he continues to eat wheat. So I have to say it's what you are willing to do for yourself. Just keep in mind that you could be damaging your organs with every bite you take. I dont want to scare you but I feel being honest is what you are looking for.

ang1e0251 Contributor

How were you diagnosed?

loxleynew Apprentice
I have to ask if you were diganosed with Celiac or not. Myself, I am not a "common celiac". I have been tested to where myself and my father carry the genetic marker but we show no signs of other celiac indicators. However, I have been skin tested to where I am highly allergic to wheat, oats, barley and rye. I tried an accupuncture and she gave up because I showing no signs of over coming the allergy. s I do have scarring on my intestines which is a sign of damage from Gluten. I get extremely bloated with intense abdominal pain. I do not vomit, havent since I was a baby, so I remain ill for days after eating anything with gluten. When I first started on this trek, I experimented with different wheat products, and I found that I thought I could eat some things with wheat however everytime I would experience a different symptom, sometimes different from what I was used to, so I wouldn't think it was related. After going to a gastrointestinal dr and I told him of this, he told me to never eat gluten again because even though I may not feel the same symptoms the end result is damage to my internal organs. He did do the endoscopy and that is where we found the damage. I also believe that due to the fact I have an auto immune deficiency I don't absorb nutrients properly which doesn't help. My father suffers from abdominal pain, bloat and gas but he continues to eat wheat. So I have to say it's what you are willing to do for yourself. Just keep in mind that you could be damaging your organs with every bite you take. I dont want to scare you but I feel being honest is what you are looking for.

I did genetic testing and they said I did not have the markers for it and that means i ahve a 90% chance of not ever having celiac. Then I did a blood and stool test which said I was allergic to gluten. So whatever i'm lost and confused. This is retarded and everything.

loxleynew Apprentice
How were you diagnosed?

Through blood and stool test. Genetic blood test was negative.

ang1e0251 Contributor

Was your blood test a celiac panel? Can you post the results here?

You said you did not have the genetic markers for celiac disease. CAn you also post those results here? The medical community recognizes different genetic markers in different parts of the world. It might help your confusion if you post your results here for a "second opinion".

Also back to your original question, yes, some can have celiac disease or GI and still not have symptoms. Some people are asymptomatic but still get the internal damage without feeling it. You want to avoid the organ damage if you are intolerant or have celiac disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem

    2. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem

    3. - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem

    4. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem

    5. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,820
    • Most Online (within 30 mins)
      7,748

    Charisse25
    Newest Member
    Charisse25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ann13
      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
    • trents
      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
    • Ann13
      Re food,  I said the gluten free thing isn't necessarily about gluten itself, but chemical sprays they use on GRAINS which cause allergic throat & vocal cord issues regardless of the inhaler you're using.  Your issue may not be the inhaler but eating gluten free food that still will bother you because they have been sprayed with certain chemicals. Barley & oats cause vocal and throat issues with me as well as gluten free flours. We didn't have gluten issues in the world yrs ago...the food changed somehow or they're using sprays that cause reactions in some people.  Re inhaler: Symbicort is registered as gluten free but companies can change their ingredients at any time so you may want to check with the company who makes it and get an ingredient list.  I don't believe I'm reacting to the inhaler...I believe it's a gluten free pasta I've been eating so I'm taking it out of my diet. I've used the inhaler for over 1 year and no problems up until now so I suspect it's the pasta. 
    • trents
      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
    • trents
      Are you saying you believe there is gluten in the inhaler products? I mean you talk a lot about reacting to foods that are supposed to be gluten free but this thread is about inhalers. 
×
×
  • Create New...