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Positive Blood Test Results--what Does It Mean?

mom26boys

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mom26boys Apprentice
mom26boys
Posted

Hi! Last week I saw my doctor and asked him to run a test to rule out celiac. I just received my copy in the mail and it says its positive. Here is what the result says:

ENDOMYSIAL AB SCREEN (IGA)

REFLEX TO TITER

ENDOMYSIAL AB(IGA) SCREEN Positive

ENDOMYSIAL AB TITER 1:5

Can anyone tells me what this means? My doctor is on vacation so I have no idea how long it will be before the office calls me about the results. In the meantime, I'm curious to know what this result means. Does it mean I have celiac? Thanks for your help! This is a great forum!!!

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ravenwoodglass Mentor
ravenwoodglass
Posted

A postive test result means it is likely that you do have celiac. If you plan on having a biopsy keep eating gluten. If your not having a biopsy then start the diet.

mom26boys Apprentice
mom26boys
Posted
  • Author
A postive test result means it is likely that you do have celiac. If you plan on having a biopsy keep eating gluten. If your not having a biopsy then start the diet.

Thank you. I was afraid of that. I have an appt. with a ge on the 19th, but I dont' know when they will schedule the endoscopy for. I've been gluten-free for about 2 weeks now, and I'm deathly afraid of eating any gluten. I'm even having dreams that I eat a little and then realize it was gluten. LOL Will being gluten-free for a few weeks still make a difference in my endoscopy results, or do you still think I should go back to eating gluten again? Thanks for your help! :)

leadmeastray88 Contributor
leadmeastray88
Posted
Thank you. I was afraid of that. I have an appt. with a ge on the 19th, but I dont' know when they will schedule the endoscopy for. I've been gluten-free for about 2 weeks now, and I'm deathly afraid of eating any gluten. I'm even having dreams that I eat a little and then realize it was gluten. LOL Will being gluten-free for a few weeks still make a difference in my endoscopy results, or do you still think I should go back to eating gluten again? Thanks for your help! :)

Going gluten free for any period of time is not a good idea when you're planning on getting a biopsy.

The biopsy is valuable for many reasons, the most important being determining how much damage you may have, as well as ruling out any other conditions. Then if you have a negative biopsy, you may always wonder "what if I hadn't gone gluten free", and be kicking yourself in the hiney for it :)

If you plan on getting that biopsy, please keep eating gluten until it's done, and hopefully it won't take you too long to get in for the procedure :) Good luck!

tarnalberry Community Regular
tarnalberry
Posted

Yes, eating gluten free for a couple of weeks could affect your testing. If you plan to go through with an endoscopy, you should indeed go back to eating gluten.

mom26boys Apprentice
mom26boys
Posted
  • Author

Thank you everyone! I really appreciate your input! I will go back to eating gluten until my test results. You are right. If I'm going to go through the process of testing, then I might as well get the most accurate result I can.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you everyone! I really appreciate your input! I will go back to eating gluten until my test results. You are right. If I'm going to go through the process of testing, then I might as well get the most accurate result I can.

If you have been gluten free for a couple weeks you may have a more intense reaction when you add it back in. If you should become severely ill from the challenge do let your doctor know. Some will have you stop the challenge. A dietary challenge is another valid tool in the road to diagnosis. Some doctors recognize this and some don't.

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mom26boys Apprentice
mom26boys
Posted
  • Author
If you have been gluten free for a couple weeks you may have a more intense reaction when you add it back in. If you should become severely ill from the challenge do let your doctor know. Some will have you stop the challenge. A dietary challenge is another valid tool in the road to diagnosis. Some doctors recognize this and some don't.

Thank you. Wow! I've learned so much here that I never would have thought of. Thank you for the time you respond to my post :)

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    • trents
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By trents · Posted

      Well, the only thing I would conclude with would be, if you choose not to trial the gluten free diet, is to encourage you to get periodically tested, either antibody blood tests or the biopsy or both. I think it something that needs to be monitored.
    • Sking
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By Sking · Posted

      So the strange thing is I don't have any symptoms at all, except the soft stools (comes and goes) which they told me was from the Lymphocytic colitis. I had some mild positives on my antibody test and one gene was positive which is what made my doctor go ahead with the endoscopy. The reason they started any of this was finding the lymphocytic colitis this past summer after I had C Diff and she said, Well....it may be from something like Celiac.... Definitely a lot to learn through all of this and I appreciate people like you taking the time to help out a stranger like me!
    • trents
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By trents · Posted

      Well, I wouldn't rule either out. And you might consider trialing a gluten free diet for a few months to see if symptoms improve. That would tell you a lot. By the way, the incidence of other bowel diseases is higher in the celiac population than it is in the general population. And even if you don't have celiac disease, you could have NCGS. Gluten is just problematic for a lot of folks for various reasons.
    • Sking
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By Sking · Posted

      Thanks for taking a look. I also just did some research and saw that increased numbers of intraepithelial lymphocytes and villous distortion can possibly be from lymphocytic colitis (which I was diagnosed with this past summer)....so fingers crossed this is what she will say it is.  
    • trents
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By trents · Posted

      IMO, Part 3 has some abnormalties that could indicate the early stages of celiac disease but the doctor is tentatively thinking not, at least at this point.
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