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crimsontopper

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crimsontopper Rookie

im a new celiac and im trying to figure out what life is going to be like for me. i dont want to have to eat every meal at my house. i need to know whats ok and how to tell. is there a resource like this or can anybody give me a guide to what is ok? im a little frustrated, scared and confused. any help would be appreciated.


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The Fluffy Assassin Enthusiast
im a new celiac and im trying to figure out what life is going to be like for me. i dont want to have to eat every meal at my house. i need to know whats ok and how to tell. is there a resource like this or can anybody give me a guide to what is ok? im a little frustrated, scared and confused. any help would be appreciated.

Really, the very best idea is to read the threads on this very forum (Gluten-Free Restaurants). You'll get a fairly good idea. In general, fast food is problematical. You can find items at Chick-Fil-A and Wendy's; otherwise, you're lucky if you can eat the french fries. Outback Steakhouse has a good gluten-free menu and most people do not have problems there. Other sit-down restaurant chains (with the very notable exception of Red Lobster) tend to have gluten-free menus; most do an at least fair job. It is recommended (by the restaurants themselves) that you ask for the manager so s/he can alert the kitchen about your sensitivities.

You can also focus on national cuisines that don't normally use wheat. Most cities have Thai restaurants. Larger cities have Ethiopian/Eritrean ones. Pho places (Vietnamese) are getting more popular. The key is making sure they don't use wheat noodles or soy sauce (usually contains wheat). You may be able to eat Mexican, though you're cautioned against eating the chips they bring out, as these are often cross-contaminated.

Try not to be frustrated, scared or confused. It gets easier quickly, and even fun learning a new way to eat. Welcome to the board, and good luck to you.

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    • trents
      Welcome to the forum, @Jason Hi! First, we need to deal with some squishy terminology. There are two terms which are, unfortunately, used interchangeably and indiscriminately to refer to two different gluten-related disorders. The two terms are "gluten sensitive" and "gluten intolerant". Because these terms are used carelessly we are not certain what you mean when you say your doctor told you that your are likely "gluten sensitive". The actual medical terms for these two gluten disorders are: "celiac disease" and "Non Celiac Gluten Sensitivity" or NCGS for short. The test you had run by the GI doc are intended to check for celiac disease. There is no test for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out.  Because these terms are used by many people interchangeably I'm not sure that your doctor, after running the tests, was intending for you to understand that he believes you have celiac disease or NCGS. So, to clear up the confusion, can you post the results of your blood test, not just the test scores but the reference ranges used by the lab analyzing the blood sample to determine negative/positive or normal/high? The difference between celiac disease and NCGS is that celiac disease damages the lining of the small bowel over time whereas NCGS does not. However, they may share many of the same gastro intestinal symptoms. Both need to be addressed with a gluten free diet but the tax breaks and work place accommodations you speak of would likely only accrue from an official celiac disease diagnosis. So, can you post the blood test results along with the reference ranges and also the endoscopy report. We can help you decipher whether or not the doc was suggesting you may have celiac disease or NCGS if you will do that.
    • Jason Hi
      I recently had an upper gastrointestinal endoscopy and blood tests, and my gastroenterologist concluded that I’m “likely gluten sensitive.” However, they wouldn’t provide a prescription or a formal doctor’s note—just a test result saying I’m likely gluten sensitive, along with the advice to avoid gluten. I’m frustrated because I know that proper documentation could help with tax breaks for gluten-free foods and even workplace accommodations. I’m also not willing to go through another gluten challenge—it was rough! Does anyone have recommendations for a doctor (U.S. based preferably Texas) who is more understanding and willing to provide the necessary documentation for gluten sensitivity? I’d really appreciate any suggestions!
    • ALBANICKAP
      Hi, I'm very frustrated with my problems related to the above.  I find Gluten to be easier than fructose, at times even lactose b/c I love cheese.  I do buy lactose free dairy products but still have problems.  Have recently been adding more bread to bulk up my stools.  Any suggestions for products that might help? Thx. AP  
    • Scott Adams
      Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck!
    • Celiacandme
      Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀
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