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What's Really Going On In There?


Sulevismom

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Sulevismom Apprentice

HI!

Whenever I get glutened I wonder about what is really going on. How is it that damage to my intestines results in:

bloating,

cramps,

joint pain,

anxiety,

fatigue,

depression,

head fog?

So, what causes the bloating: is it some kind of chemical reaction which causes gas? If so, what kind of chemical reaction? My glutening gas has a particular odour. Why? How much of the bloating is due to constipation? What causes that? Why does the digestive system shut down as it does for me or cause diarrhea as it does for others?

What causes the painful cramping? Do we have nerve cells on the inside of our intestines?

What about joint pain: does that have to do with nutrient deficiencies or does it have more to do with the autoimmune response in the body?

And how about the anxiety? How does a glutening affect the brain? Is it again the autoimmune response, or what?

The fatigue?! That's the big one for me, as a mom to a toddler needs her energy! Why so tired? What's happening throughout the body that makes it such an effort to lift a finger?

Depression: why do the eyes feel like crying, as if I'm cutting onions. And my heart so devastated?

Finally, the head fog. Is it that the neurons aren't firing as quickly? If so, why?

I appreciate any response I get to any of these questions, no matter how scientifically full of jargon. I know to expect that it's probably the case that the scientific/medical community doesn't yet have answers to all these questions, but if anyone knows more information, or has theories, that would be great!


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Kim Hopkins Rookie

Lots of great questions...the trouble is, so little is known for sure at this time. Regarding the depression link, check out this article (https://www.celiac.com/articles/21547/1/The-Celiac-Disease---Depression-Connection/Page1.html - I tried to hyperlink it, but it wouldn't work!), which describes a study where the results demonstrated that "intestinal mucosal dysfunction marked by...leaky gut (a very common occurrence with celiac disease)...plays a role in the inflammatory pathophysiology of depression." Also, this article (https://www.celiac.com/articles/21758/1/Gluten-Sensitivity-and-Depression/Page1.html) might be interesting - it describes how, after the digestive track, the nervous system is the next in line as the most affected by gluten. This may explain symptoms of depression, anxiety, and fatigue. The article discusses how blood flow to the brain can also be effected, which may explain brain fog.

I would also recommend the book "Gut and Psychology Syndrome" by Dr. Natasha Campbell-McBride. It clearly makes the link between a disrupt in the gut flora (which is common in people with celiac disease), brain functioning, and each of the symptoms you listed. Dr. Campbell-McBride is a proponent of the Specific Carbohydrate Diet, as discussed in the book "Breaking the Vicious Cycle" by Elaine Gottschall...another good read.

I have experienced the same symptoms as you, most of which went away with the gluten-free diet. However, 5 years into it, some of the symptoms came back. It was then that I learned about candida and gut health in general. When I started paying attention to and treating these things, my symptoms went away again.

Hope that is helpful and best of luck!

Kim

HI!

Whenever I get glutened I wonder about what is really going on. How is it that damage to my intestines results in:

bloating,

cramps,

joint pain,

anxiety,

fatigue,

depression,

head fog?

So, what causes the bloating: is it some kind of chemical reaction which causes gas? If so, what kind of chemical reaction? My glutening gas has a particular odour. Why? How much of the bloating is due to constipation? What causes that? Why does the digestive system shut down as it does for me or cause diarrhea as it does for others?

What causes the painful cramping? Do we have nerve cells on the inside of our intestines?

What about joint pain: does that have to do with nutrient deficiencies or does it have more to do with the autoimmune response in the body?

And how about the anxiety? How does a glutening affect the brain? Is it again the autoimmune response, or what?

The fatigue?! That's the big one for me, as a mom to a toddler needs her energy! Why so tired? What's happening throughout the body that makes it such an effort to lift a finger?

Depression: why do the eyes feel like crying, as if I'm cutting onions. And my heart so devastated?

Finally, the head fog. Is it that the neurons aren't firing as quickly? If so, why?

I appreciate any response I get to any of these questions, no matter how scientifically full of jargon. I know to expect that it's probably the case that the scientific/medical community doesn't yet have answers to all these questions, but if anyone knows more information, or has theories, that would be great!

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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