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glutenfreegal

By glutenfreegal
in Meet Up Room

Recommended Posts

glutenfreegal Newbie
glutenfreegal
Posted

Hello! My name is Alicia in live in PA and I was recently diagnosed with Celiacs. I have been struggling for YEARS. I was admitted to the hospital several years ago for an 11 pound weight loss in 3 days due to severe diarrhea but was told I had a stomach bug. I have always been food sensative...in fact a doctor told my parents when I was 9 that it was red meat that was bothering my sensative belly...so I am now 33 and have not had a drop of red meat since age 9. About 1 year ago I got fed up and started my quest to feel better.

1 year later I am almost there. I have been gluten free for 13 days. For the first time in my life I went 2 days w/o going to the bathroom (ahem..#2)...I am not suffering from bloat...not so tired that I could fall asleep at the wheel....Each day I feel alittle better. I LOVE to cook so I have to redo my pantry a bit..lol. But that is ok!!!

So anyway...just want to say HI! ;)

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Lisa Mentor
Lisa
Posted

Hi Alicia and a BIG welcome. If we can help you in anyway...just let us know. ;)

glutenfreegal Newbie
glutenfreegal
Posted
  • Author
Hi Alicia and a BIG welcome. If we can help you in anyway...just let us know. ;)

Thanks! I am looking forward to meeting some people and hope to find a support group nearby...I kinda had a breakdown the other day when I couldnt enjoy dessert after Sunday dinner. So I think maybe I would benefit from some support!

Lisa Mentor
Lisa
Posted

There are defined stages of dealing with Celiac.

At first, I was confused and had to learn what Celiac Disease was after my diagnosis. Then, I felt a sense of relief that I did not have a life threatening disease.

And I remember standing in the middle of the isle in the grocery story and getting so angry with my eyes filling with tears.

The learning curve is very steep, but many, many good people here helped me make my way through this struggle.

There are many support groups around the country. What city are you near and I will pass on some support links. But, this is the best one around.

glutenfreegal Newbie
glutenfreegal
Posted
  • Author

I am only 40 minutes from Philly...Close to Conshohocken and Montgomeryville

lizard00 Enthusiast
lizard00
Posted

Welcome!

I had a breakdown over pizza... :lol: We've all been there, probably a couple of times. This place was a huge help for me. Glad you found us!!!

this is the best one around.

So very true! ;)

ranger Enthusiast
ranger
Posted

Hi Alicia, and welcome. This forum has literally saved my life. There is much good advice, humor, and most importantly, understanding and community. What other group of poeple could you freely talk about poo but us! I'm 9 months gluten free and soooo much better. Ask questions, even if they seem stupid. Someone here will have the answer. Good luck.

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    • ShariW
      potato chip cross contamination

      By ShariW · Posted

      Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      I'm 63  Thank you for the article. I have worked with Dietitian at Mayo and also had breath testing done. They felt I was following a strict gluten-free diet along with eliminating sugar alcohol and chicory root. Also don't eat a lot meat, eggs and peppers. Because I get so sick I use only gluten-free products for my skin food medicine my pet food is gluten-free and I live alone so all my cooking stuff is all brand new prior to being diagnosed.  I buy only organic certified gluten free products and if not sure  look up or just don't eat or use. The Dermatologist at Mayo gave me a list of gluten-free products that I can use. ( personal products,  laundry detergent, I use vinegar and baking soda for cleaning ) . I ask family and friends to not bring  anything  in to my home that has gluten in it. I have tried  everything and my numbers still off the charts.   So as for the pneumonia vaccine I question if it has anything in it that will react negative in me? 
    • trents
      Vaccines

      By trents · Posted

      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude of places and ways gluten is hidden in the food supply and sneaks its way into our eats. So, eating "lower gluten' is easy but attaining a consistently and truly gluten free state is much harder and requires diligence. I am linking this article that might be of help to you in that regard:  
    • Scott Adams
      Opinions on my test results/symptoms

      By Scott Adams · Posted

      PS -  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You mentioned that your bowel movements may be a bit more regular, so this could be another indication of NCGS.    
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      You did not mention your age, but depending on how old you are it makes a big difference on how important it is to get a flu vaccine. 
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