Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ulcerative Colitis?

lonewolf

By lonewolf
in Related Issues & Disorders

Recommended Posts

lonewolf Collaborator
lonewolf
Posted

My 14 year old son just had an endoscopy and colonoscopy this morning. The only problem that showed up is damage in his colon - he definitely has Ulcerative Colitis. It's better than Crohn's, which is what we thought it would be. He has to take Asacol "indefinitely" according to the GI doc.

My son is already gluten-free, and has been for several years. We're eliminating dairy again starting today. I was diagnosed with colitis way back in college, and then IBS and all my symptoms disappeared when I went gluten-free, dairy-free, soy-free and egg free. I'm still fine now and have reintroduced eggs and occasionally cheat with small amounts of dairy and soy. I've heard that Ulcerative Colitis is worse than just Colitis or IBS.

I've been doing a ton of research and can't get much good information. I think we're going to try probiotics, aloe vera, L-Glutamine and going dairy free for now.

Does anyone have any "real" experience with this? I would love to know some personal experience with what works and what doesn't. Doing research has been very frustrating - everthing just says that there's no cure and that alternative therapies and diets won't help. But I also read that the medications don't work well either. It's tricky when it's your child. I have to give him the medication for a while at least - until he's in remission. If it were just me I would try dietary changes first.

Any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I wish I had some advice for you but I did want you to know how sorry I am that this has happened to your son. I think your plan is sound and I do hope he is feeling better soon.

ksymonds84 Enthusiast
ksymonds84
Posted

Liz, you may want to pop over to the perskyfarms.com colitis boards. Most have MC colitis but others have general colitis, celiac etc. Almost all of them are gluten free, dairyfree, and soy free and that it DOES help their colitis. Tex and Polly (a pediatrician) are the moderators and I bet they would have some fantastic advice for your son!

Michi8 Contributor
Michi8
Posted

The Specific Carbohydrate Diet was developed for treating IBD such as Chron's and Colitis. It may be worth checking out:

Open Original Shared Link

Michelle

lonewolf Collaborator
lonewolf
Posted
  • Author

Thanks for the responses!

I'll pop over to the perskyfarms board very soon.

I actually came on here just now to ask a question about the SCD. This is WAY harder than if it were me. My son doesn't want to talk about it and is only willing to stay gluten-free and go dairy free. At least he's willing to do that much! I'm not sure if I can swing doing the SCD for him (and I'd do it with him) with a husband and 3 other kids in the house. I like to cook, but once school starts I work too and I can't imagine having enough time to make 2 sets of meals most days.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,740
    • Most Online (within 30 mins)
      7,748
    Klsdurbin
    Newest Member
    Klsdurbin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Klsdurbin
      Did I outgrow celiac

      By Klsdurbin · Posted

      No!!! Celiacs disease does not go away. You can’t outgrow it, and if all proper diagnostic procedures (blood test and endoscopy) were followed when you were 8, it’s almost impossible to be mis-diagnosed.    stoms and reactions to gluten do change over time, but the fact you have celiacs does not.    I think that a lot of people misunderstand that the goal to managing your celiacs is to eventually test negative for celiacs. This does not mean it went away, it means that your gluten-free diet is working and you’re no longer producing the anti-bodies that will wreak havoc on your health.    if you can access the medical records from when you were 8 and have a GI doctor review them, I would highly recommend you do this. 
    • Klsdurbin
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Klsdurbin · Posted

      Inovera offers a supplement called Forvia that they claim is formulated for better absorption for those with GI issues including Celiacs Disease.    I would love to hear if anyone has tried it and thinks it might be good. 
    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      You are most welcome, Marie.  Thank you for getting in touch, because this sort of post will be seen by other parents who find themselves in this position, I am sure there are many.   And as I say, in the long run, I am sure your daughter will be sorry for what she said.  I remember having a go at my dear Mum when I was in my twenties about something and then apologising, saying, "I don't know how you put up with me."  I can't remember her exact words but it was something along the lines of, "I used to say things like to my Mum.  Now it's my turn [to be on the receiving end]!"    😂  Although it isn't very nice to be on the receiving end, it is good your daughter feels safe to say these things to you. We look forward to hearing from you again in due course.  
    • Wheatwacked
      Not sure if this is Celiac or just a gluten-free intolerance

      By Wheatwacked · Posted

      Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.    
    • trents
      Trader Joe's strikes again

      By trents · Posted

      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
×
×
  • Create New...