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Wearing Medical Alert Bracelet?

mytummyhurts

By mytummyhurts
in Gluten-Free Restaurants

Recommended Posts

Kurly Newbie
Kurly
Posted

SKBird I would highly reccomend you get a medID bracelet, I am currently going to school for EKG and phlebotomy and one of the antiseptics frequently used it betadine. If for any reason you are not conscience and they need to start an IV you don't want them to use the betadine, plus all the other antibiotics that you are also allergic to. Although your reactions until recently have been just hives, if you are having a crisis, that reaction could be hightened and you don't want any added complications. The celiac part of the medID is the least of your concern, but once getting one, might as well add it.

Kaiti, I had a very interesting allergy testing experiences. I had done many years ago the skin prick test and had been told that I was allergic to some airborn stuff (mold, dust, cockroaches, ragweed...), recently when I got sick I saw a new allergist who did a blood test. The weirdest thing... I came back as being allergic to NOTHING! It turns out I have very reactive skin but not actually allergic to anything. I have reactive airways and apparently gluten sensitivity (extremely sensitive!) My skin reacts to almost anything and everything! The new allergist said that for people like me with reactive skin the prick test gives false negatives. So happy to hear you are having the blood tests.

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psawyer Proficient
psawyer
Posted

*** Old Topic Alert ***

This topic was dormant for more than six years. The post above revived it. Please be aware that information here may be out of date, and most of the previous participants are no longer active members of the board.

  • 1 month later...
Betty Wheaton Newbie
Betty Wheaton
Posted

I picked up a frozen Amy's mac and cheese,thinking it was the gluten free which I always buy.The container looked the same,but I hadn't notice that it didn't say gluten free. I went into shock a while later,was alone,scared,and couldn't move to get to the phone.Finally I was able to get to the bed,and laid there until I felt better. I had never read about this,and have been a Celiac for most of my life.I also have followed a gluten free diet,and had never eaten a meal of gluten until recently. Is it necessary to keep an epi-pen with me from now on,and also being very careful with my diet?

sariesue Explorer
sariesue
Posted

I picked up a frozen Amy's mac and cheese,thinking it was the gluten free which I always buy.The container looked the same,but I hadn't notice that it didn't say gluten free. I went into shock a while later,was alone,scared,and couldn't move to get to the phone.Finally I was able to get to the bed,and laid there until I felt better. I had never read about this,and have been a Celiac for most of my life.I also have followed a gluten free diet,and had never eaten a meal of gluten until recently. Is it necessary to keep an epi-pen with me from now on,and also being very careful with my diet?

Epi-pens only work for allergic reactions so it would not be helpful in a celiac reaction unless you also have a wheat, barley, or rye allergy.

mamaw Community Regular
mamaw
Posted

I purchased the Care USB bracklet for other serious life threating allergies I have. I do carry a epi-pen for my angio lymphatic edema that happens quickly as well.As an adult I wouldn't have even considered the bracklet if my only issue was celiacbut since I had other severe issues I decided & my doc thought it would be a good idea. Esp.if I was alone or in a car accident & there was no one who could speak for me...

I do agree with another poster that small kids need to use a brackletif they react strongly to gluten. I know a small child that becomes violently ill from gluten & ends up in the hospital every time...not a normal case for sure but the bracklet states the violent

reaction...They also have asthma ...

I believe if a person is not following the gluten free lifestyle they have no reason to understand the issues with gluten.. which I think is understandable...

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  • Posts

    • Manaan2
      Hidden Gluten in distilled vinegar

      By Manaan2 · Posted

      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Opinions on my test results/symptoms

      By BIg Nodge · Posted

      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
    • Dawn Meyers
      Vaccines

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      Mayo is great and yes I had the same experience.  They take you seriously and they check everything.  I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.  
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