Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Vs. Blood Test

key

Recommended Posts

key Contributor
key
Posted

I posted somewhere else, but thought maybe I should start a new topic.

I have a 13 month old that is failure to thrive, diarrhea that is now pretty much all the time, sore bottom, not eating well now either. He also has the probable diagnosis of Neurofibromatosis1, which is a genetic disease. SOme blood test they did on him for celiac disease came back negative. I believe it was for wheat. Then his IGg level was elevated. THe GI doctor wants to do a biopsy on him for celiac disease and whatever else I suppose. I really hate to put him through the test. Isn't there another test that is easier on him or can't I just take gluten out of his diet and if he has a positive response then we would know that it was the gluten. He has alot of symptoms of celiac. He has been so bad the past few weeks, that I don't think he can wait for six weeks for the biopsy and keep eating gluten.

We are also vegetarian, so I feel completely overwhelmed with what to feed him. He is also not tolerating dairy AT All! I guess maybe he would be able to tolerate that after a few months of a gluten-free diet.

Anybody out there with a similar experience? What is Enterolab?

THanks for answering my questions.

MOnica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I do not know about testing and children but I wanted to tell you that it is fully possible to lead a healthy glutenfree life and be veggie or vegan.

chelly1 Apprentice
chelly1
Posted

you sound like your going through the same problems i did with my son, he is now 10 but for the first 5 years of his life he was so ill under developed for his age anemic and not thriving very well, he had so many urine infections and used to get sore and so i took him to our g.p who couldn't help he was in and out of hospital (3 different ones) and none of them helped me it even got to the stage that he would stop breathing because his body was exhausted. Then i moved counties to bedfordshire and booked in with a different g.p it was him who suggested celiac disease with my son and to put him on a gluten free diet straight away with out any tests just for a few weeks to see if it made any difference it did his world turned around and after 1 blood test after going back on a normal diet for 3 weeks the hospital suggested him to go back on gluten-free diet and we've done that ever since. the thing is with gluten intolerance it may not show in a blood test at all and that maybe further intrusive testing may need to be done. insist that this be done, it's not pleasent seeing your child go through these tests but its better than seeing them waste away and being in so much discomfort. Only you and your family know your child docs are just the science behind everything so make sure you insist that they help in any way they can and don't take no for a answer it does'nt exsist in the matter of your childs health good luck and i hope they help you and your family. p.s alot of glutfin products are also dairy free and they have a wide range and you can order over the internet hope this helps.

key Contributor
key
Posted
  • Author

So was your son tested with a biopsy? I am putting him on a gluten free diet. It has only been two days so far. He has eaten better today though and only went to the bathroom twice, which is good for him. I was just looking up all the ingredients to avoid. Quite overwhelming, but definitely SO worth it to have him not be so miserable all the time. It has gotten bad the last month. He has a biopsy scheduled, but we are out of town for six weeks. If he is doing better on this diet then whether to do the test or not?

Does anyone know how long it takes for the diarrhea to disappear? I know everyone has different symptoms, but if anyone's child sounds like mine does now, how long did it take?

Thanks for all your replies. I am obsessed with finding out what is bothering him. We had an awesome day today though, so I am at least encouraged.

Monica

evasmum Newbie
evasmum
Posted

Hi,

Sorry to hear about your son, I do hope he starts to feel better.

Our Daughter is 20 months old and was very ill up until last month, when I read an article in the paper about a man with celiac disease. All the symptoms they listed my little girl had. I thought it odd since my doctor had made excuse for her swollen belly saying some kids just have it, and her very low weight (12 pounds at over a year old!) and very short stature, by saying since I am so small she just takes after me.

I then did research on this and decided to just see if her constant diarrhea and vomiting would go away if I took her off gluten. She had a full turn around before the week was up and was actually for once not sick and she was happy, not a whining, grumpy little girl any more. My doctor then finally realized after I took him all the symptoms written on a card that she had and that they all correlated with celiac disease, and when I took her off she didn't have them any more. She had her first ever non diarrhea BM in her whole life. He told me to put her back on for testing to make sure. I was fine with it (although I was getting used to not cleaning up her huge messes with the watery BM's and the vomit every day) We took the kids out for pizza and she ate a ton like she normally would, when I went to get her the next morning out of her crib she was laying there with her eyes all glazed over wheezing ever so slightly. I told her to stand up so I could get her out, (she normally is standing and waiting already) she just cried out. I picked up her limp body which was covered in vomit and diarrhea. I couldn

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,881
    • Most Online (within 30 mins)
      7,748
    Sky Dancer
    Newest Member
    Sky Dancer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Hidden Gluten in distilled vinegar

      By Scott Adams · Posted

      @Mynx, how long have you been gluten-free? I ask because many newly diagnosed celiacs react to many things, and often think their reactions are caused by gluten, when in fact, they are really caused by a combination of a sensitive gut due to damage, as well as additional food intolerance/leaky gut issues to other foods which may be temporary until their villi heal.
    • Scott Adams
      Hidden Gluten in distilled vinegar

      By Scott Adams · Posted

      Many major brands of distilled vinegar in the USA, including Heinz white vinegar, are typically made from corn. In the United States, corn is a common and cost-effective raw material used in the production of distilled white vinegar. The process involves fermenting the sugars derived from corn into alcohol, which is then further fermented into acetic acid to produce vinegar. Distillation follows, which purifies the liquid and removes impurities, including any residual proteins or allergens. While the source of the vinegar (e.g., corn) is not always explicitly stated on the label, corn-derived vinegar is widely used in the food industry due to its neutral flavor and affordability. For individuals with gluten intolerance or celiac disease, distilled vinegar made from corn is generally considered safe, as the distillation process effectively removes gluten proteins. However, if you have concerns about cross-contamination or specific sensitivities, it’s always a good idea to contact the manufacturer directly to confirm the sourcing and production practices. Heinz, for example, has stated that their distilled white vinegar is gluten-free and safe for those with celiac disease, but verifying this information can provide additional peace of mind. The belief that distilled vinegar is gluten-free is rooted in the scientific understanding that gluten proteins, which are large and complex molecules, are generally too big to pass through the distillation process. Distillation involves heating a liquid to create vapor, which is then condensed back into a liquid form, leaving behind larger molecules like gluten proteins. However, the concern about cross-contamination arises from the possibility that gluten-containing ingredients may have been present in the liquid prior to distillation. While the distillation process itself is highly effective at removing gluten, the equipment used in production could potentially introduce trace amounts of gluten if not thoroughly cleaned between batches. For most individuals with gluten sensitivity or celiac disease, distilled vinegar is considered safe because the gluten content, if any, is typically below the threshold that would trigger a reaction. However, for those with extreme gluten intolerance or celiac disease, even trace amounts can cause adverse effects. This is why some individuals, like yourself, may choose to avoid commercially produced distilled vinegar and opt for alternatives like apple cider vinegar, which can be verified as gluten-free. The meticulous process of researching ingredients and preparing homemade products, such as ketchup, is indeed challenging but crucial for maintaining health and avoiding gluten exposure. It’s important to note that regulatory standards for gluten-free labeling vary by region, and in many places, products labeled "gluten-free" must contain less than 20 parts per million (ppm) of gluten, which is considered safe for the vast majority of people with celiac disease. Nonetheless, individual sensitivity levels can vary, and your approach highlights the importance of personalized dietary management for those with severe gluten intolerance.
    • Bebee
      Testing for celiac

      By Bebee · Posted

      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
×
×
  • Create New...