Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ive Been Gluten Free For Five Days......

Twiggy

Recommended Posts

Twiggy Rookie
Twiggy
Posted

I have vast improvement in my symptoms already,the stomach pain has eased and the bloating is starting to go down.I have'nt got the results of my gut biopsy back yet but i was feeling so poorly that i thought i'd go gluten free for 7 days to see if i felt any better and i'm glad i did.There is just one thing thats bothering me though,i think ive had DH since my mid-teens (i'm 39 now) and if i stop eating gluten would i get a false negative on my skin test the same as for the gut test??? Input would be greatly apreciated,thanks :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
I have vast improvement in my symptoms already,the stomach pain has eased and the bloating is starting to go down.I have'nt got the results of my gut biopsy back yet but i was feeling so poorly that i thought i'd go gluten free for 7 days to see if i felt any better and i'm glad i did.There is just one thing thats bothering me though,i think ive had DH since my mid-teens (i'm 39 now) and if i stop eating gluten would i get a false negative on my skin test the same as for the gut test??? Input would be greatly apreciated,thanks :P

I don't have DH, but as I understand it, the skin test can only be taken when you have an outbreak (and only from skin right next to an outbreak). If it's DH, you'll only have an outbreak if you eat gluten. Therefore, if you're off gluten, you shouldn't have an outbreak again and a skin test wouldn't be possible (or needed). But if you have a powerful need to know for sure that it's DH, yes, you would need to keep eating gluten until you have an outbreak to be tested.

ang1e0251 Contributor
ang1e0251
Posted

My DH took about as long to clear up as it was a problem for me; 6 - 8 weeks gluten-free. I've read other posters say that the antibodies take a while to leave your skin. Is your test soon? I think you could eat enough to break you out again. I don't think it's like the long term usage you need for and endoscopy. Maybe someone will post who knows more than I.

Twiggy Rookie
Twiggy
Posted
  • Author

Hmm,i feel too well to risk making myself ill again....i dont know what to do :) I dont know if i really do need a dignosis,i'm convinced i have DH so thats prob good enough and besides that,if i dont eat anymore gluten it wont be a problem in the future.I have noticed however that i seem to get upset and a washing-machine type tummy now when i have milk or milk products (cottage cheese) i will just persist with this cause many of you say its temparey until you heal a bit.I cant believe that when i go to the loo im starting to have sem-normal stools without ''that'' familiar smell i'd gotten so used to.The thing thats also putting me off getting tested is that by the time i have a flare up,show my GP and wait for an appt with a skin specialist the rash will have cleared again.Sometines it lasts a month sometimes a week and sometimes it may clear completely for a month....tricky right?

ang1e0251 Contributor
ang1e0251
Posted

Don't jump the gun! You haven't even heard the results from your biopsy. Don't assume you need the DH to get a dx. I know it's hard to wait but hang in there. I didn't feel the need to make myself sick again for a dx. My body told me what I needed to know. That's a personal desicion you have to make but you are cool here at the forum whether you go for further testing or not.

The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
Hmm,i feel too well to risk making myself ill again....i dont know what to do :) I dont know if i really do need a dignosis,i'm convinced i have DH so thats prob good enough and besides that,if i dont eat anymore gluten it wont be a problem in the future.I have noticed however that i seem to get upset and a washing-machine type tummy now when i have milk or milk products (cottage cheese) i will just persist with this cause many of you say its temparey until you heal a bit.I cant believe that when i go to the loo im starting to have sem-normal stools without ''that'' familiar smell i'd gotten so used to.The thing thats also putting me off getting tested is that by the time i have a flare up,show my GP and wait for an appt with a skin specialist the rash will have cleared again.Sometines it lasts a month sometimes a week and sometimes it may clear completely for a month....tricky right?

Not that it's a diagnosis, but you can always look at pictures of DH and see if they at least look familiar, eg: Open Original Shared Link

Twiggy Rookie
Twiggy
Posted
  • Author

Thanks for the Link Fluffy :D it sums my rash up to a ''T'',i'm just going to continue with my gluten-free lifestyle regardless of a DX,i feel fab!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,171
    • Most Online (within 30 mins)
      7,748
    Cissy59
    Newest Member
    Cissy59
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Daughter recently diagnosed with Celiac and I am questioning my results...

      By Beverage · Posted

      As Scott suggests, look into dermatitis herpetiformis. Also the rash there could be from SIBO small intestinal bacterial overgrowth or candida. If your regular doc won't investigate those possibilities, consider going to a naturopathic doc or integrative medicine doc.
    • Beverage
      Muscle Twitching

      By Beverage · Posted

      The forms of vitamins really mattered for me, maybe not for everyone but very much for me. Learned so much here. This b12, recommended by @Ennis-TX has really helped me since diagnose.  I can tell when i run out that i don't feel as good. LIQUIDHEALTH Vitamin B12 Methylcobalamin Liquid Drops with Sublingual Hydroxocobalamin - Boost Energy, Support Immune System, Improve Memory & Concentration - Vegan, Sugar Free, Non-GMO (2 Pack) https://a.co/d/c3cxXt7   i also had RLS, one of my few noticeable symptoms before diagnosis. It rears up when I slack off the supplements or drink wine. I found 2 of these a day keeps it at bay, get it very rarely now: Limited-time deal: ANDREW LESSMAN Circulation & Vein Support for Healthy Legs 60 Capsules - High Bioactivity Diosmin, Butcher's Broom, Visibly Reduces Swelling & Discomfort in Feet, Ankles, Calves, Legs https://a.co/d/7int9i9   I also take the procapslabs.com b complex, it has the methyl forms, which makes a difference for me: ANDREW LESSMAN High Potency B-Complex 180 Capsules - with High Levels of Folate Complex & Biotin, Promotes Cellular Growth, Energy, Immune Function, Detoxification, Fat Metabolism & More https://a.co/d/4fkAmFx   I also take extra thiamine, in form benfotiamine, as recommended by @knitty kitty which tremendously helped asthma. 
    • Scott Adams
      Truly seltzers

      By Scott Adams · Posted

      Perhaps you'll need to mix your own cocktails?
    • Scott Adams
      Toddler Diagnosis?

      By Scott Adams · Posted

      Your son has two positive blood tests for celiac disease, plus a positive biopsy for it...why hasn't your doctor diagnosed him with celiac disease, which is the most likely diagnosis based on the test results you shared? The next step should be a gluten-free diet, which your doctor already recommended.     
    • trents
      My bone structure is disintegrating and I’m having to have my teeth removed

      By trents · Posted

      I am glad to hear you are not taking acid blocking meds as they increase gut PH which inhibits mineral absorption which, in turn, often causes the body to rob it's own bones of the calcium it needs for various metabolic processes. I was asking about that because acid reflux is very common in the celiac community.
×
×
  • Create New...