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Whats The Deal With Drs?


crimsontopper

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crimsontopper Rookie

i am new to the forum. i am currently exhibiting many of the symptoms most posters talk about. during my reading i have come across one thing that seems to be consistant throughout diagnosis and that is that drs easily dismiss celiac. why is this? i asked my dr to prefrom the test and after asking why they agreed easily.


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mushroom Proficient

You were one of the lucky ones, first of all to know about celiac, and secondly to have a doctor willingly test you for it. Count yourself as fortunate :) .

OptimisticMom42 Apprentice

It was easy for us also. There are three of us in our house and we didn't have and problem getting the dr's to dx us.

Jestgar Rising Star

I had no problem getting tested, and even though it was neg (anti gliadin only was run) my doc feels that the improvement in my health is proof enough.

ENF Enthusiast

It seems that various states have different rules for allowing insurance companies to deny coverage for testing and other procedures. My state is pretty good in this regard, and I can usaually get whatever tests I want.

G-freegal12 Contributor

They are all so under educated it's crazy. :angry: I am gonna be a doctor so I can be educated and fix people :D ....why did everyone start screaming and running away when I said I wanted to be a doctor...? :P

GarBear Newbie
i am new to the forum. i am currently exhibiting many of the symptoms most posters talk about. during my reading i have come across one thing that seems to be consistant throughout diagnosis and that is that drs easily dismiss celiac. why is this? i asked my dr to prefrom the test and after asking why they agreed easily.

Ugh! i went to my (mediocre) doctor yesterday to ask him for the lab slip to get tested for celiac (I've been gluten-free for three months now), and anyway... he was SO RUDE about it! I was really upset! He had originally told me that i had irritable bowel (which in my opinion is a total cop-out diagnosis and it just means that they have no idea what's wrong with you). It seemed like he was offended that i didn't agree at all with his original diagnosis.

Anyway... i've been rambling.. Took my blood tests this morning (anxiously waiting for the results! haha)


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ravenwoodglass Mentor
Ugh! i went to my (mediocre) doctor yesterday to ask him for the lab slip to get tested for celiac (I've been gluten-free for three months now), and anyway... he was SO RUDE about it! I was really upset! He had originally told me that i had irritable bowel (which in my opinion is a total cop-out diagnosis and it just means that they have no idea what's wrong with you). It seemed like he was offended that i didn't agree at all with his original diagnosis.

Anyway... i've been rambling.. Took my blood tests this morning (anxiously waiting for the results! haha)

IF you have been gluten-free for 3 months chances are the test will be negative. You need to be consuming gluten for the tests to be positive. If you need a doctors diagnosis you need to go back on gluten. If the challenge makes you very ill IMHO you have your answer no matter what the test results.

jkr Apprentice
i am new to the forum. i am currently exhibiting many of the symptoms most posters talk about. during my reading i have come across one thing that seems to be consistant throughout diagnosis and that is that drs easily dismiss celiac. why is this? i asked my dr to prefrom the test and after asking why they agreed easily.

Yes, I had to have two endoscopies to prove it to the GI. When I first told him last year I thought I had celiac, he said to me "but you don't diarrhea." After the first endoscopy I told him I wanted the blood tests, then he took me seriouisly when they were very abnormal. Then he took the biopies for the second one. I know a lot of people would have switched doctors but I didn't want to go to another doctor and start over.

Good luck.

ang1e0251 Contributor

You're lucky because you had a clue to your illness. Those of us that are clueless go to our dr's with these seemingly random symptoms expecting our dr to put it all together. Many dr's are just undereducated about celiac disease and don't see the pattern. So we are stuck spinning our wheels while test after test is run with no results. Oh if I only could have had the knowledge to ask for a celiac panel....

GarBear Newbie
IF you have been gluten-free for 3 months chances are the test will be negative. You need to be consuming gluten for the tests to be positive. If you need a doctors diagnosis you need to go back on gluten. If the challenge makes you very ill IMHO you have your answer no matter what the test results.

Interesting.. Well thanks for the info =)

ann72601 Apprentice
i am new to the forum. i am currently exhibiting many of the symptoms most posters talk about. during my reading i have come across one thing that seems to be consistant throughout diagnosis and that is that drs easily dismiss celiac. why is this? i asked my dr to prefrom the test and after asking why they agreed easily.

It seems that if you are a woman, it's harder to be heard. If you're an uninsured woman, it's even harder. If you are alone........bring someone with you :lol:

Li'l Buck Newbie

At 40, my lifetime GP retired. My new doctor checked my history and had me tested almost immediately. I think he has celiac disease and so has a vested interest in learning about the disease. What kills me are the Drs in emergency (presumably they are supposed to have the most current medical info?) and paramedics who know nothing about it.

I think that most Doctors get their information (post medical school and perhaps even during) from the drug companies and since they don't have a drug to patent to cure us; they prefer to focus on the drugs to treat our symptoms... far more profitable for the drug companies.

ann72601 Apprentice
At 40, my lifetime GP retired. My new doctor checked my history and had me tested almost immediately. I think he has celiac disease and so has a vested interest in learning about the disease. What kills me are the Drs in emergency (presumably they are supposed to have the most current medical info?) and paramedics who know nothing about it.

I think that most Doctors get their information (post medical school and perhaps even during) from the drug companies and since they don't have a drug to patent to cure us; they prefer to focus on the drugs to treat our symptoms... far more profitable for the drug companies.

In my case, I had to kiss a lot of frogs before I found the prince. I use an MD and ND, both are older and wiser having experienced more than med school. It doesn't matter what there is in life to learn; there is nothing like experiencing it and this means doctors too. My thanks actually goes to the people here who have been there and done that. They've helped me know how to deal with docs and all the daily challenges that come with celiac. I love them!!

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    • trents
      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
      Kroeger has quite a few Gluten free items.  Right now they are redoing my Kroeger store and are adding everything into the regular sections.  Since this was done some new ones have been added.  Publix and Ingles also have great selections. I actually shop Walmart and Food City to since prices on some items vary from store to store.
    • Scott Adams
      Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs.
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