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Is This Dh?

Jayde

By Jayde
in Dermatitis Herpetiformis

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Jayde Apprentice
Jayde
Posted

Hey everyone,

10 years ago when I was 15 I got this really bad rash on my hands.. I went to the doctor several times, each time he told me it was exzema and was prescribed incresingly more potent creams but nothing worked. After my 5this visit I gave up and delt with it. I was working at a fast food place at the time and thought i might be reacting to one of the many cleaning chemicals i was getting in contact with.

The rash itself was extreemly itchy, and it was multiple clear, p%$#@# bumps which popped and cracked.. it was really a discomfort!

Once I quit my fast food job, my rash seemed to clear up and I went without a bad rash for several years. I always have had a few spots of what I thought was exzema on my knee and elbow (usually only my right side) but nothing too severe.

About 9 months ago my rash came back! Not as bad as it was when I was 15 and it is only on my right hand.. but my pinky finger was totally swollen and itchy.. I also got a huge patch on my knee, elbow and upper hip..

Around this time I also developed many unexplained fatigue, rapid weight gain, incredible hunger (constantly shoving food in my mouth!!) and just did not feel right...

I went to the doctor about the rash and the not feeling right and was given the exzema and depression diagnosis.. after taking the antidepressants i still did not feel right..

I did some research and came accross Celiac diesease! I cut gluten out of my diet a week and a half now and my rash has started to clear!!! It looks so much better!!!

So my question is.. if a gluten free diet clears my rash does this mean it is definitly DH? And if it is DH then that means I'm definitly Celiac? And if I had DH 10 years ago, why did it seemingly go away back then without cutting gluten?

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Jayde Apprentice
Jayde
Posted
  • Author

So, I did a little more research... and all my Celiac symptoms started full force just after I quit smoking.

I've read that smoking delays the onset of Celiac symptoms. I guess that might explain the rash when I was a teen and no other symptoms.

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      Test result insight

      By disneyfamilyfive · Posted

      Thank you for the article Scott. It was very informative.  I didn’t realize I should have been eating a certain amount of gluten prior to the test.  I only eat bread maybe 1x a week, don’t eat cereal.  Pasta occasionally.  I’m sure there is gluten in nearly everything, so I’ve had gluten but no idea how much, but definitely not slices of bread. Not sure how much or how little that could affect my results.  My doctor didn’t mention anything about eating more gluten or eating bread. 
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      It sounds like you're navigating a lot right now, and it’s good that you’re being proactive about your health given your family history and symptoms. Based on the results you shared, the elevated IgA Gliadin and IgG Gliadin antibody levels could indicate an immune response to gluten, which may suggest celiac disease or gluten sensitivity. However, your tissue transglutaminase IgG (tTG-IgG) result is within the normal range, and your total IgA level is sufficient, meaning the test was likely accurate. While these results might point towards celiac disease, the diagnosis often requires further interpretation by your doctor, especially in light of your symptoms and family history. Your doctor may recommend an endoscopy with a biopsy to confirm the diagnosis, as blood tests alone are not always definitive. In the meantime, you might want to avoid making dietary changes until you discuss the results with your healthcare provider, as going gluten-free before further testing can interfere with an accurate diagnosis. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. This section covers your two positive results: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide)    
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