Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Normal For Gluten Intolerance?


loxleynew

Recommended Posts

loxleynew Apprentice

So is it normal for people with gluten intolerance to be able to eat gluten in moderation? Ive been testing it out and seemingly I can eat it as long as it's in moderation and there are no ill effects. Maybe i'm not even gluten intolerant and the doctor was retarded?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TiffLuvsBread Rookie
So is it normal for people with gluten intolerance to be able to eat gluten in moderation? Ive been testing it out and seemingly I can eat it as long as it's in moderation and there are no ill effects. Maybe i'm not even gluten intolerant and the doctor was retarded?

You may have gotten a false positive if you were tested (?), I can't even eat peanuts that say "manufactured on shared equipment with wheat" or I get violently ill. If I were to even eat bread in moderation I would swear I was dying. I took a bite of a bratwurst last month (no bun obv.) and swallowed it before I realized it tasted like pure beer - sick as a dog - one bite.

But with that said all people are different. But the way this works in your body I don't know that you could eat 'in moderation' without feeling some kind of effect, unless you are a sleeper Celiac which I hear also exists. To me they are like unicorns ( :P ) but I do hear that people can have it without actually feeling the effects.

If this is the case, you need to still be very very strict with your diet if you had a positive test, because even if you don't feel symptoms your small intestine is still breaking down and you expose yourself to a myriad of health-issues that you really won't want to deal with (higher cancer rate, infertility . . .)

Just my 2c! Best of luck!

Penny-M Newbie

I have to ask if you were diganosed with Celiac or not. Myself, I am not a "common celiac". I have been tested to where myself and my father carry the genetic marker but we show no signs of other celiac indicators. However, I have been skin tested to where I am highly allergic to wheat, oats, barley and rye. I tried an accupuncture and she gave up because I showing no signs of over coming the allergy. s I do have scarring on my intestines which is a sign of damage from Gluten. I get extremely bloated with intense abdominal pain. I do not vomit, havent since I was a baby, so I remain ill for days after eating anything with gluten. When I first started on this trek, I experimented with different wheat products, and I found that I thought I could eat some things with wheat however everytime I would experience a different symptom, sometimes different from what I was used to, so I wouldn't think it was related. After going to a gastrointestinal dr and I told him of this, he told me to never eat gluten again because even though I may not feel the same symptoms the end result is damage to my internal organs. He did do the endoscopy and that is where we found the damage. I also believe that due to the fact I have an auto immune deficiency I don't absorb nutrients properly which doesn't help. My father suffers from abdominal pain, bloat and gas but he continues to eat wheat. So I have to say it's what you are willing to do for yourself. Just keep in mind that you could be damaging your organs with every bite you take. I dont want to scare you but I feel being honest is what you are looking for.

ang1e0251 Contributor

How were you diagnosed?

loxleynew Apprentice
I have to ask if you were diganosed with Celiac or not. Myself, I am not a "common celiac". I have been tested to where myself and my father carry the genetic marker but we show no signs of other celiac indicators. However, I have been skin tested to where I am highly allergic to wheat, oats, barley and rye. I tried an accupuncture and she gave up because I showing no signs of over coming the allergy. s I do have scarring on my intestines which is a sign of damage from Gluten. I get extremely bloated with intense abdominal pain. I do not vomit, havent since I was a baby, so I remain ill for days after eating anything with gluten. When I first started on this trek, I experimented with different wheat products, and I found that I thought I could eat some things with wheat however everytime I would experience a different symptom, sometimes different from what I was used to, so I wouldn't think it was related. After going to a gastrointestinal dr and I told him of this, he told me to never eat gluten again because even though I may not feel the same symptoms the end result is damage to my internal organs. He did do the endoscopy and that is where we found the damage. I also believe that due to the fact I have an auto immune deficiency I don't absorb nutrients properly which doesn't help. My father suffers from abdominal pain, bloat and gas but he continues to eat wheat. So I have to say it's what you are willing to do for yourself. Just keep in mind that you could be damaging your organs with every bite you take. I dont want to scare you but I feel being honest is what you are looking for.

I did genetic testing and they said I did not have the markers for it and that means i ahve a 90% chance of not ever having celiac. Then I did a blood and stool test which said I was allergic to gluten. So whatever i'm lost and confused. This is retarded and everything.

loxleynew Apprentice
How were you diagnosed?

Through blood and stool test. Genetic blood test was negative.

ang1e0251 Contributor

Was your blood test a celiac panel? Can you post the results here?

You said you did not have the genetic markers for celiac disease. CAn you also post those results here? The medical community recognizes different genetic markers in different parts of the world. It might help your confusion if you post your results here for a "second opinion".

Also back to your original question, yes, some can have celiac disease or GI and still not have symptoms. Some people are asymptomatic but still get the internal damage without feeling it. You want to avoid the organ damage if you are intolerant or have celiac disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Second chance

    3. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Schar's products contain wheat!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,597
    • Most Online (within 30 mins)
      7,748

    Caroline Alexandria
    Newest Member
    Caroline Alexandria
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
    • Scott Adams
      I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and allergen statement because it is derived from wheat, even though the gluten protein has been removed. For individuals with a true wheat allergy, these products are not appropriate—but for those with celiac disease, properly tested gluten-free wheat starch is considered safe under current medical guidelines. That said, it’s completely reasonable to prefer products made without wheat starch if that gives you greater confidence, and clearer front-of-package communication could certainly help reduce confusion for shoppers.
    • elisejunker44
      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.