Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors To Avoid (for Celiac And Intolerance)


nu-to-no-glu

Recommended Posts

nu-to-no-glu Apprentice

I've been wanting to start a thread to help others, like so many here, that go from Dr to Dr looking for answers. We spend so much time and money to get support. I want to mention that I'm not bashing any dr, but I wish I could have looked on here and seen if anyone else had met these Drs and whether they knew anything about celiac. So here are my suggestions:

In Kansas, these Drs are not well versed in celiac/gluten intolerance (but are in other GI issues):

Dr. Eaker

Dr. Buser

Dr. Pravin Patel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



finally diagnosed Apprentice
I've been wanting to start a thread to help others, like so many here, that go from Dr to Dr looking for answers. We spend so much time and money to get support. I want to mention that I'm not bashing any dr, but I wish I could have looked on here and seen if anyone else had met these Drs and whether they knew anything about celiac. So here are my suggestions:

In Kansas, these Drs are not well versed in celiac/gluten intolerance (but are in other GI issues):

Dr. Eaker

Dr. Buser

Dr. Pravin Patel

In my opinion this is Dr. Bashing. I look to this site for support, and questions ie: product information, new rest info. I do not wish to be part of a web site that will bash doctors for not being versed in Celiac. This is something that a lot of docs are still learning about. It is good to vent regarding something. But to personally name someone is wrong. You have no idea if they have a relative or loved one or a patient on this site.

twe0708 Community Regular

I hear what you both are saying, but if one Dr. is better than another it helps one from wasting their time. It's not that he or she is saying these are bad doctors. They may just be saying that they aren't as experienced with celiac disease as we would want them to be. :)

nu-to-no-glu Apprentice

Ooh, that wasn't the intention at all, if you notice I said that they are very well informed drs, just not as informed in celiac disease. I was trying to be helpful to those who are searching and have limited time and funds, it's not an easy disease and many are not as specialized, hopefully, this won't be the case for long. I don't see it as "bashing" at all, and appologize if you see it that way.

RESO Apprentice

Since America is the country of lawsuits, my opinion would be to change the thread to "doctors who are knowledgeable" and maybe come at it that way. Of course, it's not slander if it's the truth, and I am not the biggest fan of many western docs. I completely understand that your intentions are very good. Just my two cents.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,878
    • Most Online (within 30 mins)
      7,748

    Dcecilio
    Newest Member
    Dcecilio
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      @Mynx, how long have you been gluten-free? I ask because many newly diagnosed celiacs react to many things, and often think their reactions are caused by gluten, when in fact, they are really caused by a combination of a sensitive gut due to damage, as well as additional food intolerance/leaky gut issues to other foods which may be temporary until their villi heal.
    • Scott Adams
      Many major brands of distilled vinegar in the USA, including Heinz white vinegar, are typically made from corn. In the United States, corn is a common and cost-effective raw material used in the production of distilled white vinegar. The process involves fermenting the sugars derived from corn into alcohol, which is then further fermented into acetic acid to produce vinegar. Distillation follows, which purifies the liquid and removes impurities, including any residual proteins or allergens. While the source of the vinegar (e.g., corn) is not always explicitly stated on the label, corn-derived vinegar is widely used in the food industry due to its neutral flavor and affordability. For individuals with gluten intolerance or celiac disease, distilled vinegar made from corn is generally considered safe, as the distillation process effectively removes gluten proteins. However, if you have concerns about cross-contamination or specific sensitivities, it’s always a good idea to contact the manufacturer directly to confirm the sourcing and production practices. Heinz, for example, has stated that their distilled white vinegar is gluten-free and safe for those with celiac disease, but verifying this information can provide additional peace of mind. The belief that distilled vinegar is gluten-free is rooted in the scientific understanding that gluten proteins, which are large and complex molecules, are generally too big to pass through the distillation process. Distillation involves heating a liquid to create vapor, which is then condensed back into a liquid form, leaving behind larger molecules like gluten proteins. However, the concern about cross-contamination arises from the possibility that gluten-containing ingredients may have been present in the liquid prior to distillation. While the distillation process itself is highly effective at removing gluten, the equipment used in production could potentially introduce trace amounts of gluten if not thoroughly cleaned between batches. For most individuals with gluten sensitivity or celiac disease, distilled vinegar is considered safe because the gluten content, if any, is typically below the threshold that would trigger a reaction. However, for those with extreme gluten intolerance or celiac disease, even trace amounts can cause adverse effects. This is why some individuals, like yourself, may choose to avoid commercially produced distilled vinegar and opt for alternatives like apple cider vinegar, which can be verified as gluten-free. The meticulous process of researching ingredients and preparing homemade products, such as ketchup, is indeed challenging but crucial for maintaining health and avoiding gluten exposure. It’s important to note that regulatory standards for gluten-free labeling vary by region, and in many places, products labeled "gluten-free" must contain less than 20 parts per million (ppm) of gluten, which is considered safe for the vast majority of people with celiac disease. Nonetheless, individual sensitivity levels can vary, and your approach highlights the importance of personalized dietary management for those with severe gluten intolerance.
    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
×
×
  • Create New...