Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Celiac?


star7

Recommended Posts

star7 Newbie

ok about 2 years ago i had a lot of gastrointestinal issues..diarrhea constipation abdominal pain and so I decided to see a GI doctor...an endoscopy and colonscopy showed inflammation in my small intestine which was biopsied for celiac disease ...the biopsy came back negative..so the GI doctor said it was IBS... :( .the year later i developed a swollen knee randomly that ended up needing surgery (a tear in the meniscus, discoid lateral meniscus)..the surgery revealed swelling and what they believed to be rheumatoid arthritis...after rheumatology visits ..the doctor decided i may have an inflammatory arthritis..and fibromyalgia..but he believes that perhaps i need another endoscopy to rule out celiac disease for sure..b/c maybe all this is caused by it...what are your thoughts? should I go to another GI doctor and get tested for celiac? Could all of this be caused from untreated celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mskedi Newbie

I think it definitely doesn't hurt to check. Wouldn't it be great if you could find out the source of all your trouble?

I think it's awesome that your doctor even thought to double-check for Celiacs, by the way. That seems to be pretty rare.

no-more-muffins Apprentice

It sounds a lot like a gluten sensitivity to me. Many people who are given the diagnoses of "IBS" and "fibromyalgia" when they truly have a gluten intolerance. You could get the biopsy but it still might be negative. There are many members of this board who have had negative testing, including biopsies but have celiac or non-celiac gluten sensitivity. Here's an interesting article about diagnosing gluten sensitivity before villous atrophy. I think it is worth a read.

Open Original Shared Link

Personally, I think I'd give the diet a try for a couple of months. It is worth it if it helps you and I think it would. If nothing else, it is worth a try. It sounds like you have been pretty miserable for awhile.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,496
    • Most Online (within 30 mins)
      7,748

    Russell22
    Newest Member
    Russell22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Soleihey
      @Scott Adams Recently got blood work back and TTG antibodies went from 168.8 to 16.7 and deaminated gliadin was 22 (was not measured the first time). Is this a good start for an 11 month time frame? Just having a hard time with why my symptoms seemed to be flaring up again when my blood work has improved. 
    • dublin555
      I’ve been through something similar recently, and I know how frustrating it can be when nothing seems to work. Based on what you’ve described, it might be worth considering dermatitis herpetiformis, especially with the family history of celiac disease. Testing could give you some answers, and while online kits aren’t as reliable as a GP, they’re a good start if appointments are hard to get. I also found relief through medical cannabis for my eczema, at Releaf, a clinic in the UK that offers eczema medical cannabis treatment. They start with a low dose, adjust weekly, and track progress through online consultations.
    • trents
      Welcome to the forum, @Jaylan! Almost all of the symptoms and medical conditions you describe have been found to be associated with celiac disease. But they can also be caused by other things as well. There certainly is enough circumstantial evidence in your list of medical problems to warrant being tested for celiac disease. Ask your physician to order a celiac panel consisting of, at the very minimum, these two blood antibody tests: total IGA and tTG-IGA. Please do not attempt to limit your gluten intake before the blood draw is taken or you will invalidate the testing. Incidentally, celiac disease is often misdiagnosed as IBS.
    • Jaylan
      Hi there!  I’ve recently been tested for celiac disease, along with other autoimmune diseases. My symptoms started back in 2018 with joint pain in my knees. Since then, it has progressively worsened. I now have joint pain in both knees, elbows, and sometimes my shoulders. The pain is almost unbearable. I feel so stiff in the mornings, and this stiffness can last the whole day. I also experience swelling and warmth around those areas.   Other symptoms include IBS (diagnosed at age 16), restless legs, chest pain, tiredness, miscarriages, bloating, and sharp pain on the right side of my stomach. In the past, I’ve also had problems with a vitamin D deficiency, and my serum folate levels recently came back very low.   My question is: How likely is it that I have celiac disease?    
    • Rebeccaj
×
×
  • Create New...