Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This

Emt719

By Emt719
in Related Issues & Disorders

Recommended Posts

Emt719 Newbie
Emt719
Posted

I am 25 and diagnosed in Feb with celiac, I also had my gallbladder removed 5 days prior to being diagnosed and they said they my lympnodes were extremely inflammed from which found out was the celiac. I have been sticking to a very stict diet and have accidentally gotten glutened a few times and dont know it til the next day, but recently in this past 2 weeks, I have had bloating and alot of gas build up that is causing pressure in my belly and having pretty bad muscle spasms and being treated with bentyl (antispamtic) I wondered if anyone else has had problems like this and if so what has helped... I have now eliminated dairy from my diet because I was eating alot of it and having no problems, but i thought maybe that could be causing it. The doctor also has been treating me since surgery with prilosec due to irritation of the liniing of my stomach due to years of eating gluten. Went to the doctor when he prescibed bentyl one week ago and he said it also could be IBS which is common in celiac? Can someone please give me advice!!!

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

The first thing you need to do is check your scripts and any supplements for gluten. Don't trust your doctor to know ask the pharmacist or call the company directly.

Take a good look at anything new you may have added in the last two weeks and also check to make sure about whether stuff is made in the same plant as gluten items. Many of us become more sensitive to CC as we heal.

In addition it is a good idea to check all your toiletries and make sure if you are sharing a home with gluten eaters that no one is double dipping into condiments, nut butters jelly etc.

One last thing is that although distilled gluten grains are safe for most some of us will react to them. If you drink alcohol it is best to stay away from gluten grain alcohols until you have had time to heal fully.

You may also want to consider trying Pepto Bismal liquid for the stomach pain instead of an acid blocker. For some it does away with the pain in one dose and you won't have a risk of any rebound with the pepto which you may have with the script meds. Being gluten free will help you stomach heal if that was the cause of the irritation.

Emt719 Newbie
Emt719
Posted
  • Author

Thank you so much, I will def. check into the scripts tommorow and sometimes i think i am so worried about getting glutened and feeling bad that i cause stomach problems from anxiety, trying to work on that. I do share the home with husband and he tries so hard to be careful but he slips up and i cant fault him for that. I just keep hoping with time this can only get better (fingers crossed) I hope this site is helpful to me, celiac is not common at all where i live and some people still think my doctors crazy. Thank you any advice is much appriciated.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you so much, I will def. check into the scripts tommorow and sometimes i think i am so worried about getting glutened and feeling bad that i cause stomach problems from anxiety, trying to work on that. I do share the home with husband and he tries so hard to be careful but he slips up and i cant fault him for that. I just keep hoping with time this can only get better (fingers crossed) I hope this site is helpful to me, celiac is not common at all where i live and some people still think my doctors crazy. Thank you any advice is much appriciated.

This site will be very helpful to you I am sure. There are a lot of very knowledgeable people who have walked in your shoes. Do feel free to ask any questions you need to and feel free to vent frustrations. It will get better but there is a lot of learning that goes with the gluten free lifestyle, it is much more than just food. Labeling regs also leave a lot to be desired and when in doubt call a company before you consume anything. It does get easier with time. If you stick with whole unprocessed foods in the beginning it helps you to heal faster as there is less risk of cross contamination. Do read as much as you can here and hang in there. The stomach pain is more likely to be gluten sneaking in than anxiety. One thing you also may want to consider is either deleteing dairy or sharply restricting it at first. The same area damaged by gluten produces the enzymes you need to digest dairy. It may help the healing go a bit faster to avoid it and then when you have been feeling good tummy wise for awhile add it back in starting with yogurt and hard cheeses. Since you live with a gluten eater there are a couple of things you can do. Get your own condiments and label them, also be sure to get another dedicated gluten free toaster for your use only. Many that live in a combined house designate one area for making gluten sandwiches etc and if he cleans up his own crumbs that will help. I hope you are feeling better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Itsabit
      - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      12

      SkinSafe

      Thank you for your response. It has some good information for me to investigate further. In answer to your question about Vit D, yes, and it was normal. I am having the B12 level done today. Additionally, I am going to have a urine to test for iodine, after a correlation with it to dermatitis herpetiformis was mentioned in another post. I had read that in...
    2. cristiana
      - cristiana replied to Sunshine4's topic in Related Issues & Disorders
      5

      Neurologic symptoms - Muscle Twitching and Hand Tremors

      I'd like to second supplementation. Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness. We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and...
    3. knitty kitty
      - knitty kitty replied to Itsabit's topic in Dermatitis Herpetiformis
      12

      SkinSafe

      Hello, @Itsabit, Your journey sounds very similar to mine. I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins. Nutritional deficiencies go along with Celiac Disease. Blood tests are not accurate measurements of deficiency states. The body robs stored vitamins from organs to circulate...
    4. knitty kitty
      - knitty kitty replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      What should I do with these test results?

      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results. Have you been reinfected? The site I've linked below has lots of information about the long...
    5. knitty kitty
      - knitty kitty replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      How many grams is there in one slice of wheat bread?

      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results. Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,340
    • Most Online (within 30 mins)
      7,748
    valerieclaire
    Newest Member
    valerieclaire
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Itsabit
      SkinSafe

      By Itsabit · Posted

      Thank you for your response. It has some good information for me to investigate further. In answer to your question about Vit D, yes, and it was normal. I am having the B12 level done today. Additionally, I am going to have a urine to test for iodine, after a correlation with it to dermatitis herpetiformis was mentioned in another post. I had read that in my research as well. I am praying that I don’t have that! The dietary restrictions, esp when combined with eating gluten free are horrendous! Talk about malnutrition! Anyway, one step, one day at a time. I’m trying not to get ahead of myself. Not easy. 
    • cristiana
      Neurologic symptoms - Muscle Twitching and Hand Tremors

      By cristiana · Posted

      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
    • knitty kitty
      SkinSafe

      By knitty kitty · Posted

      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.   P.S.  When trying not to itch the dermatitis herpetiformis, if you press gently on a large area (press with your whole hand) above the itchy spot, the itchiness goes away.  The bigger area of stimulation drowns out that one jangling dermatitis herpetiformis itchy nerve in the brain. For skin care products, I use tallow balm which is absorbed better into the skin than petroleum products or plant products.  Tallow balm (Vintage Traditions is my favorite) helps my Dermatitis Herpetiformis spots look and feel better quickly.  Tallow soap and olive oil soap is beneficial as well.
    • knitty kitty
      What should I do with these test results?

      By knitty kitty · Posted

      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • knitty kitty
      How many grams is there in one slice of wheat bread?

      By knitty kitty · Posted

      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
×
×
  • Create New...