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- Scott Adams replied to Matt13's topic in Gluten-Free Foods, Products, Shopping & Medications7Certified gluten free oats
Gluten-free oats can cause villous atrophy in people with celiac disease who are sensitive to oats (~10% of celiacs). While oats are naturally gluten-free and often safe for most individuals with celiac disease, a small percentage of people with the condition are sensitive to avenin, a protein found in oats that is structurally similar to gluten. For these... -
- trents replied to Matt13's topic in Gluten-Free Foods, Products, Shopping & Medications7Certified gluten free oats
This thread is confusing. Apart from any kind of oats, whether gluten free, certified gluten free or just regular oats, you should have been consuming plenty of gluten for a period of weeks leading up to the day of the endoscopy. Consuming wheat products would have been the best choice as wheat is the grain highest in gluten. Once you begin to remove gluten... -
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- Lucille Cholerton commented on Scott Adams's article in Refractory Celiac Disease & Collagenous Sprue5A New Study Focuses on Understanding Non-Responsive Celiac Disease
Thank you so much Scott for these enlightening replies.- 1
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- badastronaut posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Still unsure.....
Dear forum members, I’m still trying to find out whether or not I actually have gluten sensitivity or not. Recent blood test showed a slightly elevated Bilirubine and Lipase but an abdominal ultrasound showed no problems with the liver or pancreas. My zinc and folic acid where both too low. When I eat gluten I get a lot of mucus with my stool and most o...
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By Scott Adams · Posted
It sounds like you're navigating a challenging and frustrating situation, and it's understandable why you'd seek clarity. Based on what you’ve described, it’s possible to have gluten sensitivity without the hallmark villous atrophy seen in celiac disease. This condition is often referred to as non-celiac gluten sensitivity (NCGS). Unlike celiac disease, NCGS does not cause the autoimmune damage to the small intestine that’s detectable through a biopsy, and it won’t show up on standard celiac blood tests. However, symptoms like gastrointestinal distress, changes in stool, and even mood issues, such as anxiety or feeling down, have been reported by others with gluten sensitivity. Your experience with mucus in your stool, stool consistency changes, and mood correlation with gluten intake could be indicative of NCGS. The low levels of zinc and folic acid you mentioned might also hint at some malabsorption issues, even if the root cause isn't celiac disease. It’s worth noting that other conditions, like irritable bowel syndrome (IBS) or a sensitivity to FODMAPs (a group of fermentable sugars in many foods, including wheat), can sometimes mimic gluten sensitivity. Since your symptoms seem to improve when you avoid gluten, it may be worth continuing a gluten-free diet to see if it helps you feel better overall. You might also consider working with a dietitian who specializes in gastrointestinal health to rule out other potential triggers and ensure your diet is balanced. If you’re still struggling to get answers from your doctor, seeking a second opinion from a gastroenterologist might also help you move forward. You're not alone in this, and I hope you can find some relief and clarity soon! -
By Scott Adams · Posted
Gluten-free oats can cause villous atrophy in people with celiac disease who are sensitive to oats (~10% of celiacs). While oats are naturally gluten-free and often safe for most individuals with celiac disease, a small percentage of people with the condition are sensitive to avenin, a protein found in oats that is structurally similar to gluten. For these individuals, consuming oats—whether labeled gluten-free or not—can trigger an immune response, leading to intestinal damage, including villous atrophy. -
This thread is confusing. Apart from any kind of oats, whether gluten free, certified gluten free or just regular oats, you should have been consuming plenty of gluten for a period of weeks leading up to the day of the endoscopy. Consuming wheat products would have been the best choice as wheat is the grain highest in gluten. Once you begin to remove gluten from your diet, inflammation in the small bowel begins to subside and healing of the mucosal lining starts. If enough healing happens before the egd/biopsy there may be no damage to see and the procedure would have been invalid. Recently updated "gluten challenge" guidelines call for the daily consumption of at least 10 g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the procedure.
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By badastronaut · Posted
Dear forum members, I’m still trying to find out whether or not I actually have gluten sensitivity or not. Recent blood test showed a slightly elevated Bilirubine and Lipase but an abdominal ultrasound showed no problems with the liver or pancreas. My zinc and folic acid where both too low. When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal. I also have been quite anxious and little bit down for quite some time now and it seems to correlate with my gluten intake. The problem is that my colonoscopy showed no damage to my gut and my blood test for celiac always come back negative. Can you be gluten sensitive without damage to your villi? (I believe that’s what is normally seen in celiac disease). Thanks for helping! I don’t seem to get anywhere with my doctor so I thought I’d give this forum another try. -
By knitty kitty · Posted
Welcome to the forum, @robingfellow and @Mr-Collateral531, I also had to have my gallbladder removed in emergency surgery. The gallbladder uses lots of thiamine vitamin b1 to function. The gallbladder cannot secrete bile if it doesn't have sufficient thiamine. Thiamine provides our muscles and glands energy to move and secrete needed enzymes and hormones. The thyroid is another gland that requires lots if thiamine to function and secrete hormones. Our brains, just thinking at a desk job, requires as much thiamine as our muscles do if running a marathon. Migraines are linked to thiamine deficiency. Thiamine is the first of the eight B vitamins that our body needs. Thiamine can only be stored for three weeks at most. Our thiamine stores can be depleted in as little as three days. We need more thiamine when we have a physical injury (like recovering from surgery or fighting the flu), if we're emotionally stressed or traumatized, and if we're physically active. Thiamine, like the other B vitamins, is water soluble and easily excreted in urine or most in diarrhea. B vitamins are commonly poorly absorbed in Celiac Disease. Thiamine and the other B vitamins need to be taken together because they interact with each other to make life sustaining enzymes. Thiamine deficiency can affect individual organs. Gallbladder dysfunction is connected to thiamine deficiency, as is hypothyroidism. Migraines are connected to thiamine deficiency. Gastrointestinal Beriberi (abdominal pain, vomiting, etc.) is a result of thiamine deficiency. Tachycardia and fatigue are also symptoms of thiamine deficiency. Thiamine and magnesium make enzymes that are essential for life. Thiamine is needed to absorb certain minerals like iron. Anemia and thiamine deficiency frequently occur together. Thiamine deficiency can cause poor blood cell production (including low antibody production). Thiamine interacts with other vitamins and minerals. Vitamin D is not utilized by the body until turned into an active form by Thiamine. Thiamine is safe and nontoxic even in high doses. High doses of thiamine correct deficiencies quickly which prevent further health deterioration. A one a day type multivitamin is not sufficient to correct vitamin and mineral deficiencies that occur in the malabsorption of Celiac Disease. The Gluten free diet is low in vitamins as they are not required to be enriched with vitamins lost in processing. Supplementing with thiamine and the B vitamins boosts their absorption. Helpful Reading: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/ P. S. Try a DNA test to see if you have any known genes for Celiac Disease before doing a gluten challenge.
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