Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If You're Sensitive To Gluten-free Oats, Kindly Share Symptoms


The Fluffy Assassin

Recommended Posts

The Fluffy Assassin Enthusiast

I took out the bank loan and bought the 2 lb bag of Bob's Red Mill gluten free oats. Put about a bowl's worth with a 20 oz package of ground turkey to make meatloaf. It turned out outstanding, but while eating it, my face got hot. I went and looked in the mirror and didn't look noticeably red, but I certainly felt odd. I should mention that I don't get a lot in the way of symptoms from eating gluten; mainly I just get awakened an hour or so early with the runs. So this morning I woke up at a reasonably normal hour (not 5 am anyway), had a reasonably normal poo, started breakfast, then after 5 or 10 minutes had to run back to the bathroom with the trots. I hadn't eaten or drunk anything at that point. I had finally started feeling normal for the first time (and was about to post to brag about it) after giving up dairy and curtailing my fruit juice and now this. Could this just be an effect of not having had oatmeal in at least two years? Or am I one of those who's supersensitive to oats even though I don't appear to be supersensitive to gluten itself? Or is Bob's Red Mill overrated? Any thoughts? Anybody here who can't eat oats at all, and does the experience sound familiar?

Edit to add: I also had a glass of white wine (I think Chardonnay) last night, but I doubt it was the fancy French stuff from the wheat-paste sealed barrels. I'm having meatloaf again tonight but no wine, so I'll have that question cleared up by morning.

Editedit: I cooked the meatloaf in my lasagna pan which is gluten free, as I got it after quitting gluten, but it isn't casein free. I tried to clean it thoroughly, but maybe wasn't thorough enough.

Editeditedit: Thanks go out to juliebove, who provided the wonderful oatmeal in meatloaf suggestion. Even though it may not have ended well, it sure was tasty!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sulevismom Apprentice

HI,

I seem to have slightly less severe symptoms to gluten-free oats than to regular gluten. For awhile I was really enjoying this "gluten free" bread, but then one day I gorged on it because it tasted so good. An hour or so later, my belly was bloated and I had the tell-tale gas of a glutening. It might be that I can tolerate a little bit of it, but not 4 or 5 pieces of bread with it. Whatever the case, I'm staying away from all oats for now. I only went gluten free about 3 months ago, so it'll be awhile, like years, before I try again.

tarnalberry Community Regular

I haven't tried gluten-free oats yet. But, if you're sensitive to them, it's likely to elicit a very similar response as your normal gluten response, because it's the same chemistry going on in the gut. That said, my gluten reactions usually are NOT identical from one instance to the next. Similar, but not identical.

The Fluffy Assassin Enthusiast
HI,

I seem to have slightly less severe symptoms to gluten-free oats than to regular gluten. For awhile I was really enjoying this "gluten free" bread, but then one day I gorged on it because it tasted so good. An hour or so later, my belly was bloated and I had the tell-tale gas of a glutening. It might be that I can tolerate a little bit of it, but not 4 or 5 pieces of bread with it. Whatever the case, I'm staying away from all oats for now. I only went gluten free about 3 months ago, so it'll be awhile, like years, before I try again.

I'm going to try them again just by themselves to make sure that it wasn't the caseiny pan that got me (or relatively sure; my small saucepan has been used to make cheesy things, too) but I imagine that I'll be putting them aside or giving them away shortly. Thanks for the reply.

The Fluffy Assassin Enthusiast
I haven't tried gluten-free oats yet. But, if you're sensitive to them, it's likely to elicit a very similar response as your normal gluten response, because it's the same chemistry going on in the gut. That said, my gluten reactions usually are NOT identical from one instance to the next. Similar, but not identical.

I'm hoping that it was something other than the oats, because I really missed them, more than I had realized. For all I know, I undercooked the meatloaf slightly and wound up with the world's mildest case of food poisoning. Regardless, I'll try it again tonight, and a bowl of oatmeal some morning soon, and no doubt things will be clearer. Thanks for your reply.

dilettantesteph Collaborator

My reaction to gluten free oats was like my reaction to gluten, if not worse. It was NOT like a reaction to a bit of cross contamination, but like an all out gluten response. It made me sick for 2 months after eating half a serving. I wish I had been more cautious my first time.

The Fluffy Assassin Enthusiast
My reaction to gluten free oats was like my reaction to gluten, if not worse. It was NOT like a reaction to a bit of cross contamination, but like an all out gluten response. It made me sick for 2 months after eating half a serving. I wish I had been more cautious my first time.

Sorry to hear it. I'm still hoping that my situation was caused by something else, possibly the cheap wine. Anyway, I had the meatloaf again tonight so I'll find out in the morning. Hope you're able to stay away from oats in the future, and thanks for the reply.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast

Update: It probably wasn't the oats. Although I'm old enough for hot flashes, I'm of the wrong gender; the hot-flash-like facial heat was probably another hypoglycemia symptom. The runs was probably due to still not getting enough fiber. Since adding a big plate of steamed vegetables to lunch and dinner, all is going well, even when I eat oatmeal. Huzzah!

Roda Rising Star

I too tried the same brand of gluten free oats. I made apple spice cookies with it in. They tasted sooooo good but within a 1/2 hour I had really sour burps and a lot of gas/bloating. I tried some again the next day and the same thing happened. Then that evening I was in a lot of pain from all the intestinal gas. Then to top it all off I got the C for several days after. When I tried the oats I was 7 months gluten free. I developed a very red painful rash on by back side some time later and I think it was caused by it also. So for now I will continue to be oat free. I may try them again in a few years.

sixtytwo Apprentice

Missed oatmeal so much so tried the Quaker kind and had a bad reaction, however, it was neurological rather then gastric. I was soooooooooooo sick. My friend and I know I had these neurological episodes before I went gluten-free and they completely stopped other than the oatmeal episode. It happened two times. I will never eat oatmeal again. Do try cream of buckwheat, it is yummy and very similar to cream of wheat, however, buckwheat is a berry. I LOVE it in the winter time. Today I had a diet Coke for the first time in a long time, only drink water now. I was driving north on the highway with hours to go and was falling asleep, so thought I would try the diet Coke. It tasted so good and I slammed it/not sleepy, however, when I got home I was so hyper for awhile and then I crashed, feeling terrible. I will not be doing that again. I do think we get more sensitive to things as we go along.

Best wishes....Barbara

The Fluffy Assassin Enthusiast

Updated update: It was the oats. Peripheral neuropathy has returned for the first time since quitting gluten. So that's the end of that experiment. Thanks everyone for replying; Roda, Barbara (sixtytwo), and all-- we'll have to start a no-oatmeal club.:)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,139
    • Most Online (within 30 mins)
      7,748

    kfkynett
    Newest Member
    kfkynett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sh00148
      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
    • trents
      Check Costco's store brand.
    • trents
      Yes, get serum antibody testing done for celiac disease. You could also have NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both.
×
×
  • Create New...